Re: Dentist Visit

[Guest guest]

In a message dated 9/11/01 8:57:36 PM Central Daylight Time, esmith0827@... writes:

Subj: Dentist Visit

Date: 9/11/01 8:57:36 PM Central Daylight Time

From: esmith0827@...

Reply-to: Autism_in_Girls

Autism_in_Girls

I'm new to the chat board and I'm looking for a little help and information. I will soon take my 4 year old PPD NOF (Autist) daughter to the dentist. What would be the best approach to this big event? Also, I am starting the GFCF diet and wondering if anyone can suggest where I can get some of the items needed or do I have to order on-

line. I live in the Chicago Area.

Do you know what a social story is? That is when you explain in detail what will happen. Say something like: Today we are going to the dentist. When we get to the dentist's office, you may have to sit in the waiting room and wait for a while. When it is your turn, the dentist will call you to sit in his chair so he can look at your teeth....Make it as simple as you need; if this is too wordy, go simpler and tell your child she is going to the dentist. He will look at her teeth, brush her teeth, take pictures of her teeth (if this is needed), she will get a treat or balloon when she is finished (if they do this).

Be as calm and as reassuring as you can. Take her favorite book or object with you and let her hold it throughout the procedure if possible. I told my daughter's dentist she liked Barney and she sang the only Barney song she knew over and over!

Good luck!

Vickie

[Guest guest]

Hi there, I'm cheryl, i live in Australia, have 3 children, middle child is

HFA and almost 7. I am also a dental assistant. With my daughter, the best

thing was talk to her about it, because your child is only 4, another

approach would be if you can find a book or even a video showing what they

do at the dentist. make the first visit a check-up only. If you do have a

bad experience with your child, [ hopefully not!!], many mums, whether their

child is autistic or not try something to calm them down and relax them, but

you maybe surprised and your child, like mine might actually love the

dentist. mine just thinks it's great, especially the chair and the

sunglasses, and the sticker afterwards!!!! all the best, cheryl

[Guest guest]

great advice, yes, all these things help, and you will find most dentists will go along with just about anything to make the visit a pleasant one. cheryl

[Guest guest]

Also, if you're going gfcf, you'll want to work with the dentist beforehand

to find out what they use for the cleaning, etc.

(6 yrs old, HFA) is gfcf plus a lot of other stuff so we bring our

tube of Crest toothpaste with us when we go and they use only that for her.

It may not work as good as the polishing paste they use, but we know that

it's something she can tolerate.

Joy Insinna

Director

Office: (716) 240-7483

Fax: (716) 295-4890

Element K

'the knowledge catalyst'

www.elementk.com

Vpar3auadv@ao

l.com Autism_in_Girls

cc:

09/11/01

10:23 PM Subject: Re:

Dentist Visit

Please

respond to

Autism_in_Gir

ls

In a message dated 9/11/01 8:57:36 PM Central Daylight Time,

esmith0827@... writes:

Subj: Dentist Visit

Date: 9/11/01 8:57:36 PM Central Daylight Time

From: esmith0827@...

Reply-to: Autism_in_Girls

Autism_in_Girls

I'm new to the chat board and I'm looking for a little help and

information. I will soon take my 4 year old PPD NOF (Autist) daughter

to the dentist. What would be the best approach to this big event?

Also, I am starting the GFCF diet and wondering if anyone can suggest

where I can get some of the items needed or do I have to order on-

line. I live in the Chicago Area.

Do you know what a social story is? That is when you explain in detail

what

will happen. Say something like: Today we are going to the dentist. When

we

get to the dentist's office, you may have to sit in the waiting room and

wait

for a while. When it is your turn, the dentist will call you to sit in his

chair so he can look at your teeth....Make it as simple as you need; if

this

is too wordy, go simpler and tell your child she is going to the dentist.

He

will look at her teeth, brush her teeth, take pictures of her teeth (if

this

is needed), she will get a treat or balloon when she is finished (if they

do

this).

