Sue - authorisation for comments Hair (head) (face) (body)

[Guest guest]

Ladies

May I have your authorisation to post your comments of hair

on the Australian Talkbloodcancer bulletin. There is so few of us

in Australia who have CML and when I asked the question on a telephone

conference the 4 ladies responded they thought they were the only ones with hair

issues.

I will not put your names - just hair comments

Please advise

Does anyone have facial hair (soft hair) on the side of their faces

Sue

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> I did not know there was a right or wrong order in taking the medication.

> I think there are some out there that went from gleevec to Tasigna..isn't

> there? I did not find much difference in how I felt on Gleevec then Sprycel

> except that I did not have the terrible rash while on Sprycel. The thing is

> you may do very very well on sprycel. Everyone is so different. One comfort

> is say Sprycel does not work...you have Tasigna. Were you PCRU on Gleevec? I

> didn't get why you are going off Gleevec????

> Sharon

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> [ ] Hair (head) (face) (body)

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> Question:

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> Have you as long term glivec users had the side effect of either hair loss,

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> no growth of hair, thinning of hair ?

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> Alternately as long term glivec users and blood levels improved and going

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> towards PCR or your PCR is undetected (MMR) etc have you the experience that

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> your hair

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> Head Hair

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> Has got thicker?

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> Having more hair cuts (hair is growing quicker)?

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> Hair on Face -

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> This is an experience that the gals all seemed to have.

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> Down hair on side of face (near cheeks)

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> Is this is glivec reaction / menopause reaction / both ?

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> Hair on arms, feet,fingers, chest

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> Growth of hair on the above.

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> One experience of a fellow was that where he had hair he no longer did and

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> where he did not have hair he now does. Go figure.

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> A suggestion was that

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> Perhaps it is because people are going paler in colour and

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> they now can sight more hair

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> Plus finger nails are growing quicker and thicker

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> What is your experience ?

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> Would be interesting to share your experience.

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