Re: Cycle question

[Guest guest]

Our son always fevered predictably on a 2 week cycle with a very few

exceptions.  His cycle started changing a little bit the last few months to

going 3 weeks then a 1 weeker or just the opposite.  We had his tonsils out on

Aug 5th and no fever yet (close to what would be 3 now).  Hope this info helps a

little.

 

[Guest guest]

fevers every third Thursday. We did not realize that there

was a cycle until I was submitting yet another leave request for work

and found it odd that he was sick every month. Bizarre, yet also kind

of good, because I could plan for this most recent cycle by working

extra hours instead of having to use my leave. Always looking for

silver lining, I suppose.

[Guest guest]

fevers every third Thursday. We did not realize that there

was a cycle until I was submitting yet another leave request for work

and found it odd that he was sick every month. Bizarre, yet also kind

of good, because I could plan for this most recent cycle by working

extra hours instead of having to use my leave. Always looking for

silver lining, I suppose.

[Guest guest]

When my daugter has a short cycle, the next cylcle is more severe. Has

anyone noticed that?

Casie

[Guest guest]

Absolutely! When would have a mild cycle the next week or so he would

have a vicious attack. That is when he would have a completely wild fever that

would be extremely difficult to control. Those episodes really are the worst

and would be so hard on everyone bringing my son to such a low and making my

husband and I worried sick.

Mom2

Born 5/11/06

Fevering since 9mos

T & A May 2008-fever free since and praying it will stay that way!

[Guest guest]

 

 

I have noticed in the past that if we have a not so bad episode the next one is

usually a bad one. Is your daughter on prednisone?  Since we started the

steriods my son's episodes no longer last for days, but they do come closer

together.   I have also noticed the bigger the glands the worse the fever. 

Today we are due for a fever, the glands are swollen but no fever yet.  We are

having the T & A on Mon. so no motrin, which makes me very nervous.  I do not want

to give the steriod yet since he has a normal temp.

 

Jackie mom to Landon almost 5 fevering forever

[Guest guest]

Teagan is not on prednisone yet in part due to my hesitation to use it

and mainly due to our infectious disease doctor wanting to have a

concise three month documentation of her cycles and symptoms. He has

seen many kids with this and many with other fever disorders and

although he's convinced its , he wants to take a conservative

approach. Now that two of you have mentioned it, Teagan's last

episode was very mild so that we thought she might be out growing it.

She's been fevering since Thursday morning and was vomiting most of

last night and a little today. The side of her neck looks like a

tumor due to her swollen gland. She's much more miserable this time.

although motrin/tylenol are controlling the fever,they are not

helping her feel better. Hopefully her next cycle will be milder.

A good question was posed " how do you do it " . I try to remind myself

that my daughter's syndrome is a mild inconvenience in comparison to

what some other parents go through. I'm very ill myself this cycle

with a sinus infection making those all nighters unbearable. I try to

remind myself that she didn't ask for this and doesn't understand why

she is so sick. I try to use it as bonding time to snuggle in front

of cartoons that are usually prohibited in our house.

Thanks for all the input on cycles!