Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 The irresistable urge to find a toilet - caused by calcification of foramina through which sacral nerves may lead to the bladder or the intestines. [Editor's Note: Oh, no, not the dreaded Potty Syndrome! I used to suffer from the Potsy Syndrome until I was cured of the desire to stop hopping over squares. Kathy F.] > > > Marcus: the automatic connection for me is " Potter's > > Syndrome " . Ok, that is green eyes, glasses, and the > > inability to tolerate Draco.... Can you tell I'm a > > Harry Potter fan? > > > > Just picture Harry with PA on a broomstick... > > Oh, and how well could you flick YOUR wand if you > > were > > having issues with your hand... > > > > > > Thanks for the grin!! > > > > CMPete > > > > [Editor's Note: Me, too! I immediately thought of > > Harry Potter and decided that psoriatic arthritis > > would get taken a lot more seriously than Potter's > > Syndrome - at least by the crowd I hang with. Kathy > > F.] > > > > > > > > -------------------- > > What's in a name? > > Posted by: " marcusjweeks " marcusweeks@... > > marcusjweeks > > Date: Wed Feb 7, 2007 6:34 am ((PST)) > > > > It has just struck me, reading through some of the > > group's recent correspondence, that one > > way to explain our complicated disease to the > > uninitiated would be to think of a better name > > for it than " Psoriatic Arthritis " (or worse still, > > " psoriatic arthropathy " ). After all, arthritis > > is only > > one of the many and varied symptoms we suffer from, > > and it sort of gives the wrong > > impression, doesn't it? Alzheimer's, Crohn's and > > others are named after doctors who realised > > their uniqueness, and have become almost household > > names -- and poor old PA remains a > > " Cinderella " disease: misunderstood, neglected and > > often played down. > > Here in the UK, PA had a bit of a boost in the 1980s > > when it was the subject of Dennis > > Potter's TV series " The Singing Detective " (although > > the recent film of the same story seems > > to have disappeared without a trace). Perhaps we > > could > > " adopt " Potter (he's one of my > > personal heroes!) and push for the bundle of > > symptoms > > now known as PA to be henceforth > > known as " Potter's Syndrome " -- preferably to the > > blare of trumpets and a huge splurge in > > national newspapers and TV! > > Who knows, with a bit of intelligent publicity it > > might help raise the profile enough to counter > > the ignorance shown by the general public and indeed > > some doctors and health insurance > > organisations. > > Any thoughts, anyone? > > > > Best wishes to all > > > > Marcus > > ------------------- > > > > CMPete > > Quilts With Poodle > > > > '.....now times are rough and I've got too much > > STUFF!!' > > J.D. Buffett > > > > I have a blog now!! And there is ACTUALLY stuff on > > it! > > http://cmpetequiltspoodle.blogspot.com/ > > > > > > > > > ______________________________________________________________________ ______________ > > Music Unlimited > > Access over 1 million songs. > > http://music./unlimited > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Actually, my first thought was that if we had Harry Potter as a celebrity spokesperson, we'd gets TONS of publicity! regards, sherry z >> > [Editor's Note: Me, too! I immediately thought of Harry Potter and decided that psoriatic arthritis would get taken a lot more seriously than Potter's Syndrome - at least by the crowd I hang with. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 the irresistable urge to spackle cracks and fissures... > > The irresistable urge to find a toilet - caused by calcification of > foramina through which sacral nerves may lead to the bladder or the > intestines. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 Marcus: Regarding fibromyalgia, when I first went to see a rheumatologist and described my symptoms to her (particularly the " brain fog " ) her immediate reaction was that I had fibromyalgia and she told me that there was nothing that could be done for it except to get enough sleep and to exercise. After looking at my lab work, however, she said I had PA and focused just on that - never mentioning the fibro again. I have subsequently learned that my internist has helped several people that I know who have fibro; and recently she discussed with me the possibility that I had it in addition to PA. (Whether I do or not is still up in the air; two physical therapists have told me that I don't - that they know what fibro feels like when they touch the body and I don't feel that way.) Whether I have it or not, she suggested Lyrica, which is a relatively new drug that's she believes is useful: and says you know within six weeks if it will work, or not. If it