Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 Thanks Aliza , Good Luck with your appt. Mine is on Tuesday for blood work and a liver scan. Eva XXOO From: taina2044@... Sent: Thursday, March 12, 2009 10:03 PM Subject: [ ] Re:Liver function hi eva don't sweat it girl last year i ended up in the hospital withyellow stools for over two months i'm not recomending this for you but i never went off the gleevec and i drank large amounts of blessed tistle tea and it worked " K " gave me lots of corrage to hang in ther cicci you? no such animal we all freak this is a rollercoaster ride i've had 3 sinus infections one after the other and the pains? let not even go there: but still here kicking the phylie's but so be strong sis don't freak ther's somthing out there that will make u well and you'll be dancing the gleevec rock agin. god bless and speed our healing to all my cml family aliza yaffa rochester n.y. ps i have an appointment with my onc monday keep yasl posted. **************Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Just got home. My AST is even worse than before. I have to stay off the Gleevec .. She did not have the results of my liver scan but she sent me for more blood work...Hepatitis or something she is looking for . She says maybe I have a virus or some kink of bug. She then told me that I should have my brother and sisters tested to see if they are a match for me for transplant. I am totally freaking out now . I just don't know what to think. I go back on April the 1st. I hope I am just overreacting here .If my nerves weren't already shot they are now. Eva From: Armour Sent: Saturday, March 14, 2009 8:03 PM Subject: Re: [ ] Re:Liver function Hi Eva: Will keep you in my prayers for your blood work and scan. Just remember that your liver can bounce back to normal function most of the time. From: Eva <evaob365@...> Subject: Re: [ ] Re:Liver function Date: Saturday, March 14, 2009, 4:26 PM Thanks Aliza , Good Luck with your appt. Mine is on Tuesday for blood work and a liver scan. Eva XXOO From: taina2044aol (DOT) com Sent: Thursday, March 12, 2009 10:03 PM groups (DOT) com Subject: [ ] Re:Liver function hi eva don't sweat it girl last year i ended up in the hospital withyellow stools for over two months i'm not recomending this for you but i never went off the gleevec and i drank large amounts of blessed tistle tea and it worked " K " gave me lots of corrage to hang in ther cicci you? no such animal we all freak this is a rollercoaster ride i've had 3 sinus infections one after the other and the pains? let not even go there: but still here kicking the phylie's but so be strong sis don't freak ther's somthing out there that will make u well and you'll be dancing the gleevec rock agin. god bless and speed our healing to all my cml family aliza yaffa rochester n.y. ps i have an appointment with my onc monday keep yasl posted. ************ **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs. aol.com/gallery/ growing-job- industries? ncid=emlcntuscar e00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Eva, Just out of curiosity, what are your numbers? Lynn F. [ ] Re:Liver function hi eva don't sweat it girl last year i ended up in the hospital withyellow stools for over two months i'm not recomending this for you but i never went off the gleevec and i drank large amounts of blessed tistle tea and it worked " K " gave me lots of corrage to hang in ther cicci you? no such animal we all freak this is a rollercoaster ride i've had 3 sinus infections one after the other and the pains? let not even go there: but still here kicking the phylie's but so be strong sis don't freak ther's somthing out there that will make u well and you'll be dancing the gleevec rock agin. god bless and speed our healing to all my cml family aliza yaffa rochester n.y. ps i have an appointment with my onc monday keep yasl posted. ************ **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs. aol.com/gallery/ growing-job- industries? ncid=emlcntuscar e00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Eva, I don't have any info for you... just wanted to give you a hug! ((((((((((((((((Eva)))))))))))))))))) Tammy _____ From: [mailto: ] On Behalf Of Eva Sent: Tuesday, March 17, 2009 3:27 PM Subject: Re: [ ] Re:Liver function Just got home. My AST is even worse than before. I have to stay off the Gleevec . She did not have the results of my liver scan but she sent me for more blood work...Hepatitis or something she is looking for . She says maybe I have a virus or some kink of bug. She then told me that I should have my brother and sisters tested to see if they are a match for me for transplant. I am totally freaking out now . I just don't know what to think. I go back on April the 1st. I hope I am just overreacting here .If my nerves weren't already shot they are now. Eva From: Armour Sent: Saturday, March 14, 2009 8:03 PM groups (DOT) <mailto:%40> com Subject: Re: [ ] Re:Liver function Hi Eva: Will keep you in my prayers for your blood work and scan. Just remember that your liver can bounce back to normal function most of the time. From: Eva <evaob365hotmail (DOT) <mailto:evaob365%40hotmail.com> com> Subject: