RE: Sue - authorisation for comments Hair (head) (face) (body)

[Guest guest]

Absolutely!!

Sharon T

_____

From: [mailto: ] On Behalf Of

suehurt28

Sent: Sunday, May 24, 2009 1:06 AM

Subject: Sue - authorisation for comments [ ] Hair (head) (face) (body)

Ladies

May I have your authorisation to post your comments of hair

on the Australian Talkbloodcancer bulletin. There is so few of us

in Australia who have CML and when I asked the question on a telephone

conference the 4 ladies responded they thought they were the only ones with

hair issues.

I will not put your names - just hair comments

Please advise

Does anyone have facial hair (soft hair) on the side of their faces

Sue

>

> I did not know there was a right or wrong order in taking the medication.

> I think there are some out there that went from gleevec to Tasigna..isn't

> there? I did not find much difference in how I felt on Gleevec then

Sprycel

> except that I did not have the terrible rash while on Sprycel. The thing

is

> you may do very very well on sprycel. Everyone is so different. One

comfort

> is say Sprycel does not work...you have Tasigna. Were you PCRU on Gleevec?

I

> didn't get why you are going off Gleevec????

> Sharon

>

> [ ] Hair (head) (face) (body)

>

>

>

> Question:

>

>

>

> Have you as long term glivec users had the side effect of either hair

loss,

>

>

>

> no growth of hair, thinning of hair ?

>

>

>

> Alternately as long term glivec users and blood levels improved and going

>

>

>

> towards PCR or your PCR is undetected (MMR) etc have you the experience

that

>

>

>

> your hair

>

>

>

> ___________________________________________________

>

>

>

> Head Hair

>

>

>

> Has got thicker?

>

>

>

> Having more hair cuts (hair is growing quicker)?

>

>

>

> __________________________________________________

>

>

>

> Hair on Face -

>

>

>

> This is an experience that the gals all seemed to have.

>

>

>

> Down hair on side of face (near cheeks)

>

>

>

> Is this is glivec reaction / menopause reaction / both ?

>

>

>

> __________________________________________________

>

>

>

> Hair on arms, feet,fingers, chest

>

>

>

> Growth of hair on the above.

>

>

>

> One experience of a fellow was that where he had hair he no longer did and

>

>

>

> where he did not have hair he now does. Go figure.

>

>

>

> A suggestion was that

>

>

>

> Perhaps it is because people are going paler in colour and

>

>

>

> they now can sight more hair

>

>

>

> __________________________________________________

>

>

>

> Plus finger nails are growing quicker and thicker

>

>

>

> __________________________________________________

>

>

>

> What is your experience ?

>

>

>

> Would be interesting to share your experience.

>

>

>

>

[Guest guest]

It's A-OK with me.

In answer to your second question, yes -- but this is not new!

From: hollie@...

Date: Sun, 24 May 2009 08:05:43 +0000

Subject: Sue - authorisation for comments [ ] Hair (head) (face) (body)

Ladies

May I have your authorisation to post your comments of hair

on the Australian Talkbloodcancer bulletin. There is so few of us

in Australia who have CML and when I asked the question on a telephone

conference the 4 ladies responded they thought they were the only ones with hair

issues.

I will not put your names - just hair comments

Please advise

Does anyone have facial hair (soft hair) on the side of their faces

Sue

>

> I did not know there was a right or wrong order in taking the medication.

> I think there are some out there that went from gleevec to Tasigna..isn't

> there? I did not find much difference in how I felt on Gleevec then Sprycel

> except that I did not have the terrible rash while on Sprycel. The thing is

> you may do very very well on sprycel. Everyone is so different. One comfort

> is say Sprycel does not work...you have Tasigna. Were you PCRU on Gleevec? I

> didn't get why you are going off Gleevec????

> Sharon

>

> [ ] Hair (head) (face) (body)

>

>

>

> Question:

>

>

>

> Have you as long term glivec users had the side effect of either hair loss,

>

>

>

> no growth of hair, thinning of hair ?

>

>

>

> Alternately as long term glivec users and blood levels improved and going

>

>

>

> towards PCR or your PCR is undetected (MMR) etc have you the experience that

>

>

>

> your hair

>

>

>

> ___________________________________________________

>

>

>

> Head Hair

>

>

>

> Has got thicker?

>

>

>

> Having more hair cuts (hair is growing quicker)?

>

>

>

> __________________________________________________

>

>

>

> Hair on Face -

>

>

>

> This is an experience that the gals all seemed to have.

>

>

>

> Down hair on side of face (near cheeks)

>

>

>

> Is this is glivec reaction / menopause reaction / both ?

>

>

>

> __________________________________________________

>

>

>

> Hair on arms, feet,fingers, chest

>

>

>

> Growth of hair on the above.

>

>

>

> One experience of a fellow was that where he had hair he no longer did and

>

>

>

> where he did not have hair he now does. Go figure.

>

>

>

> A suggestion was that

>

>

>

> Perhaps it is because people are going paler in colour and

>

>

>

> they now can sight more hair

>

>

>

> __________________________________________________

>

>

>

> Plus finger nails are growing quicker and thicker

>

>

>

> __________________________________________________

>

>

>

> What is your experience ?

>

>

>

> Would be interesting to share your experience.

>

>

>

>