Sleep Apnea

[Guest guest]

I just had a sleep study done, and I did not have sleep apnea. They

actually said it went well. I havent had the follow up apt with the

sleep Dr. to discuss it. My sleep is horrible though. I feel as

though I'm ready to pass out the moment I close my eyes, and I'm

talking during the daytime. My T levels are low at around 300, so

I'm sure this might be a factor. I'm sure if I slept better I would

feel better. Thanks for the post.. I'll have to keep that in mind.

> This is to Don Bradley. What ever you do get a sleep study done.

> I've been

> on HRT for 10+ years and have never felt real perky. My T range is

> always

> around 600 so I should be close to OK. I'm short and over weight

and

> snore.

> They put me on a cpap machine since by blood oxygen went down to

> 65%.

> My wife always complained but didn't thing I stopped breathing.

> Wrong.

>

> I've been on cpap for 2+ weeks and I have to say things are much

> better. I

> have more sensation during sex and think about it more often. I

> don't fall

> asleep while driving And I seem to be more motivated. It's funny

> the first

> week or so you feel like your drugged because your brain is getting

> used to

> the extra oxygen. then the improvements start. The Dr. said it

takes

> a full

> month to get back to normal.

>

> I was told that this can be a side affect of HRT and needs to be

> monitored in

> all HRT men. Just part of the puzzle.

>

> Good luck.

>

>

[Guest guest]

Vicky,

I was just skimming the posts and saw your questions about sleep apnea. My

son, who is 2 years old had severe sleep apnea. To be tested for it you see

a sleep specialist (we have a great one here) and they did a 24 hour sleep

study. My son was found to be having 24 episodes of apnea per hour. They

thought his adenoids and tonsils may be the cause --- he was snoring and

waking himself up partially -- never getting a good nights sleep. Always

tired and somewhat lethargic during the day (I think an extreme example

because his apnea was so bad). The ENT thought his tonsils and adenoids

were a little enlarged and was hopeful removing them would do the trick

(always the first step of treatment -- they can do some stuff to the palate

but it's major major surgery and not always effective). We had his surgery

scheduled and the week before he came down with a virus or infection --- his

apnea got so bad he was literally gasping for air while sleeping. He ended

up in the hospital and his oxygen levels were falling to 50-60% while

sleeping (normal while sleeping is around the 90% range). They made him

stay in until his scheduled T & A.

Now, he is like a totally new child! He is babbling more (still no words

except " yeah " ), is more energetic, is putting on weight (he was so frail

after his surgery particularly --- he was little to begin with) and making

progress in all areas. He sleeps so soundly and quietly we had to keep

checking on him at first. They told us if he hadn't had his T & A done that

within 1-2 years he would have had heart failure because of the apnea.

Sooo...if your child possibly has apnea it is definitely important to check

it out...it can have long term serious effects on their heart!

I hope this helps! Feel free to e-mail me directly if you have any

questions.

Warmest regards,

[Guest guest]

Dear Anne,

I guess I do need to call the supplier and see about another mask. It’s

hard to explain what bother’s me. I think part of it is just anxiety and

having asthma; it seems to bother my breathing at first. I also think maybe

it is set too low at first (at level 4) and maybe I would do better started

off at 6. The mask isn’t that comfortable, but I don’t’ know what to base

comfortable on either. I’ve heard they aren’t comfortable, so it’s hard to

know what to expect. I just know I seem to take it off the minute I wake up

and I’m lucky to fall asleep and stay asleep for 2 hours.

I did speak to the doctor about the mask bothering me and she said I haven’t

given it long enough. She also said the full facial mask is harder to

tolerate. I’m probably overreacting and just not giving it enough time. I’

ve not even had the machine a week yet, so I’m sure it takes time. I know

everyone says how much better they feel sleeping with the machine, but since

the longest I’ve been able to keep it on is 2 hours it’s hard to tell.

