Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hello My name is nne and I live in West Hartford, CT with my husband and our two kids Madeline(9) and (6). When Maddy was about 9 months old, she started to spike high temps (104.9 was the highest) which at first we thought was a reaction to teething. The pediatrician would tell us that she just had an overly reactive immune system and that this was normal for her. We would often bring her in for a strep test which most times would be negative. I can't tell you how many times we heard " It's just a virus. She'll be fine in a couple of days " ! She would seem to react with a fever to a lot of things like mosquito bites (which would get huge), too much sun, a soccer injury, etc. The last couple of years have been the worst. She has missed so much school! Her fevers are accompanied by severe stomach pains, large canker sores, joint pain and a sore throat at times. We have ruled out RA and other auto immune diseases. We have not done any genetic testing. We were fortunate to see Dr. Henry Feder at the CT Children's Medical Center last month where she was (FINALLY) diagnosed with . She started the Prednisone last cycle and her fever disappeared in 2 hours. I am aware that this decreases the time in between episodes but I am hopeful that once we start the cimetidine, things will stop. I don't know why we waited so long to find an answer. We just thought her body over-reacted to things.I would appreciate any input. I am glad to know that there are so many others out there who have had to deal with the same things we have! Thank you! nne Quote Link to comment Share on other sites More sharing options...
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