Be as calm and as reassuring as you can. Take her favorite book or object

with you and let her hold it throughout the procedure if possible. I told

my

daughter's dentist she liked Barney and she sang the only Barney song she

knew over and over!

Good luck!

Vickie

[Guest guest]

Dear Loriann,

Thanks for sharing 's wonderful dentist appointment.

Congratulations to both of you for a well deserved pleasant appointment.

Did you give him a special treat afterwards? also had a dentist

appointment this past week. She was also an angel, but she usually is, so

it was nothing new really. Oh, yea, last time she bit the hygienist's

finger, but they wear such heavy gloves, I don't think it was too bad. This

time Steph sat through a cleaning, x-rays & the dentist's examination. He

told me that Steph will probably not get any more teeth. What we see is

what we get! 2 1/2 yrs. ago Steph had dental surgery to remove some baby

teeth that were not falling out on their own (the teeth grinding she does

had ground these baby teeth right in so that they couldn't loosen & fall

out). Anyway, it's on the upper jaw beside her 2 front teeth that they

pulled 2 teeth on one side & 1 on the other. They told me they were doing

this to make room for the permanent teeth underneath. Well, the x-rays

show that there are no permanent teeth behind the ones they pulled!!! This

seems kind of strange to me. Has anyone else experienced something similar?

The surgery was done at the Hospital for Sick Children in Toronto (world

renowned hosp.), so I feel pretty sure that they took those baby teeth out

for a good reason! It's a bit of a mystery to me.

[Guest guest]

I've been told that a lot of DS kids have, shall we say unusual, teeth. They

come in out of order, sometimes they don't come in at all. has been

x-rayed before and all his teeth are there. But the grinding thing, 's

baby molars aren't falling out until the new ones push them out. He ground his

teeth A LOT when he was 3 to 5 years old. Maybe that's the reason?

As for a treat, I let him have the rest of the day off from school. He REALLY

liked that one.

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

[Guest guest]

Hi ,

had a dentist appointment a couple of weeks ago. The Dentist pulled

seven baby teeth to make room for adult teeth that they could see in the

x-ray. He left one baby tooth because he didn't see another tooth on top of

it in the x-ray. lost a few baby teeth on his own when he was about

6 or 7 years. After that, I think he only lost one more that didn't have to

be pulled. He has been a while between dental appointments because they have

to knock him out to do the work. When he was smaller, the dental staff [at

Children's Hospital] would wrap him up on a papoose board and block his mouth

open. He didn't mind; in fact, he seemed to enjoy being " wrapped up " . Now

that he's bigger, they won't even consider working on him until he is asleep.

He bites like an alligator and won't hold still for x-rays. LOL This last

time, we went to a private Pediatric Dentist who works with a Pediatric

Anesthesiologist on Saturdays to do this work. They are both associated with

UCLA so we were more at ease with the procedure. They were wonderful with

and made absolutely sure that it wasn't traumatic for him. Even so,

I wish we could take him to a Dentist and not have to do the anesthesia thing.

Terry

[Guest guest]

In a message dated 10/28/01 2:32:31 PM Eastern Standard Time,

Imaddenmom@... writes:

> had a dentist appointment a couple of weeks ago. The Dentist pulled

> seven baby teeth to make room for adult teeth that they could see in the

> x-ray. He left one baby tooth because he didn't see another tooth on top

> of

> it in the x-ray. lost a few baby teeth on his own when he was

> about

> 6 or 7 years. After that, I think he only lost one more that didn't have

> to

>

Would you mind humoring me here? This teeth thing. The baby teeth don't fall

out by themselves? The dentist has to pull them? This is making me nervous?

Both my kids baby teeth came in very late. If you don't pull the baby teeth

out what happens to the adult teeth coming in? Do they get impacted or

something? or in some cases sharks teeth? What would happen if you didn't

pull the baby teeth out? And if you pull the baby teeth out does that give

room for the next teeth or will you still have to have braces to fix them

later? So either way our kids may need orthodontic work for their teeth when

they are older? I realize everyone's teeth are different but I'm interested

in why this needs to be done. Obviously I'd like to skip it but I do want my

kids to have some teeth later in life.