I’ll keep trying, and even though I get frustrated I’m not giving up yet.

If this is causing my congestive heart failure symptoms to return, I don’t

have a choice on using it. It seems strange to think how your sleep could

cause your legs to swell, but I guess there are stranger things concerning

the body.

I see my family doctor this afternoon, so maybe he’ll have some suggestions

as well. Thanks for writing me Anne, and hopefully every day it will get

better. Sincerely, Fran

----Original Message-----

From: Anne Mills [mailto:annemills@...]

Sent: Monday, May 24, 2004 3:24 AM

psoriatic arthritis

Subject: [ ] Sleep Apnea

Sorry to be so slow on this subject but was on vacation. Fran, you didn't

say what was bothering you about the cpap machine. Sometimes the problem is

the mask, not the machine and there are lots of options for masks. I have

been using a cpap for almost 2 years and I thought it would be a problem but

had no problem at all. Be sure to check with the place you got the machine

from and try different masks. A friend of mine went through 6 masks until

she found the one she could tolerate. Good luck, it has really made a

difference in my sleepiness. I used to fall asleep all the time and now can

make it through a whole day without a nap, sometimes anyway.

Cheers Anne

Please visit our Psoriatic Arthritis Group's informational web page at:

http://www.wpunj.edu/pa/ -- created and edited by list member

aka(raharris@...).

Also,in August 2001,list member Jack aka Cornishpro@... began

to conduct extensive research which he publishes as the " Psoriatic Arthritis

Research Newsletter " , monthly in our email and digest format. Many thanks to

Jack. Back issues of the newsletter are stored on our PA webpage as well as

the archives of the list.

Don't forget that the list archives comprise a tremendous amount of

information (Over three years of messages and answers).Feel free to browse

them at your convenience.

LET'S HEAR FROM SOME OF YOU LURKERS out there! If you have a comment or

question, chances are there is a person who has been around a while who can

help you out with AT LEAST an educated guess for an answer! If not,we can

steer you in the right direction with a good website to go to,

Blessings and Peace,

Atwood-Stack, Founder

Alan , Web & List Editor

Jack , Newsletter Editor

Pat Bias, List Editor

Ron Dotson, List Editor

Orin, List Editor

, List Editor

and any others who help in any way (thank you!)

[Guest guest]

I suffer from insomnia big time and have for years, decades even, and

it just gets worse. I want to get into a sleep study or approach my

doctor about sleep apenea. The last time I mentioned it he said " You

are not over weight and so you should not have sleep apenia. " (This

was my GP.)(When I complained of insomnia and how it affected my

ability to function, my other GP said, " Don't get into that mode "

Are there other causes of sleep apenia? I thought it was the pain

which kept me awake, but with the enbrel, mtx and regular motrin my

pain is down to about a 3 on a scale of 10. So, I think something

else is wrong. I hate the thought of having other issues that don't

revolve around my p and pa, I think " isn't that enough? " I pushed

so hard to get enbrel and don't want to be a whiner...but I also

think I'm tired of putting up with anything that I don't have to put

up with anymore. My rhuemy is great and I'm tempted to ask him on my

next visit.

Does anyone else chicken out on asking for help with other problems

because the PA is such a huge one? I don't want to get

labled " druggie " or " hypochondriac " or even " chronic whiner " . That

is why I don't ask for pain meds or sleeping pills. Even though I

had some ambien when I was waiting for the enbrel to work, it was

great and I slept all night with the motrin.

The reason I think it might be sleep apenea is that, as I am falling

asleep, I seem to need lots of fresh air with nothing impeding like

pillows or blankets or even the position of my neck. I also wake up

alot, the only thing that doesn't seem like apenea, is that when I

wake up, it's very hard for me to fall back to sleep.

Oh my this post is long, my apologies.

