Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 .. > From: " W. Birk " <wb4@...> > > I am starting to get confused with so many people! > Hi All, me too, and I have forgotten and/or confused situations, children, details, etc., etc. Are listmember's intros archived anywhere? Thanks, Indiana Kathy R. (not as catchy as " Aloha Kathy " but we can't all live in Hawaii! . . . :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Jim and his son from San Diego will be at the May OCSDA along with Jim's sister Ann from Kansas City. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Yes, I will be at OCSDA also on Saturday only (driving up and back from San Diego) and would like to get together. San Diego Chris P.S. Implemented the poker chip trading idea and you ought to see my house! Kids asking if they could fold the laundry for me, sweep the back deck, and pointing out how they didn't yell and worked things out between them!! Don't know if it'll last, but the positive attitude is refreshing around here! Most importantly, they seem to feel genuinely good about getting strokes for good behavior and keep asking me if I'm proud of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Hi Chris: You are right, these behavior mod programs focusing on positive behaviors work so well that it makes one feel ridiculous that one didn't figure it out earlier. We did notice it worked a lot faster with our non-OCD child than our OCDer though. Now as soon as someone gets a negative consequence they are offering to do yard work, wash cars, cook, etc. to get back computer time. Unfortunately for me no one wants to do the laundry yet (my chore). Aloha, Kathy (h) kathyh@... At 06:45 PM 4/18/99 -0700, you wrote: >From: Roman <ChrisRoman@...> > >Yes, I will be at OCSDA also on Saturday only (driving up and back from San >Diego) and would like to get together. > >San Diego Chris > >P.S. Implemented the poker chip trading idea and you ought to see my house! >Kids asking if they could fold the laundry for me, sweep the back deck, and >pointing out how they didn't yell and worked things out between them!! >Don't know if it'll last, but the positive attitude is refreshing around >here! Most importantly, they seem to feel genuinely good about getting >strokes for good behavior and keep asking me if I'm proud of them. > > > >------------------------------------------------------------------------ >Share the wealth! >http://www.ONElist.com >Tell a friend about ONElist's 115,000 free e-mail communities! >------------------------------------------------------------------------ >The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Hi , You are right; it is getting confusing with so many people. mary from Louisiana " W. Birk " wrote: > From: " W. Birk " <wb4@...> > > I am starting to get confused with so many people! > > Is it possible for us to add something to our names that help > identify who we are? (like Aloha, Kathy does). > > Other than Kathy, Jill, and myself, who else is going to the > OCSDA conference??? Perhaps we could get together at some time?? > > take care all, wendy, in canada > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 I forgot to add that I thought that the geneticist should have gone back to medical school to come up with those definitions....and that my mother and I had a good laugh. :-) Sorry if I led anyone to believe that I believed him...oops!!! What's in a name? >From: " Karin Redston " <kitties@...> > >When I was growing up in the sixties, I was told by a geneticist down in Seattle that the difference between dwarf and midget was size and proportions. Midgets were 3'10 " and under and evenly proportioned while dwarves were around 4 feet and generally had unevenly proportioned bodies....arms longer, legs shorter etc. >I decided in high school during the age of political correctness to go with short statured as opposed to " one of them little people. " >In any event, I don't as much mind what people call me as long as the tonal inflection is genuine. >I have to agree with many on the listserve that midget is usually not meant in a nice manner. >But, it was nice reading all of the different points of view from a lot more people lately. > >Karin > >[Attachments have been removed from this message] > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 We have started a great discussion. I hope the other 122+ people on the e-mail also give their opinion. This is an extremely important topic that will help ALL of us. Dick Thom PS - Dick, was your $.02 US or CDN currency? It was actually CDN so I guess it was only my $.0164 worth. