Re: Charity

[Guest guest]

Gee, I had a wonderful experience with Novartis.  they sent a form, I filled it

out and got all the Gleevec I needed.  I had to earn less than 44,000 a year,

ho, ho, ho, I wish i did earn that much!!  But that was a while back, I received

it free from 2000, to 2004 when i went into the BMS trial.  By the way, what is

PSI ??

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

 

From: Lottie Duthu <lotajam@...>

Subject: [ ] Charity

" CML " < >

Date: Saturday, March 14, 2009, 5:47 PM

I must say that I have my own private history with Novartis and

their philantrophy. They expect you to tap into the treasuries of the private

charities before they will agree to " give " you anything. LLS has limited funds

to assist you with your meds and do not cover more than $500 total per year for

all expenses, including transportation of 5 cent a mile. Nevertheless, I am

grateful for this assistance and all the volunteers who volunteer their time and

talents to raise this money. Novartis on the other hand, supplied my Gleevec

for a few months and then demanded that I apply for assistance with PSI, or they

would stop sending me the drugs. I asked if they would really do that, and all

they could say was, " W E L L!!!!!!!!!!! That was the nice thing they said before

hanging up. They not only demanded, but they sent me forms already filled out

with all the pertinent information and harrassed me. All I had to do was date

and sign it.

That's my experience with them, I don't know if anyone else had a similiar

problem.

I applied with PSI, was accepted and subsequently went into another trial, so I

never had to use their services, but they said my file would always be open.

When you look at the salaries and perks the CEO's get, I wonder why you have to

grovel to get your " welfare " from a giant like Novartis.

Blessings,

Lottie