Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 Hi , What wonderful news on all fronts! Perhaps Tom will take note of Adi's success and really apply himself to the CBT? We're doing pretty well here, too. Life has really normalized since our world fell apart last Spring now that Kelsey's OCD is mostly gone. I still marvel that behavioral therapy can create such long-lasting changes in the brain (and we know it's the CBT because we didn't end up using meds!) Before OCD, I thought about therapy as " talk therapy " which allowed you to vent but didn't actually " fix " anything. Kelsey's making good strides in her social skills and with her shyness. She's working with Dr. Hat in play therapy now practicing these things while I wait outside. This is a big switch from when she wouldn't hardly talk with him during OCD therapy and I had to be the CBT therapist. It feels good (sometimes) to let someone besides me be so responsible for her therapy. I find it odd though, that her tummy aches have continued even though we got the bowel issues under control. They seem to be school-related as they were non-existent during the recent two week break and reappeared right when school started. It's funny because she's doing very well at school and seems happy there. I don't get it. I'm trying some homeopathy to see if it helps. While I don't seem much of her OCD these days, I am wondering about a new thing that's coming up that looks a little OCDish. At bedtime mostly she says, " I feel funny like something's not right or missing. " I think it's that feeling we all get: " I'm forgetting something. What is it? " but she doesn't want to go to sleep until she figures it out. Once she decided it was that she needed her bedtime tape on. Another time she decided she needed to eat half of her school lunch that I packed right after she'd had breakfast because she was still hungry. Has anyone else seen this? Take care, in San Diego Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 In a message dated 11/4/1999 3:24:13 PM Eastern Standard Time, ChrisRoman@... writes: Hi We're doing pretty well here, too. Life has really normalized since our world fell apart last Spring now that Kelsey's OCD is mostly gone. I still marvel that behavioral therapy can create such long-lasting changes in the brain (and we know it's the CBT because we didn't end up using meds!) wrote: That's great news! I did CBT myself and it really did help on many fronts. Didn't conquer all the demons but it sure gave me the tools to gain better control of my OCD. Before OCD, I thought about therapy as " talk therapy " which allowed you to vent but didn't actually " fix " anything. wrote: I'm a huge fan of cognitive therapy, as opposed to pyschoanalysis or psychotherapy becasue with cognitive therapy (and it can be had for depression as well as OCD) a patient walks out with tools to help knock back the OCD or depression...gives you skills you can take with you through life~ Nice to hear it helped Kelsey to such an extent! :-) Kelsey's making good strides in her social skills and with her shyness. She's working with Dr. Hat in play therapy now practicing these things while I wait outside. This is a big switch from when she wouldn't hardly talk with him during OCD therapy and Ihad to be the CBT therapist. It feels good (sometimes) to let someone besides me be so responsible for her therapy. : again, great news---and yes, relieving that as the parent someone else can be in control even for a second! LOL I find it odd though, that her tummy aches have continued even though we got the bowel issues under control. They seem to be school-related as they were non-existent during the recent two week break and reappeared right when school started. It's funny because she's doing very well at school and seems happy there. I don't get it. I'm trying some homeopathy to see if it helps. : Could be some school anxiety in there--even if she's not outwardly showing it! While I don't seem much of her OCD these days, I am wondering about a new thing that's coming up that looks a little OCDish. At bedtime mostly she says, " I feel funny like something's not right or missing. " I think it's that feeling we all get: " I'm forgetting something. What is it? " but she doesn't want to go to sleep until she figures it out. Once she decided it was that she needed her bedtime tape on. Another time she decided she needed to eat half of her school lunch that I packed right after she'd had breakfast because she was still hungry. Has anyone else seen this? : Hmmm,. yes, I have....often with OCD once o/c is replaced by another--the bedtime ritual thing " forgetting something " is really just a checking compulsion, IMHO...And eating her lunch right after breakfast ... again a new expression that " :something doesn;t feel right? " This is pretty common, I'm told...once we manage to beat back some o/c's others may creep in. In my CBT program, we were warned about this and told to be on the look out because we all know how insidious OCD is...and it's difficult to wrap your mind around it some time. I find I have replaced some of the more significant o/c behaviours I had with less significant and troublesome ones---so at the moment, I'm again using my " CBT tools " to gain better control of them as well Take good care, In southern Ontario Take care, in San Diego >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Hi neighbor! (well almost right?!) What incredible news!!! Yeah !!!!!!!!!! I remember when Tanner first started sentences too and it's the most wonderful feeling in the world. It's so funny because I had to find old footage of Tanner from before any EFAs for the one documentary being shot this Saturday (nothing like waiting till last minute) -and so far the closet I found is Tanner graduating from Early Intervention (...remember I video taped that?!!) In some of the later shots Tanner is talking to me - and now I can't make out what he was saying -but in the video -back then I always knew exactly what he was saying and responded by making him repeat each word separate because of course he would break down in sentences (and I'm watching this thinking " how did I know that's what he was saying?! " ) Watching some of that footage really reminds me much more of how far Tanner came on the EFAs with great therapy in such a short time. Of course right after I watched it and then saw Tanner I went up to him and gave him the biggest hug and kiss. I know was on ProEFA since the Holidays or so -is he still? If so -make sure you take lots of video footage because the changes are fast, and down the road perhaps nobody is going to believe he's apraxic either -that's what happened to Tanner after a few years on them. I spoke to Dr. Agin about this since Tanner is not the only one -and we speculated that the EFAs are maybe somehow able to rewire something neurologically -repair something somehow. Hey by the way if you are interested I have a car bed out in my barn that I could give to you. (and no Rhonda it's not Coco or Jacque's) It's the kind of bed frame they have at Toys R Us that looks like a car. Call me and let me know -it would be good to see someone else enjoy it -my boys loved it but outgrew it. And maybe will love it too if he fits in it!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Hi : So glad you posted about , and that is great that she is getting out of the hospital. Her counts did come down. It will take time, but she will continue to do better. Just being out of the hospital makes anyone feel better and more positive. Keep in touch with everyone, and let get on to the group when she feels up to it. I think it will make her feel good to see how people have responded to treatment. God Bless You and Your Family Suzzie Quote Link to comment Share on other sites More sharing options...
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