doesn't within six weeks, it never will. The second choice was Cymbalta , an anti-depressant but one that differs from many of the others in that it attacks the problem in two ways and has helped fibro sufferers. Neurotin is another drug that is used to treat fibro. Under my insurance plan, both Lyrica and Cymbalta are " step " drugs, much like the biologics - insurance wants you to try cheaper alternatives first; so I have not yet started on either and haven't pushed it with my internist given the mixed messages I'm getting about whether or not I have it. You may have already tried any or all of these, but I pass the info along in case your rheumy is no better informed about fibro than mine apparently is, despite being on the staff of a major teaching hospital in the Chicago area!!!!! (She does seem to be very good with PA, though.) Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 I hadn't thought about chronic auto immune disease. When I mention PsA they have no idea what I am talking about. Fibro people know but still dismiss as a made up disease .....when I mention my asthma they get it but unless they have it do not have a clue how scary it can be.....anyone else waking totally on the deformed bone? I don't have any padding in my feet anymore. anne moody <dearmaxie@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 HI, I have a cat with many names, so this ought to be fun.. By the way my cat is a Ragdoll and today his name is Tweaty Cat. So whats in a name.. being in the creative field I love titillating things. So AutoSurg.arthritis.,.. Targe't attack,( meaning attacking one joint if your so lucky) PolySurg, Evil Knieval arthritis, Unique to me disease, Arthritic pothole disease, Arthritic Art disease. Definition: the ability to morph into red patches, scales, and to race with the turtles. Thats all for now people with Neck pain and toe pain off and on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 Dear Anne, Normally, when someone really wants to know what type of arthritis I have, which is rare, I tell them it’s technical name is psoriatic arthritis. But that there are over 200 types of arthritis and I have more than just one type. I mention Osteo Arthritis, Osteoporosis, Osteomalacia, Fibro, and even possibly RA. If they ask me what the difference is between PA and RA, I usually just say that RA deforms the bones more, and PA attacks the tendons and ligaments and can attack other organs in the body. It’s a hard disease to explain to anyone and I can understand why they are confused. It confuses me most of the time and I’ve read a lot about it. I have to agree with you about Asthma. I’ve had that for many years and unless you experience what it’s like to not be able to breathe it is hard to understand or if they actually witness an attack. I just tell them it’s like choking and not being able to take a deep breath in, since you can’t get the old air out. I sometimes mention that my whole family has it, both my parents passed away with asthma and emphysema, and I lost a 6-year-old brother during an asthma attack. That normally makes them realize it can be serious, but most of the time I don’t get into all this detail. It depends on the person and how close I am to them. As far as walking around on deformed bones, I guess I have to say that’s me too. I finally broke down and got a power scooter and I have to say it has saved my life. So far I’ve only used it in the house, but the week before it came, I was to the point that getting from room to room with only my cane was harder and harder. Both of my knees are shot and I need both replaced, along with both jaws and probably at least one hip. I’ve been putting it off as long as I can due to my surgeon not wanting to operate on me. He considers me high risk and says the rehab will be hell on me since I’m out of shape from being so ill. Plus since I’ve been on Arava he is nervous about operating on anyone who has taken autoimmune suppressant drugs. He said he lost a patient last year due to infection and another one lost a leg due to the same problem. So he isn’t ready to take me on yet. I’ve got the info on a high risk surgeon and plan to call him, but other medical problems have come up that had to be taken care of first. I guess it all boils down to just not caring anymore what people say or believe. It’s what you know is true and if they don’t get it, they just consider it ignorance and I tell people they are lucky they don’t have to understand how this disease works. If they still want to think I’m faking it, then they can just leave me alone. All the people who love me understand, even though it took some of them longer than others to realize just how bad it was. Everyone wants to deny bad news, but unfortunately it doesn’t make it