Lori

> Sorry to be so slow on this subject but was on vacation. Fran, you

didn't

> say what was bothering you about the cpap machine. Sometimes the

problem is

> the mask, not the machine and there are lots of options for masks.

I have

> been using a cpap for almost 2 years and I thought it would be a

problem but

> had no problem at all. Be sure to check with the place you got the

machine

> from and try different masks. A friend of mine went through 6

masks until

> she found the one she could tolerate. Good luck, it has really

made a

> difference in my sleepiness. I used to fall asleep all the time

and now can

> make it through a whole day without a nap, sometimes anyway.

> Cheers Anne

[Guest guest]

Fran

My husband had a hard time at first with his machine.

At first he couldn't keep it on for more than a half hour at a time. It

would dry his nose out too, which just made it all that more irritating.

But he kept at it and could tolerate it a bit more each night, until he was

completely used to it.

I think it took him a few weeks before he reached that point.

Good luck with it :-)

[Guest guest]

Fran, as I noted in my PM to you that the full face mask is what

works for me because I breathe through my mouth so the nasal mask or

pillows wouldn't work. Ask someone to check to see if you are

breathing through your mouth when you sleep. I couldn't tolerate

the nasal mask the first time I had one and no one told me about

having a choice so that is when I did give up. Now that I know

there are different types of masks, the hardest part is

trying to find the mask that fits you.

Good luck

Dick

> Dear Anne,

>

> I guess I do need to call the supplier and see about another

mask. It's

> hard to explain what bother's me. I think part of it is just

anxiety and

> having asthma; it seems to bother my breathing at first. I also

think maybe

> it is set too low at first (at level 4) and maybe I would do

better started

> off at 6. The mask isn't that comfortable, but I don't' know what

to base

> comfortable on either. I've heard they aren't comfortable, so

it's hard to

> know what to expect. I just know I seem to take it off the minute

I wake up

> and I'm lucky to fall asleep and stay asleep for 2 hours.

>

> I did speak to the doctor about the mask bothering me and she said

I haven't

> given it long enough. She also said the full facial mask is

harder to

> tolerate. I'm probably overreacting and just not giving it enough

time. I'

> ve not even had the machine a week yet, so I'm sure it takes

time. I know

> everyone says how much better they feel sleeping with the machine,

but since

> the longest I've been able to keep it on is 2 hours it's hard to

tell.

>

> I'll keep trying, and even though I get frustrated I'm not giving

up yet.

> If this is causing my congestive heart failure symptoms to return,

I don't

> have a choice on using it. It seems strange to think how your

sleep could

> cause your legs to swell, but I guess there are stranger things

concerning

> the body.

>

> I see my family doctor this afternoon, so maybe he'll have some

suggestions

> as well. Thanks for writing me Anne, and hopefully every day it

will get

> better. Sincerely, Fran

[Guest guest]

My husband has sleep apnea. In our experience, the biggest

indicator is that he would stop breathing. He is (was) a big time

snoring monster! He would snore, snore, snore, then all of a

sudden...nothing. After what seemed like an eternity, he would wake

up gasping for air. He has a very, very extreme case. Before he

was diagnosed, he could fall asleep at the drop of a hat. Driving

(very scary), sitting in a chair, in the middle of the day. He did

not in any way shape or form have insomnia.

As for your doctor's comment about not being overweight...my husband

is 6'4 " and 210lbs. He is by no stretch of the imagination

overweight. While a lot of overweight people do suffer from sleep

apnea, they are not the only ones.

If you have a significant other, has that person noticed that you

are not breathing during sleep?

I hope you find a physician that can help you.

