emma

May 8, 2002

I haven't experienced it but it sounds like she is addicted to

gluten. Does she crave milk?

At 5/8/02 10:31 PM +0000, you wrote:

>hello to all.My daughter Emma was diagnosed with autism,at 2 years of

>age,and we have come to accept her illness as best we can.Sometimes

>feeling that she is happier than ourselves.Suddenly this year in jan

>2002,she began to hsve epileptic fits,as frightening as this was to

>us,we were assured that she was unaware of the experiences. Now

>however,Emma who was previously a very picky eater,now will eat full

>adult meals even will try to take extra from others plates.and will

>eat plain bread and krakawheat continualy unless checked.Has anyone

>else experienced this?PS she is aged 9,and has started puberty. thank

>you for reading this. from caring parents gerry and elaine

>

May 8, 2002

hi,

yes, it sounds like she is getting the peptide " high " from gluten.

this is what mine daughter LIVED on for the last few years.

she is also 9 yrs old now. starting about age 5 she stopped gaining weight.

she was 45 lbs. still this december (1 month prior to her 9th birthday) she

was still 45 lbs! she self limited her food intake to breads, apples,

chicken, green grapes, peaches, and pears and cheese.. as much bread and

cheese as she could get . ofcourse she woudl crave for milk in any form as

well but because son was showing milk intolerance early in life, we just

didnt have any milk in the house. we drink rice and soya milk.

in december started daughter on digestive enzymes from www.houstonni.com.

she went through some withdrawl symptoms for about 3 weeks and then started

eating several other foods.

since december she has gained 5 lbs and is now 50.5 pounds. (140 cm, and

22.8 kg) now that she is digesting the wheat properly with the help fo the

enzymes.

minna

" The Doctor of the future will give No Medicine, but will interest his

patients in the care of the human frame, in diet, and in the cause and

prevention of disease. " .-Attributed to Alva Edisonn

" Our lives begin to end the day we become silent about things that matter "

Dr. Luther King, Jr

emma

>

> hello to all.My daughter Emma was diagnosed with autism,at 2 years of

> age,and we have come to accept her illness as best we can.Sometimes

> feeling that she is happier than ourselves.Suddenly this year in jan

> 2002,she began to hsve epileptic fits,as frightening as this was to

> us,we were assured that she was unaware of the experiences. Now

> however,Emma who was previously a very picky eater,now will eat full

> adult meals even will try to take extra from others plates.and will

> eat plain bread and krakawheat continualy unless checked.Has anyone

> else experienced this?PS she is aged 9,and has started puberty. thank

> you for reading this. from caring parents gerry and elaine

>

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May 9, 2002

Hi Elaine

My daughter Bethany is very similar to this. She had sizures at 5

months but was seizure free until she was 8. Since then the seizures

have got worse she is now almost 11. She has had two particually bad

ones this year lasting 40 mins. She also goes through periods of non

stop eating like you say grabing food from others plates. I even

caught her eating solid vegetable fat from the deep fat fryer that

was in the cupboard. When she is in one of her excessive eating

peroids she will eat anything she can find. The doctors seem to

think that the seizures have returned because she has hit puberty and

that the eating could also be linked to it. It could also be that

the anticonvulsant medication that your daughter is on could be

making her more hungry as this can be a side effect of some of the

medications.

May 9, 2002

I thought I would join this thread since my daughter is in the earlier stage

you described with Bethany. is 4 1/2 and we were recently able to stop

her seizure medication because the seizures have subsided. We are concerned

that they will return and are gathering information about the second onset

of seizures in other cases.

also has eating " issues " and we are considering a GFCF diet because of

her slow weight gain and apparent inability to control her bowel movements.

Unlike they " typical " GFCF candidate does not appear to be " addicted "

to Gluten. Her eating binges cover a wide range of food from dirt to ice

cream to cinnamon rolls to chicken nuggets and hot dogs to rice, corn and

meat. Sometimes she eats almost nothing for days and will often go on

binges for days or weeks where she will only eat one or two different foods.

On the positive side, since she has been off of the seizure medicine she has

been making great progress. Her passive and active verbal skills are WAY up

and she is much more engaged with her surroundings and with others. One of

are greatest joys recently has been for her to come to someone else in the

family who is lying down, grab their hand and say loudly " GET UP! COME ON! "

so that she can play with someone else.