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 I think it is difficult, if not impossible, to encompass everything that we do in " Drainage " therapy into a single name that is going to be 100% complete, and also be easily understandable to the lay person. The term " Homeopathy " is a succint description of a modality based on the principle of like treats like, but it definitly needs explaining to a lay person. The term for what we practice and study should be distinct and free of the negative conotations and misunderstandings that have been attatched by some to " Drainage " . I submit dropping all the descriptors and simply calling what we do: " Biotherapeutics " ..ie. we treat the biology of the body. It can then be explained to the patient, ie. we treat the whole body, restoring balance and natural functioning to your organ systems. This is achieved through optimizing eliminations on a cellular level and opening the pathways of elimination from your body ... Just wanted to put in my bit. (Dick, was your $.02 US or CDN currency?) Keivan Jinnah, ND,LAc Portland, OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 Name Suggestions: BioVitality Therapy Vital Life Force Harmonization BioLife Therapy Vital Force Therapy BioHarmony Vitality Homeopathy One question I have been pondering is what is the intention behind the name? Is it focused on marketing, and/or education/communication with patients? I tend to lean toward the marketing aspect of it, b/c adequate communication about what we are actually attempting with these therapies requires a lengthy discussion with the patient. I’ll ponder it more after exams. Al Thieme Chinese Medicine, Nutrition, Homeopathy MSEE On 11/29/04 11:32 PM, " Drdwthom@... " <Drdwthom@...> wrote: We have started a great discussion. I hope the other 122+ people on the e-mail also give their opinion. This is an extremely important topic that will help ALL of us. Dick Thom PS - Dick, was your $.02 US or CDN currency? It was actually CDN so I guess it was only my $.0164 worth. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 Dear group- I'd like to also encompass the idea that an organism is dynamic. I think of the ultimate goal as achieving a state of flexible and adaptable homeobalance rather than a homeostasis, which implies that once you reach a state, you stay there, or that the goal is stasis. We are ever-changing creatures, and even when a person has truly achieved a state of optimum health, things will continue to change as his/her life evolves and changes. My other thought is that the term " drainage " pertains to elimination- people start visualizing sewer pipes when they think of drains. While elimination is an essential element, the homeobalance and vitality are the greater goal. I'll keep cogitating names. Hindman Tigard, OR cancer, chronic disease, anyone On Tue, 30 Nov 2004 11:08:59 -0800, Al Thieme <al@...> wrote: > Name Suggestions: > BioVitality Therapy > > Vital Life Force Harmonization > > BioLife Therapy > > Vital Force Therapy > > BioHarmony > > Vitality Homeopathy > > One question I have been pondering is what is the intention behind the name? > Is it focused on marketing, and/or education/communication with patients? I > tend to lean toward the marketing aspect of it, b/c adequate communication > about what we are actually attempting with these therapies requires a > lengthy discussion with the patient. > I'll ponder it more after exams. > Al Thieme > Chinese Medicine, Nutrition, Homeopathy > MSEE > > > > > > > On 11/29/04 11:32 PM, " Drdwthom@... " <Drdwthom@...> wrote: > > > > > We have started a great discussion. > I hope the other 122+ people on the e-mail also give their opinion. > This is an extremely important topic that will help ALL of us. > > Dick Thom > > PS - Dick, was your $.02 US or CDN currency? > > It was actually CDN so I guess it was only my $.0164 worth. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Maybe even better than " Biotherapeutics " could be " Biotherapy " . Even simpler. One thing I wanted to mention in this discussion is that if I'm not mistaken the term " Biotherapeutic Drainage " is a registered trademark of Seroyal, another reason to look for a distinct name for the medicine we practice (it would be nice if we could just call it Naturopathy, which is what it is, but I think we would have a battle with the naturopaths that practice green allopathy, I don't think they're ready to give the term up yet.) Keivan Jinnah ND,LAc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 I like that biotherapy - it's simple, feels more " to the point " - doesn't get lost in the " new agey " vocabulary. Tamara drkjinnah@... wrote: >Maybe even better than " Biotherapeutics " could be " Biotherapy " . Even simpler. > >One thing