Still Searching

[Guest guest]

Hi Cha and all

You asked about Hans....He isn't doing so well lately. We've decided,

with the backing of the Education Department, the school and the

specialist to home-school Hans as he just can't go to school enough to

be assessed and is losing ground. He is really tired all the time now

and the effort to get up early to catch the bus, the bus trip and the

climbing 2 flights of stairs all day, with the usual school program

etc is just too much for him. He was really crook during the holidays

and just recovered before going back to school and on the first day

back he got crook again......vomiting almost everything he eats. We

are at the stage where I have to cook him separate meals if he eats

anything at all (he no longer tolerates dishes he ate previously with

no problem) and most of the time he will bring it back up during the

night. We are due to see the gastro doctor on the 23rd of January but

don't want to wait that long and have rung her. She said to do an

abdominal ultra sound asap and to ring her back. That is scheduled

for Monday. I think to get to the bottom of this we need to do the

dreaded series of " scopies " as Heidi calls them. We really want to do

that soon as it is just too painful to see your child like this and

not be able to offer any help. I know you all understand. When I

have some news I will let you know. Hans will be 13 in February and

this has been going on just too long. Here's hoping for some

long-awaited answers,

Take care, Debbie, mum to Hans (almost 13) ??

South of France

[Guest guest]

Hi Melody and all

Thanks once again for your input. Our situation is a little different

as we live in France and really don't have a choice on curriculums

etc. There is only one approved by the Ed. Dep't so we have to make

do with that. My folks are coming from Australia for 3 months in May

so although everything will be in French there still will be a

presence there a lot of the time. Unfortunately my husbands folks

live too far away to be able to help out. We will do this for 6

months hoping to find a solution to the present health problems in the

mean time. He isn't really doing any sport at the moment as when he

does he is just a mess afterwards - that is part of the reason we are

keeping him home - so he can sleep and rest. This is also why we are

hoping it is only temporary - it's as if his whole life (and ours at

times) were on hold. Anyway we passed on the ultra sound results to

the gastro doc today and are really hoping that when we see her next

week she will have some ideas, at least about exploring a bit within

her field. Up until now we were more involved with the rheumatology

and neurology sides of things. To us it seems obvious that there is

a digestive problem but doctors as we all know often don't see things

the way parents do, or at least not within the same time-frame. But I

think we are gradually getting there.

Take care and I hope you can all benefit from Lori's wonderful work.

There really are some " gems " out there.

Debbie, mum to Hans - 13 years, ??

South of France