Re: Housework and Fatigue Suz

[Guest guest]

OMG- I am soooo glad to hear someone else complaining of the fatigue..

Sometimes I think I am going crazy...... Before CML, (at 33) I was a type A

personality, always on the go...Never sitting down, running after kids,

working 12 hours a day as a RN, then coming home doing housework, cooking

dinner, running with kids and would go to bed around midnight to get up the next

day and repeat. I never felt fatigued, it was just life. I loved it.

Now, 4 years into CML, I am now on medical disability, and I fight to get

out of bed most days. and need a nap if I do anything significant during the

day. I am exhausted by late afternoon and then get a second wind in the

evening. I pay for it if I do anything with a lot of walking but with

kids, its worth it for me. My daily showers are now every other day as I don't

have enough energy to muster through all that work..... If I do work (I try

to substitute teach) at my kids school occasionally just to feel like I am

a member of society, I end up paying for it. Example, this past Monday and

Tuesday I worked at the school and Wednesday I literally spent the day in

bed recovering. I mean couldn't get out of bed and kept the kids home from

school because I couldn't get them together and off to school. I feel

like a loser sometimes and that I am always complaining of being tired. No,

more then tired....Exhausted. Like I haven't slept, even when waking up

from a decent nights sleep.

The doctors say its just part of the battle with CML and the drugs we have

to take. They dont want to lower the dose as I am doing very well with a 4

log reduction and undetectable PCR. I am thrilled with that. I wish

they would come up with a magic pill to take away the fatigue or at least

lessen it.

With the fatigue is muscle pain and SOB. I think its all tied into

together.

I am thankful we have the meds and that they do work. I am thankful

though to hear about others who are battling the same things. reminds me that

I

am not really crazy.......lol

Hugs & Hope

37

Wife and mom to 3 (13,10,8)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since 9/07

**************A strong credit score is 700 or above. See Yours in Just 2

Easy Steps!

(http://pr.atwola.com/promoclk/100126575x1222585033x1201462753/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & b

cd=Maystrongfooter52309NO115)

[Guest guest]

Hi ,

 

I have to remind myself that I have CML and I need to rest/nap when my body is

tired. It's not like  it used to be when I would push myself to keep working, or

cleaning, to get the job done.  My health is much more important than keeping

the house in order. My family has come to accept it or clean it. 

 

I'm sorry you suffer from fatigue.  I was off work too for a year because of it,

but now it's a little better.  I work as a Teacher Associate in charge of 9

little K & 1st graders.  I really enjoy it but it is exhausting. When I get home

at night, I eat and find my recliner quickly. 

 

I am 49 so age is also a factor. 

 

I will pray that you get some of your energy back over time. 

 

God Bless,

Jackie

From: vegasrnjen@... <vegasrnjen@...>

Subject: Re: [ ] Housework and Fatigue Suz

Date: Saturday, May 23, 2009, 9:22 PM

OMG- I am soooo glad to hear someone else complaining of the fatigue..

Sometimes I think I am going crazy...... Before CML, (at 33) I was a type A

personality, always on the go...Never sitting down, running after kids,

working 12 hours a day as a RN, then coming home doing housework, cooking

dinner, running with kids and would go to bed around midnight to get up the next

day and repeat. I never felt fatigued, it was just life. I loved it.

Now, 4 years into CML, I am now on medical disability, and I fight to get

out of bed most days. and need a nap if I do anything significant during the

day. I am exhausted by late afternoon and then get a second wind in the

evening. I pay for it if I do anything with a lot of walking but with

kids, its worth it for me. My daily showers are now every other day as I don't

have enough energy to muster through all that work..... If I do work (I try

to substitute teach) at my kids school occasionally just to feel like I am

a member of society, I end up paying for it. Example, this past Monday and

Tuesday I worked at the school and Wednesday I literally spent the day in

bed recovering. I mean couldn't get out of bed and kept the kids home from

school because I couldn't get them together and off to school. I feel

like a loser sometimes and that I am always complaining of being tired. No,

more then tired....Exhausted. Like I haven't slept, even when waking up

from a decent nights sleep.

The doctors say its just part of the battle with CML and the drugs we have

to take. They dont want to lower the dose as I am doing very well with a 4

log reduction and undetectable PCR. I am thrilled with that. I wish

they would come up with a magic pill to take away the fatigue or at least

lessen it.

With the fatigue is muscle pain and SOB. I think its all tied into

together.

I am thankful we have the meds and that they do work. I am thankful

though to hear about others who are battling the same things. reminds me that I

am not really crazy....... lol

Hugs & Hope

37

Wife and mom to 3 (13,10,8)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since 9/07

************ **A strong credit score is 700 or above. See Yours in Just 2

Easy Steps!