I wanted to mention in this discussion is that if I'm not mistaken the term " Biotherapeutic Drainage " is a registered trademark of Seroyal, another reason to look for a distinct name for the medicine we practice (it would be nice if we could just call it Naturopathy, which is what it is, but I think we would have a battle with the naturopaths that practice green allopathy, I don't think they're ready to give the term up yet.) > >Keivan Jinnah ND,LAc > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 I agree with , in that I like the notion of balance because it does not imply a static state. Homeobalance is good and it has meaning to us but it seems that as soon as the prefix " homeo- " sneaks into the picture, we're back to people saying " huh? What's homeobalance? " Whereas people get the notion of balance - they understand it and can apply it in most any situation be it walking, physiology, or kids on a teeter totter at the playground. And yes, the word drainage brings up the notion of plumbers and pipes -- I don't know, for me it works. Our GI is one big long pipe/drain - except that it does a lot more than drain. Humans (and other animals) are amazingly intricate and all that but when we study physiology and chemistry I often think about electrical circuits, pipes etc. And perhaps the most basic explanation of what we are doing is draining all the toxins out of the ECM. Of course, there is the energetic aspect as well. If our goal is to convey what we do succintly and clearly so that the general public and health care community can understand what we mean I think we have to Keep It Simple Stupid (as Andy Belanger would say). I suggest guarding against anything too froo-froo or " new-age " . Consider the term " Drainage Therapy " vs. " Biotherapuetic Drainage " as an example of K.I.S.S. Just some thoughts. Kathy Sweeney Juneau, AK Family Practice Many people (ND's) have never heard of the term. Many NDs think it is a " new " therapy. All of these are wrong. Most of the general public and the health care community have no idea what it is >From: Hindman <kjhindman@...> >Reply- > >Subject: Re: what's in a name? >Date: Tue, 30 Nov 2004 11:33:03 -0800 > > >Dear group- > >I'd like to also encompass the idea that an organism is dynamic. I >think of the ultimate goal as achieving a state of flexible and >adaptable homeobalance rather than a homeostasis, which implies that >once you reach a state, you stay there, or that the goal is stasis. >We are ever-changing creatures, and even when a person has truly >achieved a state of optimum health, things will continue to change as >his/her life evolves and changes. > >My other thought is that the term " drainage " pertains to elimination- >people start visualizing sewer pipes when they think of drains. While >elimination is an essential element, the homeobalance and vitality are >the greater goal. I'll keep cogitating names. > > Hindman >Tigard, OR >cancer, chronic disease, anyone > > > > >On Tue, 30 Nov 2004 11:08:59 -0800, Al Thieme <al@...> wrote: > > Name Suggestions: > > BioVitality Therapy > > > > Vital Life Force Harmonization > > > > BioLife Therapy > > > > Vital Force Therapy > > > > BioHarmony > > > > Vitality Homeopathy > > > > One question I have been pondering is what is the intention behind the >name? > > Is it focused on marketing, and/or education/communication with >patients? I > > tend to lean toward the marketing aspect of it, b/c adequate >communication > > about what we are actually attempting with these therapies requires a > > lengthy discussion with the patient. > > I'll ponder it more after exams. > > Al Thieme > > Chinese Medicine, Nutrition, Homeopathy > > MSEE > > > > > > > > > > > > > > On 11/29/04 11:32 PM, " Drdwthom@... " <Drdwthom@...> wrote: > > > > > > > > > > We have started a great discussion. > > I hope the other 122+ people on the e-mail also give their opinion. > > This is an extremely important topic that will help ALL of us. > > > > Dick Thom > > > > PS - Dick, was your $.02 US or CDN currency? > > > > It was actually CDN so I guess it was only my $.0164 worth. