Guest guest Posted June 13, 1999 Report Share Posted June 13, 1999 Walter Payton does, indeed, have PSC. He is awaiting a liver transplant through Mayo's. Put his name into your search engine and there are articles about him and the added awareness of the need for donors. He is very well known in the Chicago area as a football player for those of you, like me, who are not 'into' sports very much. GG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 In a message dated 7/15/00 4:13:36 PM Central Daylight Time, egroups writes: << Jennie, Ok, as I understand it, the way it works is you go through this organization that works with the celebrities and they contact the celebrities agents etc etc. Ed, my father's friend, showed my a Time magazine article about it, with his daughters photo in it. I photocopied it, finding it is another matter >> I think this is another big area where the CFIDS Ass. of Amer. is letting us down. Their most recent report, I believe, showed income of $1.7 million. Surely, they could get a celebrity for $200,000 or so. Since the CAA has stopped funding MOST research and has concentrated on awareness and fundraising, it would seem logical for them to get a celebrity. They could even stop paying the Washington, DC lobbyist they have. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Dear Bob, You can never tell, your brief encounter with celebrity may have opened someone's eyes and ears to what is going on in the real CML world from people who experience it every day. That is a little on the amusing side about the 96% reporting side effects on a placebo. I am in full agreement with you that we need to know what it going on, but it seems encumbent upon us to find out and tell the doctors. LOL Take care, Bob, you are a national treasure. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
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