Barb

> I suffer from insomnia big time and have for years, decades even,

and

> it just gets worse. I want to get into a sleep study or approach

my

> doctor about sleep apenea. The last time I mentioned it he

said " You

> are not over weight and so you should not have sleep apenia. "

(This

> was my GP.)(When I complained of insomnia and how it affected my

> ability to function, my other GP said, " Don't get into that mode "

>

> Are there other causes of sleep apenia? I thought it was the

pain

> which kept me awake, but with the enbrel, mtx and regular motrin

my

> pain is down to about a 3 on a scale of 10. So, I think something

> else is wrong. I hate the thought of having other issues that

don't

> revolve around my p and pa, I think " isn't that enough? " I

pushed

> so hard to get enbrel and don't want to be a whiner...but I also

> think I'm tired of putting up with anything that I don't have to

put

> up with anymore. My rhuemy is great and I'm tempted to ask him on

my

> next visit.

>

> Does anyone else chicken out on asking for help with other

problems

> because the PA is such a huge one? I don't want to get

> labled " druggie " or " hypochondriac " or even " chronic whiner " .

That

> is why I don't ask for pain meds or sleeping pills. Even though I

> had some ambien when I was waiting for the enbrel to work, it was

> great and I slept all night with the motrin.

>

> The reason I think it might be sleep apenea is that, as I am

falling

> asleep, I seem to need lots of fresh air with nothing impeding

like

> pillows or blankets or even the position of my neck. I also wake

up

> alot, the only thing that doesn't seem like apenea, is that when I

> wake up, it's very hard for me to fall back to sleep.

>

> Oh my this post is long, my apologies.

>

> Lori

[Guest guest]

[ ] sleep apnea

> Now if I do have apnea the thought of wearing the

> mask I think would make me very anxious as well.

Well, I haven't read all of the posts because I've been so swamped lately, but

just to reassure you, some people have no problem adjusting to the mask. I used

to have severe sleep apnea (since I lost weight I no longer have it) and when I

started wearing the mask it only took me a week to get used to it. It didn't

bother me much at all. My mom also has sleep apnea and had the same experience

-- she took to wearing the mask without any problem at all. It's not all bad,

and believe me, if you have OSA then once you get used to the mask you will

thank your lucky stars that there is such a thing as a CPAP, because finally

getting proper rest is a wonderful thing!

[Guest guest]

-Hi Lori,

I am right where you are with the sleep problems. I also have been

diagnosed with fibro and sometimes wake up at night gasping for air.

My internist was very open to my being tested for sleep apnea...or

other sleep disorders...such as lack of stage 4 sleep. There is a

large subset of people with fibro who have sleep disorders.

Unfortunately, the sleep specialist refused to put me in the lab

saying insomnia was hard to get a reading on and referring me to a

psychologist....whom I never saw.

My docs get mad at me if I ask for too much so I seem to ask until

their limit and them back off awhile. I can sure understand your

reluctance to speak up....that is if your docs are like mine. I

guess there are wonderful docs out there who are pretty open.

has some good advise for us in her precious post!

Take Care,

Marti

- In , " cornth1313 "

<cornth1313@a...> wrote:

> I suffer from insomnia big time and have for years, decades even,

and

> it just gets worse. I want to get into a sleep study or approach

my

> doctor about sleep apenea. The last time I mentioned it he

said " You

> are not over weight and so you should not have sleep apenia. " (This

> was my GP.)(When I complained of insomnia and how it affected my

> ability to function, my other GP said, " Don't get into that mode "

>

> Are there other causes of sleep apenia? I thought it was the pain

> which kept me awake, but with the enbrel, mtx and regular motrin my

> pain is down to about a 3 on a scale of 10. So, I think something

> else is wrong. I hate the thought of having other issues that

don't

> revolve around my p and pa, I think " isn't that enough? " I pushed

> so hard to get enbrel and don't want to be a whiner...but I also

> think I'm tired of putting up with anything that I don't have to

put

> up with anymore. My rhuemy is great and I'm tempted to ask him on

my

> next visit.

>

> Does anyone else chicken out on asking for help with other problems

> because the PA is such a huge one? I don't want to get

> labled " druggie " or " hypochondriac " or even " chronic whiner " . That

> is why I don't ask for pain meds or sleeping pills. Even though I

> had some ambien when I was waiting for the enbrel to work, it was

> great and I slept all night with the motrin.