My husband had a couple of baby teeth that never came out so it runs in the

family. Can you help me out here? I don't even want to think about x-rays.

Can't they just lie down and x-ray the whole head without putting those

things in your mouth. They hurt! I appreciate any answers I can get and I

realize your not all dentists. Extremely curious. Thanks.

Diane

[Guest guest]

Hi Diane,

In 's case, some of his adult teeth came in behind the baby teeth

which ultimately would have given him two rows of teeth! Not good! I don't

know why his baby teeth didn't all come out on their own. I kind of thought

that maybe it had to do with his medications, but since some of the other

kids on the list have had the same problem, maybe that's not the reason.

Terry

[Guest guest]

,

Ian Houdini saw the dentist last week. He has one permanent tooth in

the top middle that has come in all the way very sideways and the one

next to it isn't even loose yet. The dentist told me to make an

appointment with an orthodontist so we can plan a strategy for

pulling teeth to make room for permanent teeth. Since he does not

have room on his jaw for all the teeth he is expected to eventually

get, he will not only need to have some baby teeth pulled to allow

room but will also need some permanent teeth removed. That is

probably similar to the plan for Steph. She is probably lucky that

the permanent teeth just don't exist, otherwise, she might have to

have them pulled anyway.I'm only guessing, of course but this could

be the explaination for your " mystery " .

Ian was also very good for the dentist. He let him look in his mouth

and poke around. Fortunately he had no significant buildup and didn't

need his teeth cleaned. He also had no cavities. Ian has never

cooperated for a checkup before (last visit was a year ago). I was

very proud of him. He is definately not ready for filling cavities

without anesthesia, but he may be able to get a cleaning without it

next time he needs one. Ian's only dental work ever was under

anesthesia a year and a half ago. Cost us $1300 after insurance

covered their part!

Janice

2 1/2 yrs. ago Steph had dental surgery to remove some baby

> teeth that were not falling out on their own (the teeth grinding

she does

> had ground these baby teeth right in so that they couldn't loosen &

fall

> out). Anyway, it's on the upper jaw beside her 2 front teeth that

they

> pulled 2 teeth on one side & 1 on the other. They told me they

were doing

> this to make room for the permanent teeth underneath. Well, the x-

rays

> show that there are no permanent teeth behind the ones they

pulled!!! This

> seems kind of strange to me. Has anyone else experienced something

similar?

> The surgery was done at the Hospital for Sick Children in Toronto

(world

> renowned hosp.), so I feel pretty sure that they took those baby

teeth out

> for a good reason! It's a bit of a mystery to me.

>

>

[Guest guest]

has had a couple baby teeth that were pushed out by permanent ones. Then

he had one baby tooth that was really stubborn and the permanent tooth was

coming in in the roof of his mouth. They had to pull it and the one next to it

to make room for the new one. When the baby teeth were gone, he actually moved

right in place. I didn't think it would, but it did.

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

[Guest guest]

didnt get any teeath in at all until after he

turne d a year old, then its been constant grinding

since. He is also developing an overbite? his bottom

jaw overlaps the top often ive noticed, and he needs

his incisors? removed they haved turned some and his

teeth are getting all crowded. But at least no

cavaties,lol. shawna.

=====

shawna

__________________________________________________

[Guest guest]

's baby teeth wouldnt fall out he had to go in

every time, his adult tooth would be growing behind

the baby tooth, so i would take him in and the dentist

would just pull it in about a second,lol nathan didnt

even know what happend, and then the adult tooth

eventulally comes down to its spot with the tongue

etc, as the dentist said it would, no probs. shawna.

