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Is there anyone on here that lives in Montana or near? Where we live we

are limited for DRs. Any specialists live 4 hours away from us. We have

seen Immunology, Infectious Disease and Hematology/Oncology. Which

specialist is the best to see for ? Hem/Onc is who diagnosed my

son & we have follow up with him. Our pediatrician doesn't really know

anything about and the specialists that we have seen don't

either. Does anyone know any DRs in the Montana, North Dakota, Wyoming

area that do know about . We really don't care how far we have to

travel to maybe get some answers and information. I also read on one of

the posts something about Cyclic Neutropenia and it seems that alot of

the symptoms for that are the same as ! Is there a special test

that needs to be done for that? Also, does anybody have good websites

for information on and possible long term affects?

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