go away. I hope you get some relief soon for your PA and things start to brighten up. It’s not an easy disease to deal with unless you respond really great to the biologics. Unfortunately, I can’t take them due to allergies. I’ve taken Arava many times, but it still has its down points as well. There just isn’ t an easy answer for our problems. You just have to hope that eventually people realize what’s wrong and learn to show compassion. Take care of yourself. Fran in Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 Joanna, I've taken anti-depressants for about 20 years. I've probably taken 15 different ones. For treatment of depression, different medicines work for different people. I'm not an expert, but I suspect that this would have the same affect for treating fibro. All of these meds affect brain chemicals and they don't understand why a medicine that works for one person doesn't work for another. Even if they make you 'step' up by taking other related medicines you may find that one of those works for you. With my medical plan, those cost me less. Lyrica and Cymbalta are new so the pharmaceutical company is pushing them and spending money to have research studies done, dropping off samples to docs etc. The doctors now say that I don't have PsA or Fibro. My joints are sore but I have no redness or swelling which my latest Rheumy described as an 'itis'. Still no answer as to why my muscles ache all over. The good news is I quit taking sulfasalazine and now I'm not exhausted all the time. Harry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 Harry: I've been on anti-depressants and anti-anxiety meds for several years and have some experience with mental illness and the so-called " anxiety diseases " , (ADD, bi-polar, etc.) and you're right - everybody responds differently and we need to be doing a lot more research, in my opinion, on the brain and how it does work. In the meantime, I guess it's good news that you don't have fibro or PsA but where does that leave you? I hope they find out soon. In my case, a lot of my " muscle aches " are related to structural problems and do respond to physical therapy, which is one of the reasons why my therapists don't think I have fibro either. Good luck with a diagnosis. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 I don't know about anyone else but when I refer to my PA I call it " sorry ass arthritis! " " meganleigh713 " <meganleigh713@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 , I love it and days like today, that is exactly what it has been. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 So nice to hear from you...Does the Florida humidity hurt or help your battle with PsA and asthma? I read your note and feel a little overwhelmed...wondering how you deal with it all.....i have added to my list of problems and just shake my head thinking why don't i just forget trying to get a handle on it....how do you deal with all of it?? anne moody <dearmaxie@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 Dear Bobby, PSI is Patient Services, Inc. located in Midlothian, VA. It is a private service organization which is funded through donations from private, corporate and community sectors. Their mission is to assist persons with specific, severe medical conditions in obtaining third-party medical coverage, as well as assisting with health insurance premiums and pharmacy co-payments. I think this also includes asthma meds, too. They can only assist those individual who have no other assistance available. Novartis did not tell me to contact them, they filled out the form and mailed it to me. If anyone was in their trial, weren't they supposed to get it for life? Maybe you weren't on the " dole " long enough for them to transfer you out of their system. Good luck with your new trial, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 FYI Ellen Ellen Garber Bronfeld egskb@... What's in a Name? To view this newsletter online, please click here to go to www.disabilityisnatural.com/newsletters/387-whats-in-a-name. Disability is Natural E-Newsletter February 2, 2010 WHAT'S IN A NAME? See the third-grade boy having fun, playing with his classmates at recess? Sometimes his pals give his wheelchair a push, other times he wheels himself. Their teacher, Mr. McHale, arrives to escort his students back to class, and he calls out to the boy, “Hey, Hollywood, let’s round ‘em up and move ‘em out!