Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 We are celebrating ONE MONTH without any fevers following Damian's T/A on November 3rd. Before we had our final diagnosis of for the second time (he went into a remission for 6 months and threw us off track and we started over with the pattern, etc) I went to the ENT trying to get his tonsils out and heard, " It's just normal childhood virus... blah blah blah. " I knew something had to give. Finally with the second diagnosis we had the T/A done 4 months after trying prednisone and increased fevers. With his negative behaviors I was not going to put up with the behaviors and increased sickness anymore after hearing the success with this group on the T/A (THANK YOU!!!). Let me tell you, besides not having an espisode, Damian is eating everything he possibly can and his behaviors are like a " normal " five year old instead of out of control. So those I have talked to about behaviors and recently in other posts.... please consider the T/A if you haven't already. I cried because I did not want to do this to my child. We try and do what we can in holistic approaches, but the T/A I feel was more humane to my son than what his life was like with or without the prednisone. I pray this will keep Damian from ever having an episode again in his life, but they don't know the long-term results. But right now, with his development being so critical we wanted him to have the best opportunity in school socially and academically. The one good thing about my son having is his special education teacher at school just had her son diagnosed with after I provided her with the information on my son. After getting that information it allowed her to address her own sons medical needs accurately. My son is so good at doing for others, it's no surprise his own would help another young child. I feel so blessed to have this group to go to. I like how everyone is in different stages of this, but regardless if it was 20 years ago or now, it's nice to hear everyones posts and stories. This feeling of one month fever free is so wonderful I can't imagine how we would feel if he starts to fever again. But, we are looking foward to the best outcome possible, despite my hand continuing to check his forehead for any fevers I hope I can break that habit! Thanks for letting me share our news! Quote Link to comment Share on other sites More sharing options...
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