Re: [ ] Re:Liver function groups (DOT) <mailto:%40> com Date: Saturday, March 14, 2009, 4:26 PM Thanks Aliza , Good Luck with your appt. Mine is on Tuesday for blood work and a liver scan. Eva XXOO From: taina2044aol (DOT) com Sent: Thursday, March 12, 2009 10:03 PM groups (DOT) com Subject: [ ] Re:Liver function hi eva don't sweat it girl last year i ended up in the hospital withyellow stools for over two months i'm not recomending this for you but i never went off the gleevec and i drank large amounts of blessed tistle tea and it worked " K " gave me lots of corrage to hang in ther cicci you? no such animal we all freak this is a rollercoaster ride i've had 3 sinus infections one after the other and the pains? let not even go there: but still here kicking the phylie's but so be strong sis don't freak ther's somthing out there that will make u well and you'll be dancing the gleevec rock agin. god bless and speed our healing to all my cml family aliza yaffa rochester n.y. ps i have an appointment with my onc monday keep yasl posted. ************ **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs. aol.com/gallery/ growing-job- industries? ncid=emlcntuscar e00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Eva: None of us are alone and we all have doubts. I read where the mighty Marcos even has bad days when he cannot dive or hike Mt. Everest. I certainly do. So never doubt that any of us sometimes feel alone, under appreciated and misunderstood, because at some time or another, we all do. And we all have those doubts about our numbers, our side effects and or quality of life. And as much as we try to forget that we have CML, there are so many ways we are reminded each day and there is that lingering " what if " that we constantly hear in the back of our mind or sometimes from others. I have found that there are friends that I can go to and they will lift me up. Sometimes through the Internet and sometimes in person and all you have to do is reach out to them and they will be there for you. So try to find a couple of people that want to be there for you when you have those down days and try and allow yourself to let them lift you up. You will be amazed at the number of people that will help, I know I was. Until that time, just know we are thinking and praying for you. With the warmest regards, Matt CML of Florida Dx January of 2005 Gleevec March of 2005 Tasigna November of 2007 Number 1078 in the Esteemed Zavie In a message dated 3/17/2009 8:19:59 P.M. Eastern Daylight Time, onthewtr@... writes: Eva, U are not alone. We are all here for you. You just keep thinking good thoughts. I know exactly how you feel. I have been there. But after a few tests the results went back to normal. Let's hope that is your case too. You keep safe and warm and keep your dogs close. I know my dog is a huge comfort to me when I am down. Keep us posted. Aloha Sharon _____ From: _@..._ (mailto: ) [mailto:_@..._ (mailto: ) ] On Behalf Of Eva Sent: Tuesday, March 17, 2009 3:00 PM _@..._ (mailto: ) Subject: Re: [ ] Re:Liver function Tammy thank you so much for your wonderful hug made me cry but I am alone and it made me feel safer. My husband had to leave on a trip to the states . Just me and the dogs. Eva XXOO From: Tammy Ferns Sent: Tuesday, March 17, 2009 4:15 PM groups (DOT) <mailto:%mailto:%<Wmai> com Subject: RE: [ ] Re:Liver function Eva, I don't have any info for you... just wanted to give you a hug! ((((((((((((((((((((((((((((((((((((( Tammy _____ From: groups (DOT) <mailto:%mailto:%<Wmai> com [mailto:@[mailto:@<WBR<mailto:%mailto:%<Wmai> com] On Behalf Of Eva Sent: Tuesday, March 17, 2009 3:27 PM groups (DOT) <mailto:%mailto:%<Wmai> com Subject: Re: [ ] Re:Liver function Just got home. My AST is even worse than before. I have to stay off the Gleevec . She did not have the results of my liver scan but she sent me for more blood work...Hepatitis or something she is looking for . She says maybe I have a virus or some kink of bug. She then told me that I should have my brother and sisters tested to see if they are a match for me for transplant. I am totally freaking out now . I just don't know what to think. I go back on April the 1st. I hope I am just overreacting here .If my nerves weren't already shot they are now. Eva From: Armour Sent: Saturday, March 14, 2009 8:03 PM groups (DOT) <mailto:%mailto:%<Wmai> com Subject: Re: [ ] Re:Liver function Hi Eva: Will keep you in my prayers for your blood work and scan. Just remember that your liver can bounce back to normal function most of the time. From: Eva <evaob365hotmail (DOT) <mailto:evaob365%mailto:evamai> com> Subject: Re: [ ] Re:Liver function groups (DOT) <mailto:%mailto:%<Wmai> com Date: Saturday, March 14, 2009, 4:26 PM Thanks Aliza , Good Luck with your appt. Mine is on Tuesday for blood work and a liver scan. Eva XXOO From: taina2044aol (DOT) com Sent: Thursday, March 12, 2009 10:03 PM groups (DOT) com Subject: [ ] Re:Liver function hi eva don't sweat it girl last year i ended up in the hospital withyellow stools for over two months i'm not recomending this for you but i never went off the gleevec and i drank large amounts of blessed tistle tea and it worked " K " gave me lots of corrage to hang in ther cicci you? no such animal we all freak this is a rollercoaster ride i've had 3 sinus infections one after the other and the pains? let not even go there: but still here kicking the phylie's but so be strong sis don't freak ther's somthing out there that will make u well and you'll be dancing the gleevec rock agin. god bless and speed our healing to all my cml family aliza yaffa rochester n.y. ps i have an appointment with my onc monday keep yasl posted. ************ **Worried about job security? Check out the 5 safest jobs in a recession. (_http://jobs._ (http://jobs./) aol.com/gallery/ growing-job- industries? ncid=emlcntuscar e00000002) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] Zero Club **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1219850974x1201371016/aol?redir=http:%2\ F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DMarchfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Thanks for asking , I was so very upset I did not even ask. All she said was they were higher than the last time and my AST was I think 584 then That was last week .I have lost 2 pds. and I should speak to my siblings just in case!! Eva From: franklin Sent: Tuesday, March 17, 2009 4:11 PM Subject: Re: [ ] Re:Liver function Eva, Just out of curiosity, what are your numbers? Lynn F. [ ] Re:Liver function hi eva don't sweat it girl last year i ended up in the hospital withyellow stools for over two months i'm not recomending this for you but i never went off the gleevec and i drank large amounts of blessed tistle tea and it worked " K " gave me lots of corrage to hang in ther cicci you? no such animal we all freak this is a rollercoaster ride i've had 3 sinus infections one after the other and the pains? let not even go there: but still here kicking the phylie's but so be strong sis don't freak ther's somthing out there that will make u well and you'll be dancing the gleevec rock agin. god bless and speed our healing to all my cml family aliza yaffa rochester n.y. ps i have an appointment with my onc monday keep yasl posted. ************ **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs. aol.com/gallery/ growing-job- industries? ncid=emlcntuscar e00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Tammy thank you so much for your wonderful hug made me cry but I am alone and it made me feel safer. My husband had to leave on a trip to the states . Just me and the dogs. Eva XXOO From: Tammy Ferns Sent: Tuesday, March 17, 2009 4:15 PM Subject: RE: [ ] Re:Liver function Eva, I don't have any info for you... just wanted to give you a hug! ((((((((((((((((Eva)))))))))))))))))) Tammy _____ From: [mailto: ] On Behalf Of Eva Sent: Tuesday, March 17, 2009 3:27 PM Subject: Re: [ ] Re:Liver function Just got home. My AST is even worse than before. I have to stay off the Gleevec . She did not have the results of my liver scan but she sent me for more blood work...Hepatitis or something she is looking for . She says maybe I have a virus or some kink of bug. She then told me that I should have my brother and sisters tested to see if they are a match for me for transplant. I am totally freaking out now . I just don't know what to think. I go back on April the 1st. I hope I am just overreacting here .If my nerves weren't already shot they are now. Eva From: Armour Sent: Saturday, March 14, 2009 8:03 PM groups (DOT) <mailto:%40> com Subject: Re: [ ] Re:Liver function Hi Eva: Will keep you in my prayers for your blood work and scan. Just remember that your liver can bounce back to normal function most of the time. From: Eva <evaob365hotmail (DOT) <mailto:evaob365%40hotmail.com> com> Subject: Re: [ ] Re:Liver function groups (DOT) <mailto:%40> com Date: Saturday, March 14, 2009, 4:26 PM Thanks Aliza , Good Luck with your appt. Mine is on Tuesday for blood work and a liver scan. Eva XXOO From: taina2044aol (DOT) com Sent: Thursday, March 12, 2009 10:03 PM groups (DOT) com Subject: [ ] Re:Liver function hi eva don't sweat it girl last year i ended up in the hospital withyellow stools for over two months i'm not recomending this for you but i never went off the gleevec and i drank large amounts of blessed tistle tea and it worked " K " gave me lots of corrage to hang in ther cicci you? no such animal we all freak this is a rollercoaster ride i've had 3 sinus infections one after the other and the pains? let not even go there: but still here kicking the phylie's but so be strong sis don't freak ther's somthing out there that will make u well and you'll be dancing the gleevec rock agin. god bless and speed our healing to all my cml family aliza yaffa rochester n.y. ps i have an appointment with my onc monday keep yasl posted. ************ **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs. aol.com/gallery/ growing-job- industries? ncid=emlcntuscar e00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Eva, U are not alone. We are all here for you. You just keep thinking good thoughts. I know exactly how you feel. I have been there. But after a few tests the results went back to normal. Let's hope that is your case too. You keep safe and warm and keep your dogs close. I know