†Hollywood grins, and his eyes light up behind his sunglasses. The boy was very light sensitive, and the large, dark glasses shielded his eyes from the bright sun. He loved movies (and was quite a ham), and his teacher thought he looked cool—like a Hollywood star—in his oversized dark shades, so he nicknamed the boy Hollywood, and he named him well. Some might have referred to the boy—my son, —as the wheelchair boy, crippled kid, sped student, CP kid, or some other offensive descriptor. But to his teachers and classmates, he was Hollywood—he wore the name proudly—and what a difference the name made! What about you? Are you the PTA Prez, Yankee Bob, Hot Mamma, or maybe something more generic, like the sports nut, the scrap-booker, or the church lady? Maybe you have different descriptors: one with family, another at work, and a different one when you play. Maybe you named yourself or someone else named you, but whatever the descriptor, it’s most likely something relevant and meaningful that says something positive about you. (If others gave you a negative label, hopefully they don’t use it in front of you, and shame on them for using it at all.) Can we do the same for people with disabilities? Let’s use nicknames that tell us something positive, interesting, or unique about the person, instead of a medical diagnosis (CP kid, retarded, autistic, Down’s, etc.) or a pejorative characteristic (hair-puller, head-banger, foul-mouthed, aggressive, manipulative, etc.). What difference could this make in a person’s life? Imagine the outcome when Mr. McHale met with the fourth-grade teacher to discuss the next school year for my son, and he talked about Hollywood—instead of the CP kid or something else. Mr. McHale presented as a delightful, funny, and talented boy, so that’s how the fourth-grade teacher was introduced to him. His nickname and the positive characteristics shared were more important and more valuable, and they revealed more about him, than the diagnosis. As we change, nicknames change. Later, Hollywood was replaced by HeroMan because of my son’s love of super-heroes. Other affirmative descriptors followed (including College Man and Handsome). It’s critical to ensure that any nickname used is positive, and is also embraced by the person so named. During my own childhood, being called Motor Mouth was not pleasant. Is there a Hollywood in your life, or maybe a Superstar, Pizza Guy, Book Lover, Baseball Boy, or Pink Lady? What if we saw ’s love of wearing pink as a unique passion, instead of an inappropriate obsession? Don’t people without disabilities have unique passions that are valued and/or respected? Imagine sharing information about a child or adult with a disability that begins with a positive, interesting, respectful nickname at a team meeting, or when introducing the person to someone new. Imagine using that term on a regular basis with the person (“Hey, Hollywood!â€). The words used about us can have a powerful impact. People can evolve and grow in positive ways when positive terms are used, and they can rebel and react in negative ways when negative terms are used. What outcomes do we want? Copyright 2010 Kathie Snow, www.disabilityisnatural.com; all rights reserved. Click here to request the PDF handout version of this article. Please do not republish in newsletters, blogs, websites, etc., without permission. Click here for more information and to complete the permission request at www.disabilityisnatural.com/about/terms-of-use. VISIT DISABILITY IS NATURAL FOR HELPFUL ARTICLES AND ONE-OF-A-KIND PRODUCTS More than 100 helpful, thought-provoking articles can be downloaded at the Disability is Natural website. Topics include People First Language, New Attitudes, Inclusive Education, Strategies for Success, and much more! Read them online or download your favorite articles to share with others as handouts. Click here to Explore new ways of thinking at www.disabilityisnatural.com! Visit the Disability is Natural store for a variety of one-of-a-kind products: the life-changing Disability is Natural book and DVD, as well as posters, note cards, bookmarks, magnets, and other goodies in over 25 bright, colorful designs that promote positive attitudes about disability! Click here to visit the online store at www.disabilityisnatural.com/shop. KATHIE'S PRESENTATIONS I'll be presenting in Missouri, Oregon, Texas, Oklahoma, Mississippi, Virginia, Kansas, land, Nebraska, and Delaware in the coming weeks and months, and presentations are pending in other states. I'd love to see you at any of those events, and I'd also love the opportunity to present for your organization! Click here to learn more about my presentations. Thanks for your interest in Disability is Natural You may forward this Email to others, or share the website address of this Email. Before using the contents of this E-Newsletter on websites/blogs, in newsletters, etc., click here to see Terms of Use. Remember to always Presume Competence in people with disabilities! Kathie Copyright 2010 Kathie Snow, , BraveHeart Press, www.disabilityisnatural.com To unsubscribe, hit reply and type " unsubscribe " in the subject line. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 FYI Ellen Ellen Garber Bronfeld egskb@... What's in a Name? To view this newsletter online, please click here to go to www.disabilityisnatural.com/newsletters/387-whats-in-a-name. Disability is Natural E-Newsletter February 2, 2010 WHAT'S IN A NAME? See the third-grade boy having fun, playing with his classmates at recess? Sometimes his pals give his wheelchair a push, other times he wheels himself. Their teacher, Mr. McHale, arrives to escort his students back to class, and he calls out to the boy, “Hey, Hollywood, let’s round ‘em up and move ‘em out!†Hollywood grins, and his eyes light up behind his sunglasses. The boy was very light sensitive, and the large, dark glasses shielded his eyes from the bright sun. He loved movies (and was quite a ham), and his teacher thought he looked cool—like a Hollywood star—in his oversized dark shades, so he nicknamed the boy Hollywood, and he named him well. Some might have referred to the boy—my son, —as the wheelchair boy, crippled kid, sped student, CP kid, or some other offensive descriptor. But to his teachers and classmates, he was Hollywood—he wore the name proudly—and what a difference the name made! What about you? Are you the PTA Prez, Yankee Bob, Hot Mamma, or maybe something more generic, like the sports nut, the scrap-booker, or the church lady? Maybe you have different descriptors: one with family, another at work, and a different one when you play. Maybe you named yourself or someone else named you, but whatever the descriptor, it’s most likely something relevant and meaningful that says something positive about you. (If others gave you a negative label, hopefully they don’t use it in front of you, and shame on them for using it at all.) Can we do the same for people with disabilities? Let’s use nicknames that tell us something positive, interesting, or unique about the person, instead of a medical diagnosis (CP kid, retarded, autistic, Down’s, etc.) or a pejorative characteristic (hair-puller, head-banger, foul-mouthed, aggressive, manipulative, etc.). What difference could this make in a person’s life? Imagine the outcome when Mr. McHale met with the fourth-grade teacher to discuss the next school year for my son, and he talked about Hollywood—instead of the CP kid or something else. Mr. McHale presented as a delightful, funny, and talented boy, so that’s how the fourth-grade teacher was introduced to him. His nickname and the positive characteristics shared were more important and more valuable, and they revealed more about him, than the diagnosis. As we change, nicknames change. Later, Hollywood was replaced by HeroMan because of my son’s love of super-heroes. Other affirmative descriptors followed (including College Man and Handsome). It’s critical to ensure that any nickname used is positive, and is also embraced by the person so named. During my own childhood, being called Motor Mouth was not pleasant. Is there a Hollywood in your life, or maybe a Superstar, Pizza Guy, Book Lover, Baseball Boy, or Pink Lady? What if we saw ’s love of wearing pink as a unique passion, instead of an inappropriate obsession? Don’t people without disabilities have unique passions that are valued and/or respected? Imagine sharing information about a child or adult with a disability that begins with a positive, interesting, respectful nickname at a team meeting, or when introducing the person to someone new. Imagine using that term on a regular basis with the person (“Hey, Hollywood!â€). The words used about us can have a powerful impact. People can evolve and grow in positive ways when positive terms are used, and they can rebel and react in negative ways when negative terms are used. What outcomes do we want? Copyright 2010 Kathie Snow, www.disabilityisnatural.com; all rights reserved. Click here to request the PDF handout version of this article. Please do not republish in newsletters, blogs, websites, etc., without permission. Click here for more information and to complete the permission request at www.disabilityisnatural.com/about/terms-of-use. VISIT DISABILITY IS NATURAL FOR HELPFUL ARTICLES AND ONE-OF-A-KIND PRODUCTS More than 100 helpful, thought-provoking articles can be downloaded at the Disability is Natural website. Topics include People First Language, New Attitudes, Inclusive Education, Strategies for Success, and much more! Read them online or download your favorite articles to share with others as handouts. Click here to Explore new ways of thinking at www.disabilityisnatural.com! Visit the Disability is Natural store for a variety of one-of-a-kind products: the life-changing Disability is Natural book and DVD, as well as posters, note cards, bookmarks, magnets, and other