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We want to thank everyone for your support and also to update you on

recent developments.

I have spoken to Dr. Licameli's assistant and we scheduled an

appointment with him on December 29th. She is going to check with

the doctor to see if he knows of a doctor closer to us that has

experience with , but if he doesn't, we are off to Boston. We

live in central Pennsylvania, so it will be about an 8 hour drive.

But, if it means finding help for Kurtis, it will be worth it.

In the meantime, Kurtis is almost over his latest episode. His fever

finally stopped on Monday and his appetite is returning. We are

hoping he'll eat a big turkey dinner tomorrow. He has an appointment

with his regular pediatrician on December 1st, and thanks to Dr.

Licameli's assistant and this group, we have lots of information on

to share with him. Hopefully, he will be receptive to it and

look into it further, if not, we will be looking for a new

pediatrician. He is also having some bloodwork done on Monday.

We wish everyone a Happy Thanksgiving and God bless all of you!!

The Liegey Family (Bob, Janine, , and Kurtis)

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