>

> The reason I think it might be sleep apenea is that, as I am

falling

> asleep, I seem to need lots of fresh air with nothing impeding like

> pillows or blankets or even the position of my neck. I also wake

up

> alot, the only thing that doesn't seem like apenea, is that when I

> wake up, it's very hard for me to fall back to sleep.

>

> Oh my this post is long, my apologies.

>

> Lori

[Guest guest]

Dear Dick,

So far my husband said I sleep with my mouth closed, but I know he doesn’t

watch me all night either. I have noticed that my TMJ aches more now with

the sleep machine, which makes me wonder if I am breathing through my mouth.

My tech dropped off another mask today and I’m hoping it will be easier to

use. It doesn’t cover my mouth, but does cover more of my face. If it

doesn’t work, I’ll keep trying. If sleep apnea is causing my congestive

heart failure, like the doctors think, then I simply have to find the best

way to make this work. I sure appreciate all the support and help from

everyone. It means so much and I’m amazed at how many people have this same

problem. I wonder if it’s somehow related to arthritis or all the pain that

goes with it. Take care and thanks again, Fran

[ ] Re: Sleep Apnea

Fran, as I noted in my PM to you that the full face mask is what

works for me because I breathe through my mouth so the nasal mask or

pillows wouldn't work. Ask someone to check to see if you are

breathing through your mouth when you sleep. I couldn't tolerate

the nasal mask the first time I had one and no one told me about

having a choice so that is when I did give up. Now that I know

there are different types of masks, the hardest part is

trying to find the mask that fits you.

Good luck

Dick

[Guest guest]

Dear Janet,

I know what you mean. I had managed to work myself up completely by the

time my sleep study was due. I went in there on the verge of tears and

looking back it seems silly now. I had the most understanding, calming tech

to help me through every stage of the study. It was great and so was he. I

asked him at the end if he could come home with me and take care of me all

the time.

He and my husband thought I was kidding, but I did have moments when I

thought I could sure get used to this kind of service. Lol. My sleep lab

was very luxurious and I felt like I was in a hotel room more than a

hospital room. I had my own bathroom and they only had a camera watching

me, not a two-way mirror like I had imagined. The hardest part of the study

was the straps that go around you to measure your breathing. You feel sort

of confined and that gets a little overwhelming, but it still wasn’t too

bad. I was sure I wouldn’t sleep, but I did. I even managed to get the

whole thing done in one night, so I didn’t have to go back for the 2nd

night.

The sleep mask is a little rougher to get used too. I had moments of panic

the first few days and would rip the mask off and throw it across the

bed…lol. Most of the time I did it without even knowing it. Each day has

gotten easier, and my tech just dropped off another mask today for me to

try. So there are several to choose from. Since my sleep apnea is causing

my congestive heart failure, I have to make this work. Right now I’d do

about anything to get rid of all the edema in my legs, ankles and face. I’m

trying to look at this at something that maybe I can get fixed. So many of

my other problems seem to have no answer or I react badly to all the

medication. This gives me hope that maybe it will help me over all and my

pain levels as well.

I hope you enjoyed your visit to Florida and decided to move here for good.

The weather wasn’t too bad, but it is hot. Write me if you have any

questions and I’ll do my best to answer them for you. I’m not an expert,

but I can at least tell you what happened to me. Love, Fran

[ ] sleep apnea

Just got back from a trip to Florida and saw some postings on sleep

apnea. All this talk about the mask is scaring me. I am having an

overnight study on Thursday night and that scares me in itself

because it seems weird to have to go to sleep with some stranger

staring at you. Now if I do have apnea the thought of wearing the

mask I think would make me very anxious as well.

