Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Hi , Can't speak for anyone else but yes ... that's exactly what we're doing I'm so happy the children are finally out of school! My daughter goes back early this year, July 27th, so we really have to enjoy it while we can At my son's most recent rheumatology appt the doctor said he looks better than she's ever seen him, in the last 5 years. One elbow and his right big toe are all that seem to be bothering him and not too badly, at all. Unfortunately, because he was a little fussy about the MTX by injection all of a sudden, she wanted to hold off on reducing the prednisone for now. Last week he took his MTX dose orally, today he had his regularly scheduled shot. Haven't noticed yet that anything was amiss. He seems to be fine. But he has the pills for next week ... again .... and then hopefully, we'll just stick with the injections, which seem to work a lot better for him. Hope you enjoy the summer, too Aloha, Georgina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Georgina july 27th? the kids go back poor kids lolol melissa goes back august 21 or 23 this year lolololol Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2009 Report Share Posted May 24, 2009 Hello Sandi I am always sad to hear of another 'child' diagnosis.... and my heart goes out to you too as I know what you are going through. My 25 year old son was diagnosed with CML just over three years ago. Just last week he got married and is now on his way back from honeymoon. This past month he said that his tiredness has got much easier and thankfully he is no longer cold all the time either. I know that must sound like a long time - three years to get to this point, but it has happened faster for others. From what I read, the side effects can come and go with time. learned to take time out of his day - even just the odd 5 minutes for a quick slow-down and snooze before going on again. Often he just has no option but to take it easy, but he has adjusted and takes it in his stride these days.......especially now that its not as bad right now. Eating well played a good part in his adjustments, as well as going to bed really early for the first two years. I used to joke that all my kids are asleep by 9.30pm and old mom is up and awake till the wee hours of the morning... Hang in there Sandi - hopefully it will get easier as time goes on - for her and for you too. Please feel free to email me anytime you need a shoulder to yell at or to share My email is ibannie @ comcast.net. Also, feel free to read about my feelings regarding 's cml on my blog - I forget everything I wrote in the early days, and am really thankful that these days are much smoother. love and light Annie http://livingwithcml.blogspot.com > > Hi. > My daughter was diagnosed with CML in Feb. She has a 22 month old, active baby. She continues to work and take care of the baby and is extremely fatigued. I do the food shopping and go every night to take care of the baby so she can eat and take her medication. The days are like roller coasters. Are there any parents of children with CML that can offer me suggestions? > Sandi > > > > > Quote Link to comment Share on other sites More sharing options...
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