(http://pr.atwola. com/promoclk/ 100126575x122258 5033x1201462753/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=115 & b

cd=Maystrongfooter5 2309NO115)

[Guest guest]

I'm sorry to hear about the fatigue too. I am doing pretty good, but I

require my sleep.

This isn't really a question that you have to answer, but in reading your

post I am wondering if you are still doing too much super-mom stuff. I

personally am NOT a super-mom. I'm a great mom ... but I never did all

the things for my kids that some do. I don't make their beds or pick up

their rooms. I don't make them lunches for school. (Never really did

either.) We have a 15, 14 and 9 yr olds. The two older ones are in charge of

laundry and dishes. The 9 yo bounces back and forth, but he knows how to do

both. Do you have to drive your kids to school? *That* I would understand.

Is there a neighbor that goes too... can you pick up in the afternoon and

have them do the morning drive? My 2 older ones have pretty much always

gotten ready for school by themselves. Alarm clock. I used to get up to do

the checklist, dressed appropriately, lunch, backpack, homework, etc. But,

now I don't. The 9 yo is homeschooled, so he sleeps in too.

I think for me, letting go of some of the control over the house and kids

was difficult. But, I had to rearrange that control back to taking care of

myself. I HAD to let the kids take more control over themselves in order to

keep my stress down. It is working out well, because it is no longer my

*fault* if there isn't milk... " we " forgot to say something, or write it on

the list. There are worse things that having the kids learn to take care of

themselves, they will be out on their own in a few short years.

I just started taking an anti-depressant, because I felt like such a loser.

Not being able to concentrate or enjoy anything in life. I know it hasn't

been long enough to really kick in, but it is starting to work. Like

everyone else, I wasn't really sure I wanted to take yet ANOTHER pill, but I

was tired of feeling like crap. I'll let you know how it goes.

Hopefully, you can figure out what works for your family. Kids are old

enough, get them to help with the housework, so you will have more energy

for fun things. And get them taking care of themselves in the mornings!

Tammy

_____

From: [mailto: ] On Behalf Of

vegasrnjen@...

Sent: Saturday, May 23, 2009 10:23 PM

Subject: Re: [ ] Housework and Fatigue Suz

OMG- I am soooo glad to hear someone else complaining of the fatigue..

Sometimes I think I am going crazy...... Before CML, (at 33) I was a type A

personality, always on the go...Never sitting down, running after kids,

working 12 hours a day as a RN, then coming home doing housework, cooking

dinner, running with kids and would go to bed around midnight to get up the

next

day and repeat. I never felt fatigued, it was just life. I loved it.

Now, 4 years into CML, I am now on medical disability, and I fight to get

out of bed most days. and need a nap if I do anything significant during the

day. I am exhausted by late afternoon and then get a second wind in the

evening. I pay for it if I do anything with a lot of walking but with

kids, its worth it for me. My daily showers are now every other day as I

don't

have enough energy to muster through all that work..... If I do work (I try

to substitute teach) at my kids school occasionally just to feel like I am

a member of society, I end up paying for it. Example, this past Monday and

Tuesday I worked at the school and Wednesday I literally spent the day in

bed recovering. I mean couldn't get out of bed and kept the kids home from

school because I couldn't get them together and off to school. I feel

like a loser sometimes and that I am always complaining of being tired. No,

more then tired....Exhausted. Like I haven't slept, even when waking up

from a decent nights sleep.

The doctors say its just part of the battle with CML and the drugs we have

to take. They dont want to lower the dose as I am doing very well with a 4

log reduction and undetectable PCR. I am thrilled with that. I wish

they would come up with a magic pill to take away the fatigue or at least

lessen it.

With the fatigue is muscle pain and SOB. I think its all tied into

together.

I am thankful we have the meds and that they do work. I am thankful

though to hear about others who are battling the same things. reminds me

that I

am not really crazy.......lol

Hugs & Hope

37

Wife and mom to 3 (13,10,8)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since 9/07

**************A strong credit score is 700 or above. See Yours in Just 2

Easy Steps!

(http://pr.atwola.

<http://pr.atwola.com/promoclk/100126575x1222585033x1201462753/aol?redir=htt

p://www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & b>

com/promoclk/100126575x1222585033x1201462753/aol?redir=http://www.freecredit

report.com/pm/default.aspx?sc=668072 & hmpgID=115 & b

cd=Maystrongfooter52309NO115)

[Guest guest]

I can't tell you all what a load off my mind it is to hear everyone detailing my

exact same frustrations! When you know others who are in the same boat, it can

even seem funny! I have really started to wonder whether I'm going crazy -- or

whether I'm just plain lazy. I do feel like suddenly the world is racing by me,

and I used to feel like I was right in the thick of things.

I'm a bit frightened because my state disability only lasts a year and then I am

going to *have* to get my heiny (sp?) out into the workplace again. Is there a

job I can do in my sleep (lol)?