Janet

[Guest guest]

Dear Lori,

I forgot to mention that pain can cause a sleep disorder. I don’t think it

causes sleep apnea, but they did tell me I woke up several times from pain.

So that does show up in the sleep study as well. They just called it a pain

disorder, plus I also have a restless leg syndrome where I move my legs all

night long. So all sorts of things can mess up your sleep. Sorry that’s

not better news. Take care, Fran

PS I have to go over the results with my pain management specialist to see

if he can come up with something to help the sleep problem. So there is

always hope.

[ ] Re: Sleep Apnea

I suffer from insomnia big time and have for years, decades even, and

it just gets worse. I want to get into a sleep study or approach my

doctor about sleep apenea. The last time I mentioned it he said " You

are not over weight and so you should not have sleep apenia. " (This

was my GP.)(When I complained of insomnia and how it affected my

ability to function, my other GP said, " Don't get into that mode "

Are there other causes of sleep apenia? I thought it was the pain

which kept me awake, but with the enbrel, mtx and regular motrin my

pain is down to about a 3 on a scale of 10. So, I think something

else is wrong. I hate the thought of having other issues that don't

revolve around my p and pa, I think " isn't that enough? " I pushed

so hard to get enbrel and don't want to be a whiner...but I also

think I'm tired of putting up with anything that I don't have to put

up with anymore. My rhuemy is great and I'm tempted to ask him on my

next visit.

Does anyone else chicken out on asking for help with other problems

because the PA is such a huge one? I don't want to get

labled " druggie " or " hypochondriac " or even " chronic whiner " . That

is why I don't ask for pain meds or sleeping pills. Even though I

had some ambien when I was waiting for the enbrel to work, it was

great and I slept all night with the motrin.

The reason I think it might be sleep apenea is that, as I am falling

asleep, I seem to need lots of fresh air with nothing impeding like

pillows or blankets or even the position of my neck. I also wake up

alot, the only thing that doesn't seem like apenea, is that when I

wake up, it's very hard for me to fall back to sleep.

Oh my this post is long, my apologies.

Lori

[Guest guest]

I have been watching these posts on sleep apnea with interest. My husband

also suffers from it, and has been on BIPAP and now CPAP for nearly 10

years. He has experimented with different masks and found that the nasal

pillows work best-he doesn't feel so closed in that way. It is how he found

out he had OA-the first night he had the machine he slept 9 hours straight

through and when he woke up he couldn't move! His joints had all stiffened

up on him. He was used to getting up every 2-3 hours, so he very rarely

laid still for any longer. The machines need adjustment, esp. when you are

first getting them. The doctor will order a certain setting based on the

test results, but you might have individual variations. On Mike's last

sleep test, the tech suggested a range of settings that she thought would be

useful for him, and told him to bring his machine into the medical supply

place and have them reset it until he was comfortable. So don't give up,

and don't think that the first setting is the only one you can have. Now he

puts his headgear on, turns on the machine and is asleep in minutes. And

since he is getting much more REM sleep, he doesn't need more than 5-6 hours

to feel completely rested. He has severe OA of the knees and is subject to

muscle spasms, so for him to sleep right through the night is really

something.

Good luck to all, and email me if you want me to ask my hubby any questions

for you. D

[Guest guest]

Hi..

I've had sleep apnea for the past 30 years and was just diagnosed 2 years

ago . My sleep apnea started before I started to use HRT and my docs just

told me that I probably had a bad dream....idiots eh?...and as a direct

result if sleep-apnea, I had a major heart attack and several mini-strokes.

I now wear a breathing mask to make sure that my system doesn't stop breathing.

High doses of testo can cause sleep-apnea.

Bill B...............

At 10:13 PM 9/22/2004 -0700, you wrote:

>There could be a link, but the relationship may be reversed from what you

>think. If someone has sleep apnea (they stop breathing multiple times per

>night and wake up, often without knowing/remembering, to keep from

>suffocating), this leads to day time fatigue and low testosterone.

