Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Hi , You should try contacting the drug company who makes Kineret. Sometimes they can help. Also try contacting someone (possibly a discharge planner) at a hospital. They deal with these sort of things often. You can always try to get the doctor to fight with the insurance company on your behalf. Hope things work out. </HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Hi , You should try contacting the drug company who makes Kineret. Sometimes they can help. Also try contacting someone (possibly a discharge planner) at a hospital. They deal with these sort of things often. You can always try to get the doctor to fight with the insurance company on your behalf. Hope things work out. </HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 , The same thing happened to me. I was on Kineret for two years before they increased my copay to 500 per month. Couldn't afford that, but they will cover 100% of my Rituxan treatments because they are IV infusions given in a hospital or clinic setting. Something about the inpatient thing makes them want to pay for it...even thought it costs them more than if they had left me on Kineret. Check to see if your insurance covers iv infused meds. You might be surprised like we were. Stay Healthy Branson MO Guess ??? wrote: I wonder if someone could help me? I just found out that my insurace isnt going to cover the expense of my Kineret injections (imagine that) and it is going to cost me more out of pocket to get my meds than I can afford right now. Does anyone know of a loop hole somewhere or anything that can help? Any information is welcome. Thanks in advance!! P.S. Thank you all for the warm welcome home!! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 , The same thing happened to me. I was on Kineret for two years before they increased my copay to 500 per month. Couldn't afford that, but they will cover 100% of my Rituxan treatments because they are IV infusions given in a hospital or clinic setting. Something about the inpatient thing makes them want to pay for it...even thought it costs them more than if they had left me on Kineret. Check to see if your insurance covers iv infused meds. You might be surprised like we were. Stay Healthy Branson MO Guess ??? wrote: I wonder if someone could help me? I just found out that my insurace isnt going to cover the expense of my Kineret injections (imagine that) and it is going to cost me more out of pocket to get my meds than I can afford right now. Does anyone know of a loop hole somewhere or anything that can help? Any information is welcome. Thanks in advance!! P.S. Thank you all for the warm welcome home!! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 , The same thing happened to me. I was on Kineret for two years before they increased my copay to 500 per month. Couldn't afford that, but they will cover 100% of my Rituxan treatments because they are IV infusions given in a hospital or clinic setting. Something about the inpatient thing makes them want to pay for it...even thought it costs them more than if they had left me on Kineret. Check to see if your insurance covers iv infused meds. You might be surprised like we were. Stay Healthy Branson MO Guess ??? wrote: I wonder if someone could help me? I just found out that my insurace isnt going to cover the expense of my Kineret injections (imagine that) and it is going to cost me more out of pocket to get my meds than I can afford right now. Does anyone know of a loop hole somewhere or anything that can help? Any information is welcome. Thanks in advance!! P.S. Thank you all for the warm welcome home!! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 >I don't know if your prescription plan and major medical are held by the same company...mine are not...but you might check. With my injectables, by going through the major medical, I only have to pay 10% of their agreed price, which turns out to be $69 a month for Humira. Call your medical insurance company and they should be able to tell you if this is what you have, then they'll tell you where to call to get your injectibles. I hope this helps. Have a pain free day! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 >I don't know if your prescription plan and major medical are held by the same company...mine are not...but you might check. With my injectables, by going through the major medical, I only have to pay 10% of their agreed price, which turns out to be $69 a month for Humira. Call your medical insurance company and they should be able to tell you if this is what you have, then they'll tell you where to call to get your injectibles. I hope this helps. Have a pain free day! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 , First, did the insurance company deny coverage at the request of your doctor? If so, FIGHT IT! You usually have one or two more chances to fight it. The policy to disagree should be in your plan and written on any denial paperwork they sent you. Many times if you just fight, you can get the decision overturned. That would be my first course of action. If that does not work and you are continued to be denied through your final avenue with insurance, there are some programs out there that you might qualify for. might be able to give you some ideas as I know she exhausted all avenues. I think in her case she made too much money, but your situation may be different than hers and you may qualify. Those are the only things I can come up with at the moment. Please fight the insurance denial - I have had to do that before and I came out winning. Houston, Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 , First, did the insurance company deny coverage at the request of your doctor? If so, FIGHT IT! You usually have one or two more chances to fight it. The policy to disagree should be in your plan and written on any denial paperwork they sent you. Many times if you just fight, you can get the decision overturned. That would be my first course of action. If that does not work and you are continued to be denied through your final avenue with insurance, there are some programs out there that you might qualify for. might be able to give you some ideas as I know she exhausted all avenues. I think in her case she made too much money, but your situation may be different than hers and you may qualify. Those are the only things I can come up with at the moment. Please fight the insurance denial - I have had to do that before and I came out winning. Houston, Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 I hear enough about the Cowboys from my Mother. Yes, I'm a San Fran fan. Been in the closet the last couple of years though! Football season is fun around here. Aside from me and mom, my hubby is a Seahawks fan, looks like my son is a Jets fan, nephew is a diehard Panther fan. I'm a product of the Joe Montana era. Afraid those days are long gone though. These days if I'm too ashamed to pull for 49ers, I'm a Broncos fan. And of course, I'll pull for whoever happens to be playing against