T & A, I Heard of It THROUGH THIS GROUP

[Guest guest]

Hello friends,

Mom of 3 1/2 year old Hannah who's suffered with PFAFA since 8 mos.

old. During the beginning the fevers and episodes were about every 3

to 4 weeks, but with prednisolone treatments a few days each month,

they stretched now to about every 6 weeks. Showing signs

of " outgrowing it " .

Monthly hospitalizations have been the norm for us, usually do to

dehydration from access vomiting, and febrile seizure due to the 105

to 107 degree fevers.

Reading these boards and upkeep, I saw so much mentioned about the T

& A surgery and remained adamant about giving it a try. She had the

surgery on NOV 10th, and it is now Dec 16. She recovered SOOOOO

COMPLETELY easily and quickly from it, and hasn't had A SINGLE

EPISODE or sign of an episode. We are so thankful for the

information we've been blessed with receiving through this group.

So to all moms, I want to say, " Hang in there " and take time to read

and sometimes read between the lines. Like so many moms on here, I

too am a single mom (recently widowed), It is such a difficult thing

to handle and is multiplied when you are handling it alone.

KNOWLEDGE is power! Get and keep informed, this is still such an

extremely rare condition that it helps to be knowledgable.

Keeping all you other PFAFA moms in my thoughts and prayers, and

crossing my fingers to be exiting out of this nightmare soon,

Springfield, TN

mom of Hannah age 3 1/2