=====

shawna

__________________________________________________

[Guest guest]

Hi Cheri,

I think we have run the gamut of dentists that do and don't see kids " with

special needs " . LOL In one respect, 's cognitive level helps weed

them out pretty fast. He is almost 15 now, chronologically, and at about 12

months cognitively. The first time we took him to the dentist, we took him

to the Dental Clinic at Childrens Hospital in LA. They work with kids like

all the time and are fine with them. When he was little, they

wrapped him up on a papoose board to restrain his hands and blocked his mouth

open. As he got bigger, they decided that he needed to be under a general

anesthetic to have a detailed exam and/or work done. I started looking

around to see if there were other dentists who might see him without using

the anesthetic. One, a private pediatric dentist whose advertisement said

that she worked with children with special needs, sort of looked in his mouth

when he was about 6 and said there was nothing she could do; he was too

severe. Then she presented us with a nice bill! Another one, who was not a

pediatric dentist, said he could pull a couple of his baby teeth that weren't

coming out on their own. They were very loose and the adult teeth were

coming in behind them, but we just couldn't get them out. He did pull them

and made an attempt at cleaning 's teeth but didn't get very far.

Back to CHLA! LOL Earlier this year, I called a local dentist office to see

if they could work with and they said yes and made an appointment.

Then the clerk called me back and said the dentist said he couldn't work with

him after all. I asked her if she knew of a dentist within a 50 mile radius

that could take care of him. She gave me a name and when I called the

number, I found out that the dentist had retired 2 years ago! LOL BUT...the

dentist that bought the practice is a pediatric dentist who trained at UCLA

and is very familiar with kids like . We saw her and she said she

would have no problem seeing him on a regular basis. She did say that,

initially, he would need anesthesia, so they could get full mouth x-rays,

pull those baby teeth (7 of them), and clean his teeth really good.

is orally defensive..that is, he can't stand having someone put something in

his mouth...HE puts EVERYTHING in his mouth; but no one else can! LOL

Anyway, we did it the way she suggested and it went wonderfully. He didn't

even have any cavities! LOL Unless he was to need some extensive work of

some kind, I don't expect that we will have to do the anesthesia thing again.

All I can suggest is that you be up front with the dentists that you call so

you don't waste your time by going to their office and having them tell you

they can't or won't do the work. I never expected to find a private dentist

that would work for us with ...I figured we were doomed to do the

Clinic thing forever. But we are proof that there are private dentists out

there that can and will take care of our kids!

Terry

[Guest guest]

Hi,

I know some people have asked ? about the gfcf diet...I will answer shortly,

things have been a bit hectic....nothing new to anybody, huh?

Have a BIG question...what have you looked for in choosing a dentist for your

child? Nick has always seen our family dentist with minimal cooperation...we

were referred to pediatric dentist specializing in children with

disabilities...we went today and I am not sure I felt comfortable...Nick was

very cooperative until he was asked to open his mouth...what do your kids'

dentists do when they can't convince them to cooperate?

Nick has MAJOR oral sensitivity issues and we are getting ready to do this big

eating program with him which we expect he will resist...do we add dental stuff

on top of that?

He definitely needs dental work! Any answers out there or suggestions?

Thanks!

Cheri

Re: Re: Dentist Visit

I've been told that a lot of DS kids have, shall we say unusual, teeth. They

come in out of order, sometimes they don't come in at all. has been

x-rayed before and all his teeth are there. But the grinding thing, 's

baby molars aren't falling out until the new ones push them out. He ground his

teeth A LOT when he was 3 to 5 years old. Maybe that's the reason?

As for a treat, I let him have the rest of the day off from school. He REALLY

liked that one.

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

[Guest guest]

what we do is see our usual family dentist fo rreg

normal stuff then for anything major or concerns that

deal hishandicap and dental we see his specialty

dentis at the hospital school in iowa city wit the

rest of the crew, they are also very nice and hlepful

in ways the usual dentist isnt,when it comes to

disabilities and teeth. shawna.

=====

shawna

__________________________________________________

[Guest guest]

I am still checking out different cal/mag supps because the pills

she takes now are so HUGE and have to be cut in half. Take Care! Becca

Hi Becca,

I am new to the group (just joined today) but might have a good solution to

your cal/mag problem. Have you heard of Market America's Isotonix? It is a

line of vitamin & nutritional suppliments that are taken in an isotonic form.