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 The term Biotherapy does already exist (I have not heard it as much in this country but it is much more prevalent in France). In fact, Dr. Tetau, one of the pioneers of Gemmotherapy, is the chairman of the "Medical Biotherapy Asscoiation" in France. Biotherapy encompasses gemmo, oligo, organo and homeopathy, so in that way embraces our tools. I think if we opt for that name, we need to stay true to the definition as it is practiced in Europe for the sake of unity. When you do a search for "Biotherapy" in the US it brings up a variety of different sites, one using insects to treat and study humans, others that are vague alternative medicine sites etc. When I do a search on the French web, it clearly pulls up the sites that encompass what we think about when we use this term. So, I like the idea of using that term as well and staying true to the French definition of it for the sake of unification (and I am not just saying this because I am French!) Allie Tanzer NDSeaside, OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 Dear Group - The thing I like about this group, and how we use 'drainage' is that it is about healing. People really heal - on many levels. I have been thinking about what we are actually working with to stimulate healing in patients. It seems like most of the therapies we use rely on the vital force to recognize what is happening in the body and either 'clean up the mess it was avoiding', or bring balance to organ systems to restore a functioning network in the body. So I propose a name like - Vital energy therapy or Inner essence therapy or Vital Radiance therapy (because we support the vital force to function and patients radiate. I would rather have patients ask what vital energy is and have the chance to explain how they have the potential to heal themselves within. As physicians, we are working to strenghthen that energy within them. We are either shining a light on what needs to be cleaned up (then talk about drains - drainage - and that wonderful- to-say word, emunctory), and/or we are helping an organ system to function better or more effectively with the body. I believe it is so important to let patients know we are supporting what is inside of them to bring balance and healing to their body. Well - There is my $5.00 worth. Hodsdon ND Portland, Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Bio-Regulative Therapy. That's good. It's easy to understand. Lemley, ND Bozeman, MT women's health, endocrinology, general practice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Dear Group, I'm wondering if someone would be willing to go back over the emails that have been submitted for renaming the practice of drainage and make a list of the suggestions that have been made. (maybe someone is already keeping a list?)We can then send the list around, continue to add more as they come in, and at some point narrow it down and ultimately choose one, or not, if we decide to stay with drainage. One more suggestion: Bio-regulative therapy Keivan Jinnah, ND,LAc Portland OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 I am keeping tract of all the suggestions Dick Thom Beaverton, OR Dear Group, I'm wondering if someone would be willing to go back over the emails that have been submitted for renaming the practice of drainage and make a list of the suggestions that have been made. (maybe someone is already keeping a list?)We can then send the list around, continue to add more as they come in, and at some point narrow it down and ultimately choose one, or not, if we decide to stay with drainage. One more suggestion:  Bio-regulative therapy Keivan Jinnah, ND,LAc Portland OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Hello everyone, I have the cookbooks in my office and they have been selling like crazy. I sell them to docs and professionals for $16.00 and the retail price is $22.95, so you can make a little money on them as well. Let me know if anyone wants to look one over and I will mail one to you. We also are doing bulk discounts of buy 12 and get the 13th free. Hope all is well out there in the world of medicine. Jessie Black, N.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 i am writing for anne krawic to add her to the UNDA list. her address is: anne@... thank you thank you, ashley & gt;From: jblacknd@... & gt;Reply- & gt; & gt;Subject: Re: what's in a name? & gt;Date: Fri, 10 Dec 2004 17:35:25 EST & gt; & gt;Hello everyone, & gt; & gt;I have the cookbooks in my office and they have been selling like crazy. I & gt;sell them to docs and professionals for $16.00 and the retail price is $22.95, & gt;so you can make a little money on them as well. Let me know if anyone wants & gt;to look one over and I will mail one to you. & gt; & gt;We also are doing bulk discounts of buy 12 and get the 13th free. & gt; & gt;Hope all is well out there in the world of medicine. & gt; & gt;Jessie Black, N.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 I may have missed this but how do we contact Re: what's in a name? Hello everyone, I have the cookbooks in my office and they have been selling like crazy. I sell them to docs and professionals for $16.00 and the retail price is $22.95, so you can make a little money on them as well. Let me know if anyone wants to look one over and I will mail one to you. We also are doing bulk discounts of buy 12 and get the 13th free. Hope all is well out there in the world of medicine. Jessie Black, N.