Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Hi . Have you ever had this test before? Did you have an active infection at the time the test was taken? Has the doctor ever mentioned lupus? Here is a site that explains the test: http://labtestsonline.org/understanding/analytes/cardiolipin/test.html a On May 16, 2005, at 9:03 AM, wrote: > Hi, > > I recently had some blood tests done and one came back out of > range......IGM > Cardiolipin AB. My doctor says it means I'm at a high risk for > developing > blood clots. I'm supposed to take a baby aspirin daily. Becareful > about > sitting in one place too long (like airplane trips), and watch for > pain/swelling in my legs. > > She says it's related to my RA. > > Anyone else have experience with this? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 , do you know which test was done, the reference range for the lab where it was performed, and what your titer for the anticardiolipin antibodies was? People with RA can have elevated levels of anticardiolipin antibodies. There is also much evidence that treatment with any of the anti-TNF biologics also cause people with RA to form anticardiolipin antibodies. Do you use Enbrel, Remicade, or Humira? Though I don't know how high they are, my mother has these antibodies and takes no preventative measures and has had no events (she is 68). On the other hand, I do have a friend who has lupus who has them, too, but she has had serious complications. Have you ever had any sort of thrombotic event in the past? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Blood Clots > Hi, > > I recently had some blood tests done and one came back out of > range......IGM > Cardiolipin AB. My doctor says it means I'm at a high risk for developing > blood clots. I'm supposed to take a baby aspirin daily. Becareful about > sitting in one place too long (like airplane trips), and watch for > pain/swelling in my legs. > > She says it's related to my RA. > > Anyone else have experience with this? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Hi, all - I have a serious problem with my cousin, Dona. A short time ago, I asked about Aranesp side effects and was able to speak with their direct phone. They did not feel her sudden extreme balance problem (and nausea) could be their product. They mailed her some material which stated if there were balance problems and nausea, could possibly by blood clots. About a week ago, she had sudden pain in legs and an ultrasound was done. She does have them in legs and says she more or less screams all night. Her onc said she could take Darvon (prescribed to her long ago in Houston). But there was no other pain med available if on Gleevec. Today she is about passing out from pain. She called MDACC but they said entirely up to her local Dr. It seems to me I have read some of your emails that indicated you were on something stronger than Darvon (PDR says for mild to moderate pain.) She was sent to ER from the imaging dept. for a blood-thinner shot and has had a few days of those. Mon. she began Coumadin, but there has been no relief from her nights spent screaming. Btw, Houston said on phone she absolutely could not do the Coumadin. Yesterday, however, they would not state any painkillers as they leave all meds to local Drs. (!) Anyway, she wants me to ask whether any of you have had blood clots or on any stronger-than-Darvon med. Her local onc is totally worthless, and has been since 2000, but not much choice in Tucson. Thank you for " listening. " Avis (Hertz Nurtle) Dona dx Dec. 2000 Gleevec 400 mg (now 300) on clinical trial (Dr. Talpaz) Now Dr. Cortes Zavie's list #141 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Hello, I take M.S. Contin(30Mg) every twelve hours and Norco every 4 hours.I am not willing to live in pain.No need to.Pills help me so I choose to use them.Keep looking for a DR. to help. Thanks SharonS In , avisallen@... wrote: > > Hi, all - I have a serious problem with > my cousin, Dona. A short time ago, > I asked about Aranesp side effects and > was able to speak with their direct phone. > They did not feel her sudden extreme > balance problem (and nausea) could be > their product. They mailed her some > material which stated if there were > balance problems and nausea, could > possibly by blood clots. About a week > ago, she had sudden pain in legs and an > ultrasound was done. She does have them in legs and says she more or > less > screams all night. Her onc said she could > take Darvon (prescribed to her long ago > in Houston). But there was no other > pain med available if on Gleevec. Today > she is about passing out from pain. She > called MDACC but they said entirely up to > her local Dr. It seems to me I have read > some of your emails that indicated you > were on something stronger than Darvon > (PDR says for mild to moderate pain.) > She was sent to ER from the imaging dept. for a blood-thinner shot and > has had > a few days of those. Mon. she began > Coumadin, but there has been no relief > from her nights spent screaming. > Btw, Houston said on phone she absolutely could not do the Coumadin. > Yesterday, however, they would not state > any painkillers as they leave all meds to > local Drs. (!) Anyway, she wants me to > ask whether any of you have had blood > clots or on any stronger-than-Darvon med. > Her local onc is totally worthless, and has > been since 2000, but not much choice in > Tucson. > Thank you for " listening. " > Avis (Hertz Nurtle) > Dona dx Dec. 2000 > Gleevec 400 mg (now 300) on > clinical trial (Dr. Talpaz) > Now Dr. Cortes > Zavie's list #141 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 My onc has prescribed me 2 mg Morphine for joint pain and muscle spasms . I have had no problems with it. I have only taken it a dozen or so times in a year, but it helped a lot. Eva From: serenitywon Sent: Wednesday, April 01, 2009 2:41 PM Subject: [ ] Re: Blood clots Hello, I take M.S. Contin(30Mg) every twelve hours and Norco every 4 hours.I am not willing to live in pain.No need to.Pills help me so I choose to use them.Keep looking for a DR. to help. Thanks SharonS In , avisallen@... wrote: > > Hi, all - I have a serious problem with > my cousin, Dona. A short time ago, > I asked about Aranesp side effects and > was able to speak with their direct phone. > They did not feel her sudden extreme > balance problem (and nausea) could be > their product. They mailed her some > material which stated if there were > balance problems and nausea, could > possibly by blood clots. About a week > ago, she had sudden pain in legs and an > ultrasound was done. She does have them in legs and says she more or > less > screams all night. Her onc said she could > take Darvon (prescribed to her long ago > in Houston). But there was no other > pain med available if on Gleevec. Today > she is about passing out from pain. She > called MDACC but they said entirely up to > her local Dr. It seems to me I have read > some of your emails that indicated you > were on something stronger than Darvon > (PDR says for mild to moderate pain.) > She was sent to ER from the imaging dept. for a blood-thinner shot and > has had > a few days of those. Mon. she began > Coumadin, but there has been no relief > from her nights spent screaming. > Btw, Houston said on phone she absolutely could not do the Coumadin. > Yesterday, however, they would not state > any painkillers as they leave all meds to > local Drs. (!) Anyway, she wants me to > ask whether any of you have had blood > clots or on any stronger-than-Darvon med. > Her local onc is totally worthless, and has > been since 2000, but not much choice in > Tucson. > Thank you for " listening. " > Avis (Hertz Nurtle) > Dona dx Dec. 2000 > Gleevec 400 mg (now 300) on > clinical trial (Dr. Talpaz) > Now Dr. Cortes > Zavie's list #