goodies in over 25 bright, colorful designs that promote positive attitudes about disability! Click here to visit the online store at www.disabilityisnatural.com/shop. KATHIE'S PRESENTATIONS I'll be presenting in Missouri, Oregon, Texas, Oklahoma, Mississippi, Virginia, Kansas, land, Nebraska, and Delaware in the coming weeks and months, and presentations are pending in other states. I'd love to see you at any of those events, and I'd also love the opportunity to present for your organization! Click here to learn more about my presentations. Thanks for your interest in Disability is Natural You may forward this Email to others, or share the website address of this Email. Before using the contents of this E-Newsletter on websites/blogs, in newsletters, etc., click here to see Terms of Use. Remember to always Presume Competence in people with disabilities! Kathie Copyright 2010 Kathie Snow, , BraveHeart Press, www.disabilityisnatural.com To unsubscribe, hit reply and type " unsubscribe " in the subject line. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 best wishes to you as you make your decision. If there is anyway I can help you please let me know. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 best wishes to you as you make your decision. If there is anyway I can help you please let me know. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 , an interesting idea. For me, I’d prefer to just be a health visitor and stand by the title that I qualified with in 1989. From: [mailto: ] On Behalf Of Coles Sent: 10 March 2012 11:20 Subject: What's in a name? If the NMC could become the NMPHC there could be registered public health visitors (reflecting the public health roots of health visiting rather than the nursing association). Those that are to be both nurses and health visitors for Regional differences in population need could be public health nurse visitors. Maybe too much compromise. What do others think? size=1 width="100%" noshade color="#a0a0a0" align=center> No virus found in this message. Checked by AVG - www.avg.com Version: 10.0.1424 / Virus Database: 2113/4862 - Release Date: 03/10/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 Me too although I qualified as a HV in 1982Best wishesMaggieSent from my BlackBerry® wireless deviceFrom: " Whittaker" <kwhittaker1@...>Sender: Date: Sat, 10 Mar 2012 14:18:33 -0000< >Reply Subject: RE: What's in a name? , an interesting idea. For me, I’dprefer to just be a health visitor and stand by the title that I qualified within 1989. From: [mailto: ] On Behalf Of ColesSent: 10 March 2012 11:20 Subject: What's in aname? If the NMC couldbecome the NMPHC there could be registered public health visitors (reflectingthe public health roots of health visiting rather than the nursingassociation). Those that are to be both nurses and health visitors for Regionaldifferences in population need could be public health nurse visitors. Maybe toomuch compromise. What do others think?size=1 width="100%" noshade color="#a0a0a0"align=center>No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1424 / Virus Database: 2113/4862 - Release Date: 03/10/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2012 Report Share Posted March 11, 2012 Dear SENATEKeep ranting!I share the sentiments expressed about changing the name health visitor. I have long cherished the independence as distinct from nursing. I actually suggested public health visitor, not nurse, except where regional or geographic needs require a duality of practice. This thread started with the possibility of NMC accountability changing. The idea of simplifying regulation may be more of a threat if it results in closure of the  SCPHN register with no alternative for the current public health elements. It came to mind that including public health in the title of the regulatory body e.g. NMPHC, may offer some protection for the health visiting profession – raising the profile rather than losing it altogether.Is the ideal of direct entry to health visiting and accountability through another regulatory body completely dead? From: [mailto: ] On Behalf Of Theresa BishopSent: 11 March 2012 17:39 Cc: Subject: Re: What's in a name? Hi I agree . I think we should stick to the name Health Visitor. It's the name the public know and trust. Best wishesTheresa Professional Lead for Health Visiting and Senior Project Manager for Warwickshire Early Implementer SiteSent from my iPhoneOn 10 Mar 2012, at 18:04, Cowley <sarahcowley183@...