RE: Gamma Globulin

[Guest guest]

Hi, this is Dr. , I used this one, in thousands patients in my

country, Cuba for a lot of years, and didn't have problem.Inclusive, we used

Gamma especific antirrabic too; and no problem.If you want, write me,

please.Tenks, armando.

gettinghealthyto@... wrote:Hello,

Has anyone used Gamma Globulin before or are you using it now? If so, can

you please comment on your experience with it? Did you notice getting any

better? Are you afraid of it being contaminated?, etc Thank you,

[Guest guest]

I've been taking it for years on and off, as far as I know no problem. I

use it to prevent or cure or improve respiratory infections and viral

infections. I do not notice that it helps my other symptoms.

n

At 08:08 16/07/03, you wrote:

>Hello,

>

>Has anyone used Gamma Globulin before or are you using it now? If so, can

>you please comment on your experience with it? Did you notice getting any

>better? Are you afraid of it being contaminated?, etc Thank you,

>

>

>

>

[Guest guest]

Our Target pharmacy was able to order it easily in September (they don't keep it

in stock.) The last time I bought it (October) I had to get a bottle two or

three times bigger because the supplier was out of stock of the smaller size

(good for 2-3 injections) for an unknown time. Hope there won't be problems

with this medication staying on the market.

- in AL

Reality lies beyond the horizon...

Wonderwegian

[Guest guest]

I haven't had a problem, this med is in huge supply since it is made

from human plasma there is no shortage. Try a bigger pharmacy if

needed, but even the little pharmacy I go to that is no more than a

hole in the wall is able to get it.

Make sure you get the bigger gauge needles though, if you were using

Kutapressin, Gamma Globulin is thicker and requires a larger needle,

otherwise you will have a tough time getting the medication out of

the syringe.

If you haven't used this yet, you will love it, the results I have

seen are incredible. Great color, eyes are clear, improved

concentration, even increased language, total sensory calm down!

This stuff is great!

> Has anyone had trouble getting gamma globulin? I have called a

> couple of pharmacies who say they don't carry it. Do I need to

call

> a hospital pharmacy? Any advise?

>

>

[Guest guest]

How old is your child and how long did it take before

you saw these improvements? My son has been on

kutapressin for 5 mos. and just had his 5th imgg. So

far, I am not seeing any dramatic improvements. They

are very slight so far and just have been offset by an

increase in celexa. He is 12 and has been on the

program for a year now. I am worrying that maybe he

has permanent damage which cannot be helped. Dr. G is

also considering stattera for him. Maybe if we can

get the pandas resolved we will get some real

improvements. He may have to go on keflex for that.

Anyone have to go to keflex yet and have any

experience with it? Dr. G would like to cont. with

the emycin, but so far, the improvements are so slow.

He is only down to 555 after 9 mos. Barb

--- atlantickayaker <nancyballard@...> wrote:

> I haven't had a problem, this med is in huge supply

> since it is made

> from human plasma there is no shortage. Try a bigger

> pharmacy if

> needed, but even the little pharmacy I go to that is

> no more than a

> hole in the wall is able to get it.

>

> Make sure you get the bigger gauge needles though,

> if you were using

> Kutapressin, Gamma Globulin is thicker and requires

> a larger needle,

> otherwise you will have a tough time getting the

> medication out of

> the syringe.

>

> If you haven't used this yet, you will love it, the

> results I have

> seen are incredible. Great color, eyes are clear,

> improved

> concentration, even increased language, total

> sensory calm down!

> This stuff is great!

> > Has anyone had trouble getting gamma globulin? I

> have called a

> > couple of pharmacies who say they don't carry it.

> Do I need to

> call

> > a hospital pharmacy? Any advise?

> >

> >

[Guest guest]

Barb-

What is the name of the company that manufactures it? I wish the

office would have told me that. Maybe I can get the pharmacy here to

do the same.

> > Has anyone had trouble getting gamma globulin? I

> > have called a

> > couple of pharmacies who say they don't carry it.

> > Do I need to call

> > a hospital pharmacy? Any advise?

> >

> >

__________________________________

[Guest guest]

How sad I am to hear your story. You are in our prayers and I hope you are able

to get this under control.

While I have not been on Gamma Globulin myself, I have a neighbor who was being

treated with it...

It's my understanding that if you have lyme and do the GG treatment, it will

make more antibodies appear in your test, because it pumps up your immune

system, which produces the antibodies they are looking for...

Now, that's just my understanding... so don't take it as FACT. I'm sure others

will be along to help you further.

Did you post on http://www.lymenet.org yet? They will have good info for your

too. Also, you may want to search their archives.

Best wishes to you,

carol aka dizz

[Guest guest]

Hi ,

Ther was a double blind study done with CFIDS many year ago that showed it

to be quite successful for CFIDS. I have been taking it for CFIDS but I also

was diagnosed with Dysgammaglobunemia. It has really helped with everything,

including exhaustion & viral etc.