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 Hi , I am very interested in getting your cookbook, and potentially(probably) selling them here. I am in Ontario, how would you like to coordinate payment? Do you take visa, or would you prefer a moneyorder? I'm looking very forward to seeing it! Teri Jaklin ND Waterdown Clinic of Naturopathic Medicine 250 Dundas St E Waterdown, ON L0R 2H4 Phone: 905-690-9151 -----Original Message-----From: jblacknd@... [mailto:jblacknd@...]Sent: December 10, 2004 5:35 PM Subject: Re: what's in a name? Hello everyone, I have the cookbooks in my office and they have been selling like crazy. I sell them to docs and professionals for $16.00 and the retail price is $22.95, so you can make a little money on them as well. Let me know if anyone wants to look one over and I will mail one to you. We also are doing bulk discounts of buy 12 and get the 13th free. Hope all is well out there in the world of medicine. Jessie Black, N.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 " a " wrote: > My personal opinions: > not happy with CFS: demeaning, allows for fixation with 'fatigue' > among other stuff I'm too ill to elaborate on for the moment. > > CFIDS: not that much different from above, is it? > > ME: probably the best for now, in my view. May not be totally > accurate but we still don't know what this really is. At least it > doesn't allow for " I have chronic fatigue too " kinda comments and > allows for patients to be taken more seriously (I've often experienced > a major difference in how others, including doctors, perceive my > illness, according to the terms I used). > > Cheney Syndrome or something of the type: I also agree with something > like that. > > But it does seem to be awfully urgent to get the naming issue > straightened out. What's in a name? Everything! (perhaps not > everything, but a whole lot, that's for sure) > > When will there be a consensus? > > What can we do as individuals? > > What are your opinions? > > a Funny you should ask. Yes, we don't know for absolute certain that " Ramsay described ME " and CFS are the same thing. When CFS blazed through Incline Village, it didn't restrict itself to one main area or facility like Royal Free - this went through Truckee HS, North Tahoe High school, surrounding areas, towns, even way out to isolated homes in the desert. Not only that, but we had MORE symptoms that Ramsay ME, such as the Crimson Crescents and " loss of fingerprints " . Add the fact that a number of people with " Yuppie Flu " died, and it looks like CFS is far more pathogenic than Royal Free ME. The authors of the Canadian Guidelines get around this by studying " Original CFS " and " ME " as a combined entity of concurrent but not totally identical complaints: " ME/CFS " . Their view allows for a refined view of " CFS " which disallows the fatigue construct and validates the experience of CFSers with 'The real deal " without squashing anyone by saying " CFS is fatigue " or " CFS is not a syndrome " . ICD 10 G.93.3 " ME/CFS " as defined by the Candadian Guidelines creates a refining criteria that lifts CFSers out of the " CFS wastebasket " even without waiting for a definitive marker. When the etiology is well established, " ME/CFS " can then either regarded as ME, or whatever the illness process is can be given a name that is etiology based, but at least " ME/CFS " provides an instant basis for refinement of an extremely muddled situation. All we have to do is support the authors of the Canadian Guidelines and veryify that their description of the illness truly represent our experience - and leave the rest to them. They've done one heck of a job so far - and deserve support. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Marcus: the automatic connection for me is " Potter's Syndrome " . Ok, that is green eyes, glasses, and the inability to tolerate Draco.... Can you tell I'm a Harry Potter fan? Just picture Harry with PA on a broomstick... Oh, and how well could you flick YOUR wand if you were having issues with your hand... Thanks for the grin!! CMPete [Editor's Note: Me, too! I immediately thought of Harry Potter and decided that psoriatic arthritis would get taken a lot more seriously than Potter's Syndrome - at least by the crowd I hang with. Kathy F.] -------------------- What's in a name? Posted by: " marcusjweeks " marcusweeks@... marcusjweeks Date: Wed Feb 7, 2007 6:34 am ((PST)) It has just struck me, reading