> wrote: I appreciate you trying to identify an acceptable identity that might suit everyone, , but if there were there to be the chance of an official change (which I don't think is on the cards), like , I would prefer to stick to the title 'health visitor.' I hate the long label 'specialist community public health nurse,' but don't think shortening it helps, it is still contested and confusing. Perhaps, instead, we should move the brackets, so that instead of 'specialist community public health nurse (Health Visitor ), it is Health Visitor ( specialist community public health nurse), until the next major reorganisation, when we could, hopefully, drop the brackets and temporary contested title. That formulation may work equally well for school and occupational health, too, although they seem happier to focus on the nursing bit. It might be different for the newly trained and students who are still immersed in their nursing identity, because I think it takes at least a couple of years to make the transition, but for me calling a health visitor 'nurse' is insulting - whatever kind of nurse it is - because it denies the importance of health visiting knowledge and the health visitor qualification. It is a bit like the Americans only acknowledging 'nurse-midwives,' who are far less autonomous than midwives in other countries. Somehow because there are so many nurses, the nursing profession (and I think it is 'profession' thing, not located with individual nurses) feel they have the right to impose their identity on everyone. It is all a bit imperialistic, and doesn't help improve practice, because educational standards are necessarily less appropriate (they are designed for a different occupation), and it creates confusion for staff and service users alike. I can think of all sorts of reasons to NOT call health visitors 'public health nurses,' but can't think of any reason to stop calling them health visitors, even as a shorthand form for a group of practitioners. I wish I could remember the name of the journalist who wrote that calling health visitors 'nurses' because it was more convenient than referring to 'nurses and health visitors' was a bit like the old-fashioned idea of calling women 'men,' because it was more convenient than writing 'men and women;' as if it makes no difference. Just as 'everyone knew' years ago that women didn't mind being bracketed together this way, because 'men and women are all part of mankind.' so there is this unjustified assumption that health visitors don't mind being called public health nurses, or community nurses, or some such thing, because 'they are all part of the family of nursing' (that pernicious phrase that lost us the health visiting register). Also, I can't think of any other occupation that is obliged to continually justify their name, and I am surprised that even now, when we finally have government backing and enthusiasm for health visiting, and when the profession is celebrating 150 years since it began, there still seems to be this push for relabelling. Sorry - rant over: you touched a nerve , which doesn't really have to do with what you wrote! best wishes On 10 Mar 2012, at 14:18, Whittaker wrote: , an interesting idea. For me, I’d prefer to just be a health visitor and stand by the title that I qualified with in 1989. From: [mailto: ] On Behalf Of ColesSent: 10 March 2012 11:20 Subject: What's in a name? If the NMC could become the NMPHC there could be registered public health visitors (reflecting the public health roots of health visiting rather than the nursing association). Those that are to be both nurses and health visitors for Regional differences in population need could be public health nurse visitors. Maybe too much compromise. What do others think?size=1 width= " 100% " noshade color= " #a0a0a0 " align=center> No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1424 / Virus Database: 2113/4862 - Release Date: 03/10/12 Cowleysarahcowley183@...http://myprofile.cos.com/S124021COn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2012 Report Share Posted March 12, 2012 Hi all Have been listening to this debate with interest but have had my head down writing a report. I am not convinced the idea of direct entry under another regulatory body  is dead – I think we just need to watch the recruitment and see what happens when the nurses dry up! Margaret From: [mailto: ] On Behalf Of ColesSent: 11 March 2012 19:31 Subject: RE: What's in a name? Dear SENATEKeep ranting!I share the sentiments expressed about changing the name health visitor. I have long cherished the independence as distinct from nursing. I actually suggested public health visitor, not nurse, except where regional or geographic needs require a duality of practice. This thread started with the possibility of NMC accountability changing. The idea of simplifying regulation may be more of a threat if it results in closure of the SCPHN register with no alternative for the current public health elements. It came to mind that including public health in the title of the regulatory body e.g. NMPHC, may offer some protection for the health visiting profession – raising the profile rather than losing it altogether.Is the ideal of direct entry to health visiting and accountability through another regulatory body completely dead? From: [mailto: ] On Behalf Of Theresa BishopSent: 11 March 2012 17:39 Cc: Subject: Re: What's in a name? Hi I agree . I think we should stick to the name Health Visitor. It's the name the public know and trust. Best wishesTheresa Professional Lead for Health Visiting and Senior Project Manager for Warwickshire Early Implementer SiteSent from my iPhoneOn 10 Mar 2012, at 18:04, Cowley <sarahcowley183@...