RE: Hair (head) (face) (body)

May 23, 2009

I was on gleevec for about 8 months and I lost a lot of hair, all my

eyebrows and eyelashes . But after stopping it everything came back but not

as thick. Eyebrows are still thin and I still have a little thinning of my

hair. I am on Tasigna. Gleevec was not kind to me at all. Because of some

real real bad side effects, I had to go off it. That was back in 2004.

Sharon T

_____

From: [mailto: ] On Behalf Of

suehurt28

Sent: Friday, May 22, 2009 10:20 PM

Subject: [ ] Hair (head) (face) (body)

Question:

Have you as long term glivec users had the side effect of either hair loss,

no growth of hair, thinning of hair ?

Alternately as long term glivec users and blood levels improved and going

towards PCR or your PCR is undetected (MMR) etc have you the experience that

your hair

___________________________________________________

Head Hair

Has got thicker?

Having more hair cuts (hair is growing quicker)?

__________________________________________________

Hair on Face -

This is an experience that the gals all seemed to have.

Down hair on side of face (near cheeks)

Is this is glivec reaction / menopause reaction / both ?

__________________________________________________

Hair on arms, feet,fingers, chest

Growth of hair on the above.

One experience of a fellow was that where he had hair he no longer did and

where he did not have hair he now does. Go figure.

A suggestion was that

Perhaps it is because people are going paler in colour and

they now can sight more hair

__________________________________________________

Plus finger nails are growing quicker and thicker

__________________________________________________

What is your experience ?

Would be interesting to share your experience.

May 23, 2009

My finger nails have these vertical striations. At some point, someplace, I read

that this is a common symptom of leukemia.

Hair -- !@#$%^ & !!

First, it was coming out in gobs, which made me a little nervous but since I had

enough on my head for five people it seemed imperceptible to others. After that

first year or so on Gleevec, but has grown back in spades and has changed into a

frizz mop. It used to be wavy, but is now wildly kinky, and thicker than ever. I

look in the mirror and think, " Hmm ... who IS that? "

From: hollie@...

Date: Sat, 23 May 2009 05:20:23 +0000

Subject: [ ] Hair (head) (face) (body)

Question:

Have you as long term glivec users had the side effect of either hair loss, no

growth of hair, thinning of hair ?

Alternately as long term glivec users and blood levels improved and going

towards PCR or your PCR is undetected (MMR) etc have you the experience that

your hair

___________________________________________________

Head Hair

Has got thicker?

Having more hair cuts (hair is growing quicker)?

__________________________________________________

Hair on Face -

This is an experience that the gals all seemed to have.

Down hair on side of face (near cheeks)

Is this is glivec reaction / menopause reaction / both ?

__________________________________________________

Hair on arms, feet,fingers, chest

Growth of hair on the above.

One experience of a fellow was that where he had hair he no longer did and where

he did not have hair he now does. Go figure.

A suggestion was that

Perhaps it is because people are going paler in colour and

they now can sight more hair

__________________________________________________

Plus finger nails are growing quicker and thicker

__________________________________________________

What is your experience ?

Would be interesting to share your experience.

_________________________________________________________________

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May 23, 2009

Sharon, did you go from Gleevec straight to Tasigna, or did you try Sprycel in

between?

From: onthewtr@...

Date: Fri, 22 May 2009 22:24:54 -0700

Subject: RE: [ ] Hair (head) (face) (body)

I was on gleevec for about 8 months and I lost a lot of hair, all my

eyebrows and eyelashes . But after stopping it everything came back but not

as thick. Eyebrows are still thin and I still have a little thinning of my

hair. I am on Tasigna. Gleevec was not kind to me at all. Because of some

real real bad side effects, I had to go off it. That was back in 2004.

Sharon T

_____

From: [mailto: ] On Behalf Of

suehurt28

Sent: Friday, May 22, 2009 10:20 PM

Subject: [ ] Hair (head) (face) (body)

Question:

Have you as long term glivec users had the side effect of either hair loss,

no growth of hair, thinning of hair ?

Alternately as long term glivec users and blood levels improved and going

towards PCR or your PCR is undetected (MMR) etc have you the experience that

your hair

___________________________________________________

Head Hair

Has got thicker?

Having more hair cuts (hair is growing quicker)?

__________________________________________________

Hair on Face -

This is an experience that the gals all seemed to have.

Down hair on side of face (near cheeks)

Is this is glivec reaction / menopause reaction / both ?

__________________________________________________

Hair on arms, feet,fingers, chest

Growth of hair on the above.

One experience of a fellow was that where he had hair he no longer did and

where he did not have hair he now does. Go figure.

A suggestion was that

Perhaps it is because people are going paler in colour and

they now can sight more hair

__________________________________________________

Plus finger nails are growing quicker and thicker

__________________________________________________

What is your experience ?

Would be interesting to share your experience.

May 23, 2009

,

I went to Sprycel. Was on it for three years. Still had some side affects

but nothing I couldn't live with. Three years and then I got swollen lympth

nodes, plural Efusion and a multitude of other problems. Went off Sprycel

for 2 weeks and on to Tasigna and I have never felt so good in five years.

The only side effect I have is weight gain. Gained 20 lbs but if I work on

it (my diet) I can take some off.. And my hair thinned a little again but is

now growing back. But I had no stomach problems like I did on Sprycel and

Gleevec. I even forget that I have CML. And I have been PCRU for a year. You

know I do not even know if I was PCRU while on Sprycel because they never

did the PCR test on me. Just the BMB and I was always 0% on that...

Sharon

[ ] Hair (head) (face) (body)

Question:

Have you as long term glivec users had the side effect of either hair loss,

no growth of hair, thinning of hair ?

Alternately as long term glivec users and blood levels improved and going

towards PCR or your PCR is undetected (MMR) etc have you the experience that

your hair

___________________________________________________

Head Hair

Has got thicker?

Having more hair cuts (hair is growing quicker)?

__________________________________________________

Hair on Face -

This is an experience that the gals all seemed to have.

Down hair on side of face (near cheeks)

Is this is glivec reaction / menopause reaction / both ?

__________________________________________________

Hair on arms, feet,fingers, chest

Growth of hair on the above.

One experience of a fellow was that where he had hair he no longer did and

where he did not have hair he now does. Go figure.

A suggestion was that

Perhaps it is because people are going paler in colour and

they now can sight more hair

__________________________________________________

Plus finger nails are growing quicker and thicker

__________________________________________________

What is your experience ?

Would be interesting to share your experience.

May 23, 2009

Wow!

Well, they're starting me on Sprycel and I'm a bit nervous. I don't know what to

expect, and of course no one can tell me. If it's a loser, I'll move onto

Tasigna. I asked to go straight to Tasigna, but they said this is the right

order.

My new doc is Dr. Brad , of UCSF. Does his name ring any bells?

Thanks.

From: onthewtr@...

Date: Sat, 23 May 2009 12:10:53 -0700