RE: Re: Major Lurker

[Guest guest]

Yes you are right. Believe me I put up with a lot of side effects before I

switched. It got so I could not even exist. As I said my QOL was terrible.

But I did try and my Dr. tried.

But when it is too much---quit and go on to something else.

Sharon

_____

From: [mailto: ] On Behalf Of

suzzienovember

Sent: Sunday, April 26, 2009 11:25 AM

Subject: [ ] Re: Major Lurker

Hi: I was just reading some of the responses, and the only thing that

I can say is that I have been fortunate enough that the Gleevec has worked

for me since Oct. of 2000, as it did for many others. The only thing that I

have said, is if you get side effects and can live with them do not switch

to another drug until you have no other option.

Some have severe side effects that they just cannot tolerate, and others I

have seen just do not want to give it a chance. They get a cramp or

something, and they want to switch right away.

Its Leukemia, not a head cold. If you have something that is working for you

and you are a little inconvenienced with the side effects where it has

changed your lifestyle, but are in remission or

getting close to remission what more can you ask for.

I have changed my way of living in a lot of ways from the way I feel, but I

would not have it any other way. I was diagnosed a week

before the holidays in December of 1998, and thought this is it I will

never see my family again for another holiday. I am heading for Holiday

number 11, and plan to enjoy every minute of it.

I hope this helped someone.

[Guest guest]

It sure helped me! Thank you, Suzzie.

From: suzzienovember@...

Date: Sun, 26 Apr 2009 18:24:31 +0000

Subject: [ ] Re: Major Lurker

Hi: I was just reading some of the responses, and the only thing that

I can say is that I have been fortunate enough that the Gleevec has worked for

me since Oct. of 2000, as it did for many others. The only thing that I have

said, is if you get side effects and can live with them do not switch to another

drug until you have no other option.

Some have severe side effects that they just cannot tolerate, and others I

have seen just do not want to give it a chance. They get a cramp or something,

and they want to switch right away.

Its Leukemia, not a head cold. If you have something that is working for

you and you are a little inconvenienced with the side effects where it has

changed your lifestyle, but are in remission or

getting close to remission what more can you ask for.

I have changed my way of living in a lot of ways from the way I feel, but I

would not have it any other way. I was diagnosed a week

before the holidays in December of 1998, and thought this is it I will

never see my family again for another holiday. I am heading for Holiday number

11, and plan to enjoy every minute of it.

I hope this helped someone.

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