> wrote: I appreciate you trying to identify an acceptable identity that might suit everyone, , but if there were there to be the chance of an official change (which I don't think is on the cards), like , I would prefer to stick to the title 'health visitor.' I hate the long label 'specialist community public health nurse,' but don't think shortening it helps, it is still contested and confusing. Perhaps, instead, we should move the brackets, so that instead of 'specialist community public health nurse (Health Visitor ), it is Health Visitor ( specialist community public health nurse), until the next major reorganisation, when we could, hopefully, drop the brackets and temporary contested title. That formulation may work equally well for school and occupational health, too, although they seem happier to focus on the nursing bit. It might be different for the newly trained and students who are still immersed in their nursing identity, because I think it takes at least a couple of years to make the transition, but for me calling a health visitor 'nurse' is insulting - whatever kind of nurse it is - because it denies the importance of health visiting knowledge and the health visitor qualification. It is a bit like the Americans only acknowledging 'nurse-midwives,' who are far less autonomous than midwives in other countries. Somehow because there are so many nurses, the nursing profession (and I think it is 'profession' thing, not located with individual nurses) feel they have the right to impose their identity on everyone. It is all a bit imperialistic, and doesn't help improve practice, because educational standards are necessarily less appropriate (they are designed for a different occupation), and it creates confusion for staff and service users alike. I can think of all sorts of reasons to NOT call health visitors 'public health nurses,' but can't think of any reason to stop calling them health visitors, even as a shorthand form for a group of practitioners. I wish I could remember the name of the journalist who wrote that calling health visitors 'nurses' because it was more convenient than referring to 'nurses and health visitors' was a bit like the old-fashioned idea of calling women 'men,' because it was more convenient than writing 'men and women;' as if it makes no difference. Just as 'everyone knew' years ago that women didn't mind being bracketed together this way, because 'men and women are all part of mankind.' so there is this unjustified assumption that health visitors don't mind being called public health nurses, or community nurses, or some such thing, because 'they are all part of the family of nursing' (that pernicious phrase that lost us the health visiting register). Also, I can't think of any other occupation that is obliged to continually justify their name, and I am surprised that even now, when we finally have government backing and enthusiasm for health visiting, and when the profession is celebrating 150 years since it began, there still seems to be this push for relabelling. Sorry - rant over: you touched a nerve , which doesn't really have to do with what you wrote! best wishes On 10 Mar 2012, at 14:18, Whittaker wrote: , an interesting idea. For me, I’d prefer to just be a health visitor and stand by the title that I qualified with in 1989. From: [mailto: ] On Behalf Of ColesSent: 10 March 2012 11:20 Subject: What's in a name? If the NMC could become the NMPHC there could be registered public health visitors (reflecting the public health roots of health visiting rather than the nursing association). Those that are to be both nurses and health visitors for Regional differences in population need could be public health nurse visitors. Maybe too much compromise. What do others think?size=1 width= " 100% " noshade color= " #a0a0a0 " align=center> No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1424 / Virus Database: 2113/4862 - Release Date: 03/10/12 Cowleysarahcowley183@...http://myprofile.cos.com/S124021COn Quote Link to comment Share on other sites More sharing options...
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