Give it a chance it might help you.

I take 30 grams IV weekly of Gamimune 10%

[Guest guest]

In a message dated 3/17/2004 11:52:36 AM Pacific Standard Time,

Cbuf1920@... writes:

Hi ,

Ther was a double blind study done with CFIDS many year ago that showed it

to be quite successful for CFIDS. I have been taking it for CFIDS but I also

was diagnosed with Dysgammaglobunemia. It has really helped with everything,

including exhaustion & viral etc.

Give it a chance it might help you.

I take 30 grams IV weekly of Gamimune 10%

Unfortunately, in my experience, unless you are diagnosed with something like

Dysgamma or some other documented primary immune deficiency (PID), you a)

won't find a reputable doc to give it to you, and you won't get the necessary

insurance coverage (approx. cost $4000/mo). In my case, I have subclass

deficiency which is not considered by the medical establishment and insurance

cos.

as a PID, went to 2 immunologists, had tests run, and still couldn't get them

to write a scrip or get coverage even though the doc said I would benefit by

having IVIG. A bunch of b.s. if you ask me, but nothing I can do. It's too bad

because it could help a lot of people I believe.

[Guest guest]

In a message dated 3/17/2004 12:25:22 PM Pacific Standard Time,

jenbooks13@... writes:

What are the specific immune tests you can get to get a diagnosis

that can get it paid for by insurance?

There are several tests for individual immunoglobulins (IGG, IGA, IGE, IGM)

and those for subclasses as well, however, unless you're able to obtain from

your doc a documented diagnosis of a primary immune deficiency like

hypogammaglobulinemia or dysgammaglobulinemia, good luck in getting coverage

whch would

otherwise cost $4000/mo.!

[Guest guest]

I just had blood drawn, for blood tests. Do not understand why you would need

to get a tetanus shot.

[Guest guest]

In a message dated 3/17/2004 1:27:15 PM Pacific Standard Time,

jenbooks13@... writes:

Is that true? I remember reading on the internet about a woman who

found out she had a subclass specific antibody deficiency and got

covered. MY problem is I do not feel like stressing my body with

tetanus and other " shots " to see how I respond.

It is true for me with the 2 docs. that turned me down for treatment. I do

recall that info and the doc that person was using does IVIG and I believe she

does get it covered as an office visit, however, the key here is - finding a

doc WILLING to prescribe it and get it to go through insurance! The vaccines had

a minor effect on me.

[Guest guest]

In a message dated 3/17/2004 2:23:08 PM Pacific Standard Time,

jenbooks13@... writes:

For specific antibody deficiences there are various shots you get, to

see if you develop antibodies.

I don't have any obvious deficiencies in absolute immunoglobulins but

given my history I have something going on and I wish I could get

IVIG. But i'm not spending $800 bottle.

Again, any reputable pratitioner will require hard core documentation before

giving anyone IVIG, as there are, or have been in the past, inherent risks of

contamination, even though I don't worry about this myself. Subclass

deficiency wasn't enough to get these docs to give me treatment and it is

impractible

for me to travel once a month just to get an IV infusion from a willing doc.

[Guest guest]

What are the specific immune tests you can get to get a diagnosis

that can get it paid for by insurance?

[Guest guest]

Is that true? I remember reading on the internet about a woman who

found out she had a subclass specific antibody deficiency and got

covered. MY problem is I do not feel like stressing my body with

tetanus and other " shots " to see how I respond.

[Guest guest]

In a message dated 3/17/2004 8:54:43 PM Central Standard Time,

dorisbrown9@... writes:

> Lately I have seen people on this list say IVIG is $800, $2500, and $4000

> each time. I suppose this might be due to dosage. Everyone should do as you

> did and put the dosage when they quote numbers.

>

The price varies so much..............especially during war times.

Carole

[Guest guest]

I get a Home IV Nurse to come in to do my Infusions. It took about 3 months

to find the right brand that would work for me & to slowly raise the dosage &

notice the improvement. But if you start with the right product it might take

you less time. But 3 months is a good trial time.

[Guest guest]

For specific antibody deficiences there are various shots you get, to

see if you develop antibodies.

I don't have any obvious deficiencies in absolute immunoglobulins but

given my history I have something going on and I wish I could get

IVIG. But i'm not spending $800 bottle.

> I just had blood drawn, for blood tests. Do not understand why you

would need

> to get a tetanus shot.

>

>

>

[Guest guest]

I cannot remember the brands I started with, It might have been Gamma Guard.

I tried several & then found that Bayer's Gamimune works best for me.

I think it partly depend on what your body needs, they do make different

kinds. Different brands are processed differently or have different bases. I

had

migraine headaches I think as an allergic reaction to the base of the first

few ones. But I am glad I stuck through that. It sure has been worth the

initial problems. If you do the drip speed too quickly you can have an allergic

reaction which only happened once for me in 10 yrs. with a irresponsible Nurse.