through some of the group's recent correspondence, that one way to explain our complicated disease to the uninitiated would be to think of a better name for it than " Psoriatic Arthritis " (or worse still, " psoriatic arthropathy " ). After all, arthritis is only one of the many and varied symptoms we suffer from, and it sort of gives the wrong impression, doesn't it? Alzheimer's, Crohn's and others are named after doctors who realised their uniqueness, and have become almost household names -- and poor old PA remains a " Cinderella " disease: misunderstood, neglected and often played down. Here in the UK, PA had a bit of a boost in the 1980s when it was the subject of Dennis Potter's TV series " The Singing Detective " (although the recent film of the same story seems to have disappeared without a trace). Perhaps we could " adopt " Potter (he's one of my personal heroes!) and push for the bundle of symptoms now known as PA to be henceforth known as " Potter's Syndrome " -- preferably to the blare of trumpets and a huge splurge in national newspapers and TV! Who knows, with a bit of intelligent publicity it might help raise the profile enough to counter the ignorance shown by the general public and indeed some doctors and health insurance organisations. Any thoughts, anyone? Best wishes to all Marcus ------------------- CMPete Quilts With Poodle '.....now times are rough and I've got too much STUFF!!' J.D. Buffett I have a blog now!! And there is ACTUALLY stuff on it! http://cmpetequiltspoodle.blogspot.com/ ________________________________________________________________________________\ ____ Music Unlimited Access over 1 million songs. http://music./unlimited Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 or the intense desire to go out and do some raku firing- clay pots [Editor's Note: ...or the irresistible urge to practice one's short game in golf known as Putter's Syndrome...or the urge to polish metal known as Pewter's Syndrome... Kathy F.] --- CM <cmquilts@...> wrote: > Marcus: the automatic connection for me is " Potter's > Syndrome " . Ok, that is green eyes, glasses, and the > inability to tolerate Draco.... Can you tell I'm a > Harry Potter fan? > > Just picture Harry with PA on a broomstick... > Oh, and how well could you flick YOUR wand if you > were > having issues with your hand... > > > Thanks for the grin!! > > CMPete > > [Editor's Note: Me, too! I immediately thought of > Harry Potter and decided that psoriatic arthritis > would get taken a lot more seriously than Potter's > Syndrome - at least by the crowd I hang with. Kathy > F.] > > > > -------------------- > What's in a name? > Posted by: " marcusjweeks " marcusweeks@... > marcusjweeks > Date: Wed Feb 7, 2007 6:34 am ((PST)) > > It has just struck me, reading through some of the > group's recent correspondence, that one > way to explain our complicated disease to the > uninitiated would be to think of a better name > for it than " Psoriatic Arthritis " (or worse still, > " psoriatic arthropathy " ). After all, arthritis > is only > one of the many and varied symptoms we suffer from, > and it sort of gives the wrong > impression, doesn't it? Alzheimer's, Crohn's and > others are named after doctors who realised > their uniqueness, and have become almost household > names -- and poor old PA remains a > " Cinderella " disease: misunderstood, neglected and > often played down. > Here in the UK, PA had a bit of a boost in the 1980s > when it was the subject of Dennis > Potter's TV series " The Singing Detective " (although > the recent film of the same story seems > to have disappeared without a trace). Perhaps we > could > " adopt " Potter (he's one of my > personal heroes!) and push for the bundle of > symptoms > now known as PA to be henceforth > known as " Potter's Syndrome " -- preferably to the > blare of trumpets and a huge splurge in > national newspapers and TV! > Who knows, with a bit of intelligent publicity it > might help raise the profile enough to counter > the ignorance shown by the general public and indeed > some doctors and health insurance > organisations. > Any thoughts, anyone? > > Best wishes to all > > Marcus > ------------------- > > CMPete > Quilts With Poodle > > '.....now times are rough and I've got too much > STUFF!!' > J.D. Buffett > > I have a blog now!! And there is ACTUALLY stuff on > it! > http://cmpetequiltspoodle.blogspot.com/ > > > > ________________________________________________________________________________\ ____ > Music Unlimited > Access over 1 million songs. > http://music./unlimited > Quote Link to comment Share on other sites More sharing options...
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