What is isotonic form? The products are a powder that you mix with water

and then are automatically in the isotonic state...which means they require

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where a pill may or may not digest in the stomach and you may only get 20% of

the effects. A friend of mine's 10 yr old takes it every morning and says it

tastes great. It's sort of a sweet, creamy, citrus flavor....much better

than any pill! Let me know if you are interested in purchasing this and I

can get it in the mail to you this week.

Sincerely,

Tiffani

PS....below is a online brochure

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~

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[Guest guest]

> He said to make a paste out of baking soda (yuck)

and brush

> her teeth with it, if I see it again between cleanings.

Be careful of using baking soda too often, it is very abrasive and can

wear away the dental enamel.

Dana

[Guest guest]

Well, Rochelle visited the dentist today and got a cleaning. They pulled the

two lower teeth that were pushing out. There are two teeth behind the front

bottom row coming in. They said I could wait to see if they wiggled out but I

was there and didn't want to go back. She did ok until they papoosed her for

the local. I thought he was going to get her tongue it was moving in and out

alot as she cried They gave her 5 shots in the gums. She pretty much cried

the whole time but it was pretty quick. The gums did not bleed to much. She

did not try to bite anyone including me. I was a little worried. She did not

bite her lips thank goodness. By the time we were in the car she was fine.

She had her balloon and its over. Whewwwwwwww Going to the mall now to just

hang out.

Diane

[Guest guest]

Awwww, poor Rochelle, AND Mommy! Glad it's over for you both, Diane. Do you

think the next visit will be easier, or harder? And on which one of you?!?!

Gail :-)

<< Well, Rochelle visited the dentist today and got a cleaning. They pulled

the

two lower teeth that were pushing out. There are two teeth behind the front

bottom row coming in. They said I could wait to see if they wiggled out but

I

was there and didn't want to go back. She did ok until they papoosed her for

the local. I thought he was going to get her tongue it was moving in and out

alot as she cried They gave her 5 shots in the gums. She pretty much cried

the whole time but it was pretty quick. The gums did not bleed to much. She

did not try to bite anyone including me. I was a little worried. She did not

bite her lips thank goodness. By the time we were in the car she was fine.

She had her balloon and its over. Whewwwwwwww Going to the mall now to just

hang out.

Diane >>

[Guest guest]

In a message dated 2/28/2003 3:37:12 PM Eastern Standard Time,

dben937342@... writes:

> By the time we were in the car she was fine.

> She had her balloon and its over. Whewwwwwwww Going to the mall now to just

>

> hang out.

> Diane

Good for you Diane!!!!! I always get myself so worked up over any doc

visits and typically they go so bad I end up trying to squeeze in a soak and

cry in the tub. But when they go well, a visit to the mall is a nice

reward!!!!!

Glad for you AND Rochelle that it's OVER!!!!

Donna

[Guest guest]

Boy-0-boy Donna! That sounds like a good visit to me. No tears and you got

the job done. Love the part of her pushing herself in the stroller! Seth

does that! He even stands up and walks with it still strapped to him! LOL

I've never taken Seth to the dentist. My dentist won't take him and the only

dentist in this area that takes austic kids has gotten bad reviews from

everyone I know. I have a friend trying it with her son next month, so I'll

see what she has to say. I just dread the thoughts of even trying. I'll end

up clawed to pieces, bitten and probably black and blue. Hey, we will be in

Phili around the 11th of June. Want to do breakfast, lunch or just meet at

the motel?

Gail :-)

<< UGH!!!!! The last two times it was just quick pulls of baby teeth, so

I

didn't even have to go back. But this time was the full check up. Took

5 of us to hold her down (n is off on spring break and was a HUGE

help). Surprisingly it wasn't too bad.......there was more calm time than

not. I think the only time she really tried to break free was when she

thought we might have our guard down and she could run for the hills....LOL

Not one tear shed, even though he pulled yet another tooth (her babies

just

don't seem to come out on their own). He's really great...he knows this

unique hold so she can't clamp down on his fingers and he sings to her and

talks in a singsong soothing voice and for the most part she was still.