>

>Snoring is often a sign of someone with sleep apnea...

> *

[Guest guest]

I should also say that I was being successfully treated for sleep

apnea for a couple years before my low T was found, but i know I had

the low T for several years before that.

Mark

[Guest guest]

Dear Rae, I think you will find a lot of us suffer from sleep apnea as well

as other sleep disorders. I got lucky and have sleep apnea and Restless

leg syndrome. I don't think one causes the other, but I guess we just don't

know for sure. It does seem like a high number of us have this problem

though. A lot of people have been helped with the sleep machine that helps

you breath at night. I had problems where I just couldn't tolerate the

mask. I haven't given up trying to use it, just put it off for a while

while I deal with some other health problems.

I hope you find some relief. You can always get a sleep study done by your

doctor and find out for sure. Take care. Fran

Does anyone out there have sleep apnea? Might it be related? Maybe that's

why the fatigue and non-repair of the joint, ligaments and tendons. My

husband is convinced that I'm apneic during the night.

Rae

[Guest guest]

Rae,

If your husband says this get a sleep test immediately. I laughed at my

rheumy and when the results of the test came back I was amazed. I have been

using a CPAP machine for about 3 years and my wakefulness has improved, not

too much the tiredness but that may be a bit better too. Sleep apnea is a

serious disease with heart and blood pressure consequences too. If you have

it (only know with a sleep test) get it treated. Anne

Subject: [ ] Sleep apnea

Does anyone out there have sleep apnea? Might it be related? Maybe that's

why the fatigue and non-repair of the joint, ligaments and tendons. My

husband is convinced that I'm apneic during the night.

Rae

/

[Guest guest]

Hi Rae,

I have severe obstructive sleep apnea. I was just diagnosed in

November and have been using a CPAP machine ever since. It's improved

my fatigue to a degree, but sadly it hasn't helped with my flares.

It's a relief to breathe at night, though! Are you going to have a

sleep study?

Jayson

On Friday, April 15, 2005, at 07:50 PM, farrell wrote:

>

> Does anyone out there have sleep apnea?  Might it be related?  Maybe

> that's why the fatigue and non-repair of the joint, ligaments and

> tendons.  My husband is convinced that I'm apneic during the night.

> Rae

>

>

[Guest guest]

Didn't know if sleep apnea is part of CMT but several years ago I had sleep

apnea and I stopped breathing 36 times the night of my test. I

had a uvalapaslotoplasty and I have been breathing all right ever since.

Cathleen

[Guest guest]

Hi Jen,

I seem to have exactly the same thing - except that this is my wife's

version! I stop breathing, then everything goes back to normal. But I

have quiet nights too.

Roman

[Guest guest]

Hi ,

I was reading an article at the November issue of Parents Magazine today about

sleep apnea, and thought of you (actually I read because of your message...)

they are mentioning to get the child checked for enlarged tonsils. Have you

checked this with an ENT?

Deborah

LiisaAnn@... wrote:

Hello, I was just wondering if any moms are experiencing sleep apnea

or

trouble breathing at night with their children. Mine will go for 5 seconds

without breathing then suck in a breath, and often cough because of all the

saliva

in his mouth. He is very congested at night. His breathing while sleeping

isn't always like this, but it is like this very often. It scares me, and I

am thinking I need to pursue a sleep study for him. To me, it seems as

though his mouth collapses inside, and the air passage way becomes blocked.

I was wondering if this could be linked to his speech delay, or possible

(likely) apraxia. Just wondered if others are experiencing any of this. I

didn't notice it until a few months ago. My son will be three next month.

[Guest guest]

Hi ,

I was reading an article at the November issue of Parents Magazine today about

sleep apnea, and thought of you (actually I read because of your message...)

they are mentioning to get the child checked for enlarged tonsils. Have you

checked this with an ENT?