From: tammy@...

Date: Sat, 23 May 2009 23:45:08 -0400

Subject: RE: [ ] Housework and Fatigue Suz

I'm sorry to hear about the fatigue too. I am doing pretty good, but I

require my sleep.

This isn't really a question that you have to answer, but in reading your

post I am wondering if you are still doing too much super-mom stuff. I

personally am NOT a super-mom. I'm a great mom ... but I never did all

the things for my kids that some do. I don't make their beds or pick up

their rooms. I don't make them lunches for school. (Never really did

either.) We have a 15, 14 and 9 yr olds. The two older ones are in charge of

laundry and dishes. The 9 yo bounces back and forth, but he knows how to do

both. Do you have to drive your kids to school? *That* I would understand.

Is there a neighbor that goes too... can you pick up in the afternoon and

have them do the morning drive? My 2 older ones have pretty much always

gotten ready for school by themselves. Alarm clock. I used to get up to do

the checklist, dressed appropriately, lunch, backpack, homework, etc. But,

now I don't. The 9 yo is homeschooled, so he sleeps in too.

I think for me, letting go of some of the control over the house and kids

was difficult. But, I had to rearrange that control back to taking care of

myself. I HAD to let the kids take more control over themselves in order to

keep my stress down. It is working out well, because it is no longer my

*fault* if there isn't milk... " we " forgot to say something, or write it on

the list. There are worse things that having the kids learn to take care of

themselves, they will be out on their own in a few short years.

I just started taking an anti-depressant, because I felt like such a loser.

Not being able to concentrate or enjoy anything in life. I know it hasn't

been long enough to really kick in, but it is starting to work. Like

everyone else, I wasn't really sure I wanted to take yet ANOTHER pill, but I

was tired of feeling like crap. I'll let you know how it goes.

Hopefully, you can figure out what works for your family. Kids are old

enough, get them to help with the housework, so you will have more energy

for fun things. And get them taking care of themselves in the mornings!

Tammy

_____

From: [mailto: ] On Behalf Of

vegasrnjen@...

Sent: Saturday, May 23, 2009 10:23 PM

Subject: Re: [ ] Housework and Fatigue Suz

OMG- I am soooo glad to hear someone else complaining of the fatigue..

Sometimes I think I am going crazy...... Before CML, (at 33) I was a type A

personality, always on the go...Never sitting down, running after kids,

working 12 hours a day as a RN, then coming home doing housework, cooking

dinner, running with kids and would go to bed around midnight to get up the

next

day and repeat. I never felt fatigued, it was just life. I loved it.

Now, 4 years into CML, I am now on medical disability, and I fight to get

out of bed most days. and need a nap if I do anything significant during the

day. I am exhausted by late afternoon and then get a second wind in the

evening. I pay for it if I do anything with a lot of walking but with

kids, its worth it for me. My daily showers are now every other day as I

don't

have enough energy to muster through all that work..... If I do work (I try

to substitute teach) at my kids school occasionally just to feel like I am

a member of society, I end up paying for it. Example, this past Monday and

Tuesday I worked at the school and Wednesday I literally spent the day in

bed recovering. I mean couldn't get out of bed and kept the kids home from

school because I couldn't get them together and off to school. I feel

like a loser sometimes and that I am always complaining of being tired. No,

more then tired....Exhausted. Like I haven't slept, even when waking up

from a decent nights sleep.

The doctors say its just part of the battle with CML and the drugs we have

to take. They dont want to lower the dose as I am doing very well with a 4

log reduction and undetectable PCR. I am thrilled with that. I wish

they would come up with a magic pill to take away the fatigue or at least

lessen it.

With the fatigue is muscle pain and SOB. I think its all tied into

together.

I am thankful we have the meds and that they do work. I am thankful

though to hear about others who are battling the same things. reminds me

that I

am not really crazy.......lol

Hugs & Hope

37

Wife and mom to 3 (13,10,8)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since 9/07

**************A strong credit score is 700 or above. See Yours in Just 2

Easy Steps!

(http://pr.atwola.

<http://pr.atwola.com/promoclk/100126575x1222585033x1201462753/aol?redir=htt

p://www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & b>

com/promoclk/100126575x1222585033x1201462753/aol?redir=http://www.freecredit

report.com/pm/default.aspx?sc=668072 & hmpgID=115 & b

cd=Maystrongfooter52309NO115)

[Guest guest]

Hi All-

Its really good to hear this discussion, especially from women (no offense

guys).I get fatigued all the time. I dont have kids, just a pretty stressful

full time job and some afternoons i have to stop and go home to nap. I have a

hard time sleeping at night, I toss and turn so I am exhausted the next day. I

hired someone to come in and clean a couple hours every other week, because the

house work is too much.

Its frustrating, i feel limited but i have to remember to ask for help.

Thanks

Karyn