Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Hi folks, I'm off to Ann Arbor today with my daughter Colleen. My appointment with Dr. Talpaz is not until tomorrow, but we are meeting Len and Ernie for dinner tonight. I hope this visit is to set up the Ariad trial in the near future, I have been on vacation from meds since the first week of Feb. Will keep you posted , and Barb, good on 'ya for being a spokesperson for all the cmlers! Blessings, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 Hi Bobby, I will be praying for you to get started in the new trial. Hope you had a safe trip and say HI to Len and Ernie for me. God Bless, Jackie S. From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Ann Arbor " " < > Date: Thursday, March 19, 2009, 9:11 AM Hi folks, I'm off to Ann Arbor today with my daughter Colleen. My appointment with Dr. Talpaz is not until tomorrow, but we are meeting Len and Ernie for dinner tonight. I hope this visit is to set up the Ariad trial in the near future, I have been on vacation from meds since the first week of Feb. Will keep you posted , and Barb, good on 'ya for being a spokesperson for all the cmlers! Blessings, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 You go girl! On Wed, May 13, 2009 at 2:22 PM, rcd1929@... <rmcd1929@...>wrote: > > > Hi every one, I'm back from 3 days at Ann Arbor, it sure is tedious siting > around a hospital for 9 hours waiting to get a blood draw every 2 hrs. with > an ekg!! Not really complaining, I had a great time with Len Paschal, we > went to the mall and each got an electric cart, and watch out everyone, here > come two old gals in a hurry to shop!! > Labs were great: wbc - 3.8; hgb - 9.4; hem - 28.6; plt - 190; basil % - .5; > abs. basil count - .0 > also had cholesterol done: chol - 125; trig - 203 - hdl 42, ldl - 43. > The nurse said if I exercised the trig. would go down, now that sounds real > painful!!! But I have been on Crestor since last May when I started the XL > trial, and chol. was 270 something, so I'm doing better. > what does this mean? >190 mg/dl very high? and how do I get it low? > > I have no serious side effects. I am exhausted by bedtime, with doing > nothing to speak of, but sleep like a baby. I have some aches and pains, but > as I said before, this could just be the old arthritis kicking up, or 79 > years of real good living!! > Anyway, so far, I like this drug. Can't wait to get the results from the > last bma/bmb and the comparison with the first one, will keep you posted. > Blessings to everyone, love, Bobby > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 I couldn't have put it any better! From: scrappygirl123@... Date: Wed, 13 May 2009 16:25:47 -0700 Subject: Re: [ ] Ann Arbor You go girl! On Wed, May 13, 2009 at 2:22 PM, rcd1929@... <rmcd1929@...>wrote: > > > Hi every one, I'm back from 3 days at Ann Arbor, it sure is tedious siting > around a hospital for 9 hours waiting to get a blood draw every 2 hrs. with > an ekg!! Not really complaining, I had a great time with Len Paschal, we > went to the mall and each got an electric cart, and watch out everyone, here > come two old gals in a hurry to shop!! > Labs were great: wbc - 3.8; hgb - 9.4; hem - 28.6; plt - 190; basil % - .5; > abs. basil count - .0 > also had cholesterol done: chol - 125; trig - 203 - hdl 42, ldl - 43. > The nurse said if I exercised the trig. would go down, now that sounds real > painful!!! But I have been on Crestor since last May when I started the XL > trial, and chol. was 270 something, so I'm doing better. > what does this mean? >190 mg/dl very high? and how do I get it low? > > I have no serious side effects. I am exhausted by bedtime, with doing > nothing to speak of, but sleep like a baby. I have some aches and pains, but > as I said before, this could just be the old arthritis kicking up, or 79 > years of real good living!! > Anyway, so far, I like this drug. Can't wait to get the results from the > last bma/bmb and the comparison with the first one, will keep you posted. > Blessings to everyone, love, Bobby > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 Hoping for continued success- you go Girl!!! From: rcd1929@... <rmcd1929@...> Subject: [ ] Ann Arbor Date: Wednesday, May 13, 2009, 2:22 PM Hi every one, I'm back from 3 days at Ann Arbor, it sure is tedious siting around a hospital for 9 hours waiting to get a blood draw every 2 hrs. with an ekg!! Not really complaining, I had a great time with Len Paschal, we went to the mall and each got an electric cart, and watch out everyone, here come two old gals in a hurry to shop!! Labs were great: wbc - 3.8; hgb - 9.4; hem - 28.6; plt - 190; basil % - .5; abs. basil count - .0 also had cholesterol done: chol - 125; trig - 203 - hdl 42, ldl - 43. The nurse said if I exercised the trig. would go down, now that sounds real painful!!! But I have been on Crestor since last May when I started the XL trial, and chol. was 270 something, so I'm doing better. what does this mean? >190 mg/dl very high? and how do I get it low? I have no serious side effects. I am exhausted by bedtime, with doing nothing to speak of, but sleep like a baby. I have some aches and pains, but as I said before, this could just be the old arthritis kicking up, or 79 years of real good living!! Anyway, so far, I like this drug. Can't wait to get the results from the last bma/bmb and the comparison with the first one, will keep you posted. Blessings to everyone, love, Bobby Quote Link to comment Share on other sites More sharing options...
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