Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 hi bec my son is 14 and is on colchicine too. no he never had his tonsils out. but we both know how you feel . take care ************** Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Bec, Bless you! Many of us have children too young to talk about how they feel. I'm surprised you are on Colchicine for - but I've seen a few posts for that. Many that have FMF take it. The most common drug I've seen for is Prednisone - an oral steroid. But it made my daughter very aggressive (she was only 2 years old), so I don't actually know how it made her feel. We also tried Tagamet/Cimetidine - but it didn't work for my daughter - same symptoms (fever every 10-35 days lasted 4-7 days without Prednisone, temperatures 104-107). We have had 7 months fever free since the T & A. She also seems to generally be happier and sleep better. Best of luck to you. I hope you can get answers to your questions on this group. It is a great group for moral support. I'm sure that we all want to hear from you - as you can actually talk about how you feel. Ginger Daughter - le, almost 3 years old (fevering since 7 months, diagnosed at 15 months, T & A on 12/11/07, Fever-free since 11/16/07) Son - Jay, 1 year old .. <http://geo./serv?s=97359714/grpId=2647977/grpspId=1705016061/m sgId=21282/stime=1213306428/nc1=5028926/nc2=5349276/nc3=4836045> ----------------------------------------- ==================================================== This message contains PRIVILEGED and CONFIDENTIAL information that is intended only for use by the named recipient. If you are not the named recipient, any disclosure, dissemination, or action based on the contents of this message is prohibited. In such case please notify us and destroy and delete all copies of this transmission. Thank you. ==================================================== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Bec, My son has had since he was about a year and a half old. He is four and a half now and had his tonsils out in January. He has not had a fever since. He used to get them every 3-7 weeks (with 3 being the norm). Now he has been fever free for almost 6 months. He is a different child, much stronger, happier, and so much more energy (in a good way!) Since having his tonsils out he has stopped napping and has gained five pounds. It's a really hard decision to make, and it doesn't work for everyone, but it has really been good for him. We had a doctor who used a cold technique for the tonsillectomy, using a special foam called surgifoam instead of cauterizing (burning to stop bleeding). 's recovery was really easy. He only took one dose of pain meds, ate and drank normally even the day after surgery, and was back to preschool five days after surgery. If you decide to pursue tonsillectomy, we would highly recommend this method. Good luck to you. I'm glad you found this group! Quote Link to comment Share on other sites More sharing options...
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