She

liked the flouride part...;-) Certainly none the less for wear the second

it was over.....hopped in her stroller and tried to push herself out of the

office...LOLOL I had Bren take her out while I paid, so she could

understand she really was done...;-)

Ah....we're good for six months!!!!

Donna >>

[Guest guest]

In a message dated 4/24/2003 1:05:22 AM Eastern Standard Time,

smilinggail@... writes:

> I have a friend trying it with her son next month, so I'll

> see what she has to say. I just dread the thoughts of even trying. I'll

> end

> up clawed to pieces, bitten and probably black and blue.

Oh Gail, believe me, I am incredibly sore today!!!! I have a black and

blue mark on my side and my arms, neck and chest feel like they've been hit

by a truck....LOL I said to Duff when I got up this morning... " Geez, why am

I so sore " ...totally forgetting. Maddie of course, is just fine...;-) I

hope you can find a dentist. This guy is really good, but I know that some

people (like my SIL for example) wouldn't like him because he has a rule that

parents dont' go back. However, he NEEDS me back there....LOL We don't do

x-rays (be just too hard), but he does a thorough job otherwise. Our

regular dentist who does the rest of us would never touch Maddie either...he

just knows he wouldn't be able to do it.

<<Hey, we will be in

Phili around the 11th of June.  Want to do breakfast, lunch or just meet at

the motel?  >>

ABSOLUTELY!!!! Where are you staying?? Maybe you could come here??

Then I could actually cook for you....;-) I don't know your schedule or how

long you're going to be here, but I can do whatever works for you!!

Donna

[Guest guest]

> Wow, Donna. Sounds like Maddie did great! has only been to

the dentist once and her teeth looked so bad that we had to go to the

hospital and have 8 caps put on! I'm not looking forward to our next

check-up in July. We still need to hold her down every night for

toothbrushing. She hates the taste and feel of the toothpaste and

spends the rest of the bedtime routing trying to wipe out the inside

of her mouth. So, we've gone to brushing without the toothpaste. I

hope this is ok. I guess we'll see. If anyone has any great

suggustions, I'd love to hear them.

UGH!!!!! The last two times it was just quick pulls of baby

teeth, so I

> didn't even have to go back. But this time was the full check

up. Took

> 5 of us to hold her down (n is off on spring break and was a

HUGE

> help). Surprisingly it wasn't too bad.......there was more calm

time than

> not. I think the only time she really tried to break free was

when she

> thought we might have our guard down and she could run for the

hills....LOL

> Not one tear shed, even though he pulled yet another tooth (her

babies just

> don't seem to come out on their own). He's really great...he

knows this

> unique hold so she can't clamp down on his fingers and he sings to

her and

> talks in a singsong soothing voice and for the most part she was

still. She

> liked the flouride part...;-) Certainly none the less for wear

the second

> it was over.....hopped in her stroller and tried to push herself

out of the

> office...LOLOL I had Bren take her out while I paid, so she could

> understand she really was done...;-)

> Ah....we're good for six months!!!!

> Donna

>

>

>

[Guest guest]

In a message dated 4/24/03 1:53:05 PM Eastern Daylight Time, Duffey48@...

writes:

<< ABSOLUTELY!!!! Where are you staying?? Maybe you could come here??

Then I could actually cook for you....;-) I don't know your schedule or

how

long you're going to be here, but I can do whatever works for you!!

Donna >>

I don't know where we are staying yet. Just working on our return route from

vacation and Phili is on our route. Well, we would make it on our route if

it wasn't! LOL Not sure if we are spending the night in Phili or Hershey

yet, but probably Phili. The girls want it more than Hershey! LOL I want

another Gelati (sp)? I know we will be there on the 11th. Might be staying

over on the tenth into the 11th or the 11th into the 12th. How's that for a

straight answer? LOL Id like to stay where we stayed the time we all got

together. I know it was the Radisson, but not sure which one. What ever

works for you Donna is fine with me. I WANT to meet Miss Maddie! LOL Not

that your company isn't wonderful. LOL Let me know what works for you and

I'll plan around it. We are taking 4 days to drive back from Georgia, so I

can work anything out.

Gail :-)