the Cowboys!!!! :-) I was diagnosed with Still's in 1996 after about a year of hell. It cost me a relationship that I will never forget. But, these days I function. Being on my feet all day working at the hospital is pretty hard. My last flare started when I was taking my Nursing entrance exams. I take 5 mg prednisone and Tramadol. I am starting to feel better and getting ready to start the long road off the prednisone. Hoping for a long remission. Take care. I'll talk to you after next week when the Patriots send the Cowboys back out on the cattle trail! </HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 I hear enough about the Cowboys from my Mother. Yes, I'm a San Fran fan. Been in the closet the last couple of years though! Football season is fun around here. Aside from me and mom, my hubby is a Seahawks fan, looks like my son is a Jets fan, nephew is a diehard Panther fan. I'm a product of the Joe Montana era. Afraid those days are long gone though. These days if I'm too ashamed to pull for 49ers, I'm a Broncos fan. And of course, I'll pull for whoever happens to be playing against the Cowboys!!!! :-) I was diagnosed with Still's in 1996 after about a year of hell. It cost me a relationship that I will never forget. But, these days I function. Being on my feet all day working at the hospital is pretty hard. My last flare started when I was taking my Nursing entrance exams. I take 5 mg prednisone and Tramadol. I am starting to feel better and getting ready to start the long road off the prednisone. Hoping for a long remission. Take care. I'll talk to you after next week when the Patriots send the Cowboys back out on the cattle trail! </HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 I hear enough about the Cowboys from my Mother. Yes, I'm a San Fran fan. Been in the closet the last couple of years though! Football season is fun around here. Aside from me and mom, my hubby is a Seahawks fan, looks like my son is a Jets fan, nephew is a diehard Panther fan. I'm a product of the Joe Montana era. Afraid those days are long gone though. These days if I'm too ashamed to pull for 49ers, I'm a Broncos fan. And of course, I'll pull for whoever happens to be playing against the Cowboys!!!! :-) I was diagnosed with Still's in 1996 after about a year of hell. It cost me a relationship that I will never forget. But, these days I function. Being on my feet all day working at the hospital is pretty hard. My last flare started when I was taking my Nursing entrance exams. I take 5 mg prednisone and Tramadol. I am starting to feel better and getting ready to start the long road off the prednisone. Hoping for a long remission. Take care. I'll talk to you after next week when the Patriots send the Cowboys back out on the cattle trail! </HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2008 Report Share Posted November 10, 2008 Can any of you tell me a little bit about the different medications for this illness. From what I can tell our Dr is discussing prednisone, colchicine, and cimetidine. I am aware of these drugs...but I gotta be honest. I worry about long term effects from them. Can you guys tell me from your experience what these medications can do to help...if at all, and if it's worth it to use them. I'm not sure how cimetidine works in all of this except maybe suppressing the stomach side of this which inturn stop the immune system from going into attach mode. I dunno. Is colchicine the most potent one or prednisone? As is we don't have enough stress with these fevers and our babies let alone having to make a decision on what medication to use and wonder about long term effects. I understand colchicine is used for hids, and mediteranean fever to stop or reverse any kidney damage as adults. Just lend me your experience and knowledge...it would be most appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 don't know how much i can help but my daughter has been on the cimetidine since august. her september fever never got above 101.5 and she acted completely normal except her eating habits, and it only lasted about a day and a half instead of 5, but then her october cycle was back to 4-5 days of not sleeping through the night, alternating the tylenol and motrin, and even tylenol suppositories if i can't get it down with the oral stuff, and a fever up toalmost 105. she is now in her cycle for november a little farther apart then they were running also i should say, and she hasn't spiked a fever but she is a whiney bear right now. As for the the medicine it self it smells like dirt but she takes it well, i opt to flavor it grape for an extra $2-3/month and she takes it great. As for the other meds except the prednisone i'm not familiar with them the specialist i saw said they are researching a gout medicine that has had some good effects though they aren' t really sure how. the next thing they want to try if we don't see consistent results with this is the prednisone, after blood work 2-3x/week for 6 weeks. I am hesitant of it myself as it can do a lot of other yucky things to the body, like lower the immune system and make them more susceptible to things like flu etc. it can also cause weight gain b/c it is an apetite stimulant, and it can also cause high blood sugar. so i don't know if i 'm ready for that, and in the case of the fevers can bring them closer together. generally my daughter's fevers have been around 26-30 days apart, and even a little longer since starting the cimetidine, but as close as 19 days apart once or twice, so i don't want to think about them coming say 10 days apart instead...i have enough trouble containing my sanity when they are 30 days apart! hope this helps **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=ht\ t p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2008 Report Share Posted November 14, 2008 I'm a little slow to respond so I'm not sure if anyone else answered already. I've been checking less since we're on a good stretch. From our personal experiences: Prednisone - we used this for a few cycles. I was hesitant to use it(hate using any drugs incl Tylenol and Motrin!), but once we used it his fever was gone in 2 hours vs the horrible 5 days we had without it. Like some others here, it did bring the fevers closer. In the small dose we gave he did not have any of the stereotypical effects associated with Pred. It made us functional again. Cimetidine - this has been the best thing to happen to us since the fevers started. Within a week of starting it there was a visible difference in our son - he ate willingly for the first time I could remember and he seemed " better " . Some people have mentioned needing to use the drug for extended periods of time before seeing results, but we haven't had a fever since starting it. We're now at 4 months and keeping our fingers crossed our good luck continues. Best of luck as you decide what path to take. It's a difficult decision. Best, Vivian Quote Link to comment Share on other sites More sharing options...
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