Re: Colchicine for a 20mos old & Other Questions

[Guest guest]

Colchcine has been given for decades. The most common issue is stomach

upset,cramping. Who did you see that was from NIH????? I have been going to nih

since 02

[Guest guest]

Colchcine has been given for decades. The most common issue is stomach

upset,cramping. Who did you see that was from NIH????? I have been going to nih

since 02

[Guest guest]

,

My mom takes Cholchicine for FMF. I haven't heard of using that medication for

the other PFS's. But of coarse...I'm not a doctor. Cheri

[Guest guest]

,

My mom takes Cholchicine for FMF. I haven't heard of using that medication for

the other PFS's. But of coarse...I'm not a doctor. Cheri

[Guest guest]

Hi there. My son started colchicine two and a half months ago. and I was

freaked out about the drug. But it seems to have slowed down the fever syndrome.

we even had a two month break, sense birth for 13 years it has been ever two to

three weeks so we were in heaven. My son had no problem adjusting to the

drug. The only problem is his tiredness. did they start slow on the drug. my

son started on a half pill twice a day for a week then a whole pill in the

morning and a half in the evening for a week then one pill twice a day. if you

go

into the fmf group at groups they are experts on the pill. there are

very young kids taking colchicine. so maybe you could ask them. good luck char

**************

Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Our rheumatologist also said that colchocine was for FMF but if Cimeditine did

not work that she would try that drug (and my daughter has )...so, i guess

it depends on the doctor. But, I was told it was not a dangerous drug.

Good Luck...and I pray it works!

Fern.

[Guest guest]

Our rheumatologist also said that colchocine was for FMF but if Cimeditine did

not work that she would try that drug (and my daughter has )...so, i guess

it depends on the doctor. But, I was told it was not a dangerous drug.

Good Luck...and I pray it works!

Fern.

[Guest guest]

Char-

Thanks for the tip on going to the FMF group-great idea.

You've been dealing with this for 13 years and no break until now?

That blows my mind and scares the heck out of me!

You mentioned the tierdness...is this effecting his iron levels?

Have you been instructed to give him a supplement? After reading

abut Colchicine, I am VERY suprised the doc did not reccommend an

iron supplement in conjunction for my son and did not mention

monitoring of his kidneys (as the warnings direct).

Thanks,

[Guest guest]

hi there . colchicine works on a cellular level. it takes the

inflammatory cells and stops them from binding together so until his body is

used to

it the dr. said he will be tired. he just had blood work Thursday last week

and i guess all is well right now. he gets the protein in his urine monitored

every time he goes to the specialist. so yes they do keep a close watch on the

colchicine in the body. i myself am worried that they started the colchicine

to late, from what I have read that people who may have fmf and don't get the

colchicine started early in life they have kidney problems by thirty. And

even if they still have episodes during the time they are taking the colchicine

its stopping the proteins from going to the major organs. so it's a good thing.

Maybe with you getting started now you will have a much needed rest. Your

little one may take to it like water and all will be well take care and good

luck with your decision char.

**************

Start the year off right. Easy ways

to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Hi ,

was on colchicine for a few months. For us, it worked

better at getting rid of her fevers than the cimitidine. She was in a

really bad fever cycle and the cochicine really seemed to break her

out of it.

We probably would have continued with it but a side effect of

colchicine is neutropenia - something MC is prone to anyway.

She had no problems adjusting to the medication. I too was worried

about putting her on it. My doctor never mentioned monitoring her

labs either...

Good luck!

Micah