my dog is a huge comfort to me when I am down. Keep us posted. Aloha Sharon _____ From: [mailto: ] On Behalf Of Eva Sent: Tuesday, March 17, 2009 3:00 PM Subject: Re: [ ] Re:Liver function Tammy thank you so much for your wonderful hug made me cry but I am alone and it made me feel safer. My husband had to leave on a trip to the states . Just me and the dogs. Eva XXOO From: Tammy Ferns Sent: Tuesday, March 17, 2009 4:15 PM groups (DOT) <mailto:%40> com Subject: RE: [ ] Re:Liver function Eva, I don't have any info for you... just wanted to give you a hug! ((((((((((((((((Eva)))))))))))))))))) Tammy _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Eva Sent: Tuesday, March 17, 2009 3:27 PM groups (DOT) <mailto:%40> com Subject: Re: [ ] Re:Liver function Just got home. My AST is even worse than before. I have to stay off the Gleevec . She did not have the results of my liver scan but she sent me for more blood work...Hepatitis or something she is looking for . She says maybe I have a virus or some kink of bug. She then told me that I should have my brother and sisters tested to see if they are a match for me for transplant. I am totally freaking out now . I just don't know what to think. I go back on April the 1st. I hope I am just overreacting here .If my nerves weren't already shot they are now. Eva From: Armour Sent: Saturday, March 14, 2009 8:03 PM groups (DOT) <mailto:%40> com Subject: Re: [ ] Re:Liver function Hi Eva: Will keep you in my prayers for your blood work and scan. Just remember that your liver can bounce back to normal function most of the time. From: Eva <evaob365hotmail (DOT) <mailto:evaob365%40hotmail.com> com> Subject: Re: [ ] Re:Liver function groups (DOT) <mailto:%40> com Date: Saturday, March 14, 2009, 4:26 PM Thanks Aliza , Good Luck with your appt. Mine is on Tuesday for blood work and a liver scan. Eva XXOO From: taina2044aol (DOT) com Sent: Thursday, March 12, 2009 10:03 PM groups (DOT) com Subject: [ ] Re:Liver function hi eva don't sweat it girl last year i ended up in the hospital withyellow stools for over two months i'm not recomending this for you but i never went off the gleevec and i drank large amounts of blessed tistle tea and it worked " K " gave me lots of corrage to hang in ther cicci you? no such animal we all freak this is a rollercoaster ride i've had 3 sinus infections one after the other and the pains? let not even go there: but still here kicking the phylie's but so be strong sis don't freak ther's somthing out there that will make u well and you'll be dancing the gleevec rock agin. god bless and speed our healing to all my cml family aliza yaffa rochester n.y. ps i have an appointment with my onc monday keep yasl posted. ************ **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs. aol.com/gallery/ growing-job- industries? ncid=emlcntuscar e00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Eva, I ask because I went through the same thing. Mine hit 2000. The numbers will keep going up even if you are off the gleevec, for awhile. If it is the drug, you do have a drug induced hepatitis. I was put through every test there is and the conclusion was the gleevec. I was off it about 8 weeks. This was over 5 years ago and I did not have to have a transplant. I did have to be on prednisone along with the gleevec for awhile and I would do it again. I would not switch to another drug yet because you want to save it for when you have a really bad situation! Actually, your doc should have you on a small amount of prednisone right now. I t would help bring the numbers down. You will be fine ..Don't panic! Lynn F. [ ] Re:Liver function hi eva don't sweat it girl last year i ended up in the hospital withyellow stools for over two months i'm not recomending this for you but i never went off the gleevec and i drank large amounts of blessed tistle tea and it worked " K " gave me lots of corrage to hang in ther cicci you? no such animal we all freak this is a rollercoaster ride i've had 3 sinus infections one after the other and the pains? let not even go there: but still here kicking the phylie's but so be strong sis don't freak ther's somthing out there that will make u well and you'll be dancing the gleevec rock agin. god bless and speed our healing to all my cml family aliza yaffa rochester n.y. ps i have an appointment with my onc monday keep yasl posted. ************ **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs. aol.com/gallery/ growing-job- industries? ncid=emlcntuscar e00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 There are other drugs,why has the doc not spoke of them . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 She told me that the other drugs available are harder on the liver than Gleevec so there would be no reason to try them. That was not what I was led to believe from everything I have researched. I will know more on Apr. 1st.Thanks for your input. Eva XXOO From: Shipley Sent: Wednesday, March 18, 2009 11:11 PM Subject: Re: [ ] Re:Liver function There are other drugs,why has the doc not spoke of them . Quote Link to comment Share on other sites More sharing options...
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