Once you find the right product, if you start to have a reaction you slow the

drip speed & it stops it. One symptom can be wheezing, that was what happened

with me but it stopped as soon as I slowed the speed down.

I think I started with 3 to 5 grams & did it for a week or two & then slowly

increased it by 5 grams till I got up to 20 grams every week for a long

time. A few yrs ago I increased it to 30 grams a week.

Hope this answers your questions.

Good Luck

[Guest guest]

Lately I have seen people on this list say IVIG is $800, $2500, and $4000 each

time. I suppose this might be due to dosage. Everyone should do as you did and

put the dosage when they quote numbers.

I have subclass deficiency and the doctor said it was easy to get Medicare to

cover it. I did one, but the problem for me is like someone else mentioned;

this doctor is hours away and I can't go all that way every time.

How long did most people feel it took before they noticed an improvement from

the IVIG?

Thanks

Doris

[Guest guest]

What brand is the right brand for you? What dosage did you start

with? Were there any side effects?

I talked to my holistic doc's office today because one of the reasons

I was thinking abuot this again is another patient gets it for the

slow/chronic form of guillan-barre disease. I see that's an offlabel

use but apparently if the doctor writes letters " proving " she needs

it and it's helping, her insurance covers it. However, I have an HMO

here in NY so that would be no good, I really doubt anybody in the

HMO system would do that for me. And this holistic doc is not

covered by my insurance.

I could figure out something though, I'm pretty inventive. For years

I've been interested in the idea as I feel there is some glitch in my

immune system that is too subtle, yet accounts for systemic candida

problems, and then not being able to get rid of lyme in spite of

early treatment with antibiotics. OTOH I don't seem to have a problem

with viruses.

> I get a Home IV Nurse to come in to do my Infusions. It took about

3 months

> to find the right brand that would work for me & to slowly raise

the dosage &

> notice the improvement. But if you start with the right product it

might take

> you less time. But 3 months is a good trial time.

>

>

>

[Guest guest]

Okay - I did it, finally convincing my local wholistic practitioner to agree

to give me IVIG treatment for my IgG3 subclass deficiency!

Now, the challenge will be a) to get my insurance (Blue Cross) to agree to

cover in-office sessions, that my doc has never done it before as far as I

know, c) where he can obtain the Gamimune or whatever the best is, and d) what

safety precautions and contraindications need to be figured into the picture

prior to treatment since this is, after all, a human blodd product, and does

carry some degree of risk not just with the contamination, but allergic response

or sensitivities.

I'm thinking he may need to provide BC with a letter of medical necessity

because, again, I don't know whether they'll cover treatment if they know it's

strictly subclass deficiency, although I did read that someone out there got

their treatment covered as under office visits.

Perhaps those of you who've had more experience than I can give some pointers

so I can avoid the potential pitfalls.

In a message dated 3/17/2004 6:59:44 PM Pacific Standard Time,

C3814@... writes:

In a message dated 3/17/2004 8:54:43 PM Central Standard Time,

dorisbrown9@... writes:

> Lately I have seen people on this list say IVIG is $800, $2500, and $4000

> each time. I suppose this might be due to dosage. Everyone should do as

you

> did and put the dosage when they quote numbers.

>

The price varies so much..............especially during war times.

Carole

[Guest guest]

I would definitely get preapproval from BC. When I took shots of GG they

wouldn't cover them because of a clause in my policy that said they didn't cover

" blood products. " And GG is made from blood. Now I am on Medicare and they

don't seem to have a problem covering it.

Doris

Re: Gamma Globulin

Okay - I did it, finally convincing my local wholistic practitioner to agree o

give me IVIG treatment for my IgG3 subclass deficiency!

Now, the challenge will be a) to get my insurance (Blue Cross) to agree to

cover in-office sessions, that my doc has never done it before as far as I

know, c) where he can obtain the Gamimune or whatever the best is, and d) what

safety precautions and contraindications need to be figured into the picture

prior to treatment since this is, after all, a human blodd product, and does

carry some degree of risk not just with the contamination, but allergic response

or sensitivities.

[Guest guest]

Please keep us posted. I am going to talk to my holistic doc about

this next week as the guillan barre patient gets it and so do the HIV

patients (weekly--keeps them healthy, they are convinced). I also

know of cases, a few anecdotal cases written up as letters to medical

journals, where IVIG was given along with abx in resistant lyme, and

the people got well (just a few).

Anyway, I first have to get a referral via my HMO to an immunologist

in the network and get them to test for all the subclass deficiencies

etc. So how people deal w/ insurance on this, is going to be useful

information. Good luck.

[Guest guest]

Is Gamma Globulin an injection and is it done at a doctors office?

thank you

best,

lea