Weird rash

[Guest guest]

Hi all

I was just curious if any one here has had to deal with Henoch-Schonlein

Purpura? It is also known as HSP. It is a nasty rash that affects the lower

extremities primarily. They are red marks that start out looking like hives and

then turn into these nasty looking big red bumps that eventually bruise. It

erupted after my daughter had a regular virus (yes- she actually caught a " real "

virus). My rheumatologist seems to think that my daughter is just " unlucky " to

have a periodic fever syndrome and then get this, that they are NOT related, but

I thought I would throw it out there to this group since I know we have found

some other odd similarities. I thought it was odd that she would end up with

this because the other symptom is joint swelling and pain. Of course, she has

that as well. If anyone has experienced this, just let me know!

Thanks

Lori Rodgers

mom to 3 (fevering since around 9 months)

[Guest guest]

Are they even thinking about fmf or traps? I think they both can have a rash

like that.

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[Guest guest]

Melody was just released from the hospital last Suday. She started

out like someone else's situation, a regular fever episode. Then when

it went beyond seven take her doctor said it loooked like strep and

prscribed Amox. When it go even worse with red eyes and severly

painful joints she was admited and thougnt to have kawasaki disease.

Her Rheumatologist doesn't believe it was kawasaki disease but part of

her FMF or a recation to the Amox. I saw all this to say that she

also developed a rash all over her legs and then a nasty one in the

diaper area. It has now peeled and I'm not sure if that is an

indication of something else.

Well I just wanted to put that out there in regards to being dianosed

with something else right during an episode.

[Guest guest]

Hello,

I haven't been on this group in awhile but saw your message about a rash. My

son had a strange rash about a year ago, the doctors said it was called erythema

multiforme, the diaper area was very bad as well. He was tested for FMF and

came back negative for the most common DNA mutations....but I was told that

doesn't mean he doesn't have a rare form of it. The rash was very bad, it

started small and ended covering his entire body. His eyes were swollen and it

even went into the scalp. Just wanted to let you know.

Mother to Tyler (2 and 3 months) undetermined PFS and Dylan (4 weeks)

[Guest guest]

Hi!

I saw one of your prior posts about melody being heterogygus with

FMF - did you do further testing to confirm the FMF?

I am asking because my son was tested (5 main mutations for FMF were

tested) and 1 came back heterozygus (carrier) but since he is having

the fevers the doc is having the lab run a " Full Gene Sequencing " to

look at all the mutations for FMF - apparantly there are over 100.

Hopefully we will have an answer within the month. If it comes back

neg they will continue testing for the other genetic disorders until

we have an answer...I can't wait!

[Guest guest]

Hi!

I saw one of your prior posts about melody being heterogygus with

FMF - did you do further testing to confirm the FMF?

I am asking because my son was tested (5 main mutations for FMF were

tested) and 1 came back heterozygus (carrier) but since he is having

the fevers the doc is having the lab run a " Full Gene Sequencing " to

look at all the mutations for FMF - apparantly there are over 100.

Hopefully we will have an answer within the month. If it comes back

neg they will continue testing for the other genetic disorders until

we have an answer...I can't wait!