Jerry

Re: emma

> Hi Elaine

>

> My daughter Bethany is very similar to this. She had sizures at 5

> months but was seizure free until she was 8. Since then the seizures

> have got worse she is now almost 11. She has had two particually bad

> ones this year lasting 40 mins. She also goes through periods of non

> stop eating like you say grabing food from others plates. I even

> caught her eating solid vegetable fat from the deep fat fryer that

> was in the cupboard. When she is in one of her excessive eating

> peroids she will eat anything she can find. The doctors seem to

> think that the seizures have returned because she has hit puberty and

> that the eating could also be linked to it. It could also be that

> the anticonvulsant medication that your daughter is on could be

> making her more hungry as this can be a side effect of some of the

> medications.

>

May 9, 2002

hi,

i have a 10 year daughter who was diagnosed at 5 1/2

with autism and epilepsy, after years of having " fever

seizures " (as the doctors put it). she has been on

depakote for four years, as she had a breakthrough

seizure right at the two year mark when she was 8....

anyhow, she was going along fine, behavior (depakote

is a good mood stabilizer also), but this past year

from 9 1/2 to now, has been horrible for moods,

behavior, and she started having staring spells even

with the depakote. had to add a small amount of

risperdol, which has contributed to an enormous weight

gain.. puberty evidently reeks havoc on our girls,

it's a scary time for them for sure.... see this

article. don't know how valid, but someone

acknowledges seizures along with puberty in autistic

girls...

http://www.autism.org/seizures.html

cheers to you,

cw

--- Mandie Harrington <mandie@...> wrote:

> I haven't experienced it but it sounds like she is

> addicted to

> gluten. Does she crave milk?

>

> At 5/8/02 10:31 PM +0000, you wrote:

> >hello to all.My daughter Emma was diagnosed with

> autism,at 2 years of

> >age,and we have come to accept her illness as best

> we can.Sometimes

> >feeling that she is happier than ourselves.Suddenly

> this year in jan

> >2002,she began to hsve epileptic fits,as

> frightening as this was to

> >us,we were assured that she was unaware of the

> experiences. Now

> >however,Emma who was previously a very picky

> eater,now will eat full

> >adult meals even will try to take extra from others

> plates.and will

> >eat plain bread and krakawheat continualy unless

> checked.Has anyone

> >else experienced this?PS she is aged 9,and has

> started puberty. thank

> >you for reading this. from caring parents gerry and

> elaine

> >

May 9, 2002

hi ,

sometimes one thinks they are the only one going

through things, and so your response to Elaine lets me

know we are not alone. my poor has had such a

roller coaster year, and all the teachers and

neurologists want to say is that she has some personal

" issues " , since we just moved to our present home.

funny, i tell them, three years ago we moved cross

country and she never regressed to the levels i saw

earlier this school year. we had to try risperdol

along with her regular seizure medication, and that

exasperated the eating... 30 pounds in 4 months. she

was eating three lunches at school, and i found out

after our food account was being used up in one week

for a month. i asked the schools to limit her to

just regular lunch, and no extras, and they " couldn't "

do that. i would give her bag lunch, and she would

eat that and go to cafeteria, and they would give her

food on " credit " .. uhh! it's better now, but now we

have to do some weight watching, worried about

diabetes, and other complications. good luck to you,

crossed fingers always for me.

cw

--- novello50 <novello50@...> wrote:

> Hi Elaine

>

> My daughter Bethany is very similar to this. She

> had sizures at 5

> months but was seizure free until she was 8. Since

> then the seizures

> have got worse she is now almost 11. She has had

> two particually bad

> ones this year lasting 40 mins. She also goes

> through periods of non

> stop eating like you say grabing food from others

> plates. I even

> caught her eating solid vegetable fat from the deep

> fat fryer that

> was in the cupboard. When she is in one of her

> excessive eating

> peroids she will eat anything she can find. The

> doctors seem to

> think that the seizures have returned because she

> has hit puberty and

> that the eating could also be linked to it. It

> could also be that

> the anticonvulsant medication that your daughter is

> on could be

> making her more hungry as this can be a side effect

> of some of the

> medications.

>

__________________________________________________

May 9, 2002

what type of seizure meds was she on to cause her to be less verbal? My 12 yr

old daughter takes depakote for her seizures, has for three years, but it didn't

cause any regression that I can tell. As a matter of fact she seems to tolerate

the meds really well.