1000# Legs

[Guest guest]

Dear Avis,

Sorry no one answered your first post, you know sometimes we are asleep at

the switch, so to speak. LOL Not everyone reads the posts every day because of

poor health or a very busy schedule and sometimes it takes time to play catch

up. How lucky your cousin is to have you to advocate for her. Some feel they

are in a very good place and don't feel the need to read every edition any

longer.

Unintentionally you made me laugh. When I saw Dr. Talpaz before he left for

Michigan, he asked who I wanted to take his place and I stated a preference for

Dr. Kantajarian, as I had seen Cortes once. He asked why and I said, " Because

he only gives you one minute. " His answer was , " Very well, I shall give you

Kantajarian, and he will give you two. " We were both right. LOL

You also stated that they didn't want your cousin to have Lasix at MDACC. I

think that the doctors at MDACC might have the same commonality about Lasix

theories. I reported that my pulmonologist said I had pleurial effusions in my

left lung (always the troubled one) and they said taking Lasix would resort to

other problems, like then having to take other medicines to counteract the

symptoms. They stressed that in most cases when one medicine was prescribed, we

would soon need another one to counteract the other one. In this case, you

would probably have to be monitored for mineral deficiences in other areas. My

internist went ahead and prescribed it anyway, as he said the lower the blood

pressure, the longer the life. I do not take it every single day and most of

the time take only 1/2 tab of the 20 mg. He doesn't have to know.

Sometimes when we complain to our oncologist, we don't get a response, because

it is not part of their disipline and would prefer you see another doctor.

ly, I would rather have an oncologist who specializes in CML than one who

dabbles in other fields, too. They ask about my complaints and then ask what my

local doctor has to say about it. They will write a prescription for something

that I have been taking, but nothing for a new ailment. Everything has its

checks and balances and I prefer it that way. Sometimes it just saves me from

having to see another doctor to get a renewal.

If we don't answer immediately, shake our tree a little and you will get a

reply, someone will respond, because we are a caring group.

Blessings,

Lottie