Deborah

LiisaAnn@... wrote:

Hello, I was just wondering if any moms are experiencing sleep apnea

or

trouble breathing at night with their children. Mine will go for 5 seconds

without breathing then suck in a breath, and often cough because of all the

saliva

in his mouth. He is very congested at night. His breathing while sleeping

isn't always like this, but it is like this very often. It scares me, and I

am thinking I need to pursue a sleep study for him. To me, it seems as

though his mouth collapses inside, and the air passage way becomes blocked.

I was wondering if this could be linked to his speech delay, or possible

(likely) apraxia. Just wondered if others are experiencing any of this. I

didn't notice it until a few months ago. My son will be three next month.

[Guest guest]

I don't have CMT; my husband does, but I do have apnea if I sleep on my back.

The headaches are terrible. I make myself sleep on my side by putting a small

pillow, thick but airline-sized, behind my back. I did read about someone

sewing a tennis ball in the middle of his pajamas to make him sleep in his back.

Also, you might check whether there is another MDA not too far from you. When

we became dissatisfied with UCLA's MDA, we went to Santa Barbara, where it was

much easier to get an appointment.

Elinor

[Guest guest]

I am not sure if this will help or not. But my DH is very very toxic

in almost every metal...and had terrible apnea....as we have brought

down his heavy metal and viral loads....his apnea is decreasing....so I

am pretty sure that metals are the key issue here...and mercury would

be a biggie.

hth

Ronni

> Hi everyone, I have a question:

>

> Has anyone seen a connection between ASDs and Sleep apnea? or

> sleep apnea and vaccines? My son had a terrible incident of sleep

> apnea one day after receiving mmr and I think prevnar on the same

day,

> unfortunately during an extended course of antibiotics. We studied

> for two years to figure out the cause of his diagnosed mild to

> moderate sleep apnea, which lasted about that long... and now has

> almost completely disappeared. None of the usual causes of sleep

apnea

> seemed to apply to him, and he was a mystery to the doctors. I

never

> realized that these dates coincided until recently. Thank you.

>

> Carolyn

>

[Guest guest]

Hi Heidi - I have Sleep Apnea (along with everything else) and have

slept with a machine for just about 6 years now. I have a

gel-cushioned nasal mask that fits over my nose only. I tried the

full-faced one and felt claustrophobic and the nasal ones that sit

just inside the nostrils are too annoying to deal with. The machine

makes a quiet noise - you hear the air movement more than anything -

almost like a table fan type of noise. After adjusting to the mask -

which took no time at all - I was getting the best sleep I've had in a

very long time. Hubby says my snoring has stopped.

When I had my initial study done, I stopped breathing over 350+ times

during one night for up to 1.5 minutes and my oxygen levels would drop

into the upper 70's. Pretty scary when I saw all of that. Now if hubby

says I'm snoring again, its time to have my machine re-titrated. I've

had my pressures increased twice now.

Best of luck to you. If you keep in mind that the sleep study will

help you to get a better night's sleep and that you'll feel better all

the way around, I think you'll do fine. Keep us posted. I'd love to

hear how it all goes.....Doreen

--- In , Heidi Mendelsohn <hmendelsohn@...>

wrote:

>

> Hi y'all

> Well I thought I was doing something nice for my DH. I went to his

> pulmonologist to see if she could give me something for snoring.

> Well She thinks she can help BUT!! and thats a big one, she wants a

> Chest CT because Mtx can cause major problem in the lungs. and my

> lungs sounded crappy. So now for one simple MD visit, I have a CT,

> a pft, abgs and then a sleep study. I can see this ending with me

> having to wear one of the masks.. I am so clostraphobic I had a

> hard time wearing face masks when dealing with patients. Someone

> help please let me know how the mask works and how you sleep with

> it. Does it make noise? I think I have decided NEVER to go to

> another new MD again they always give me something else to worry

> about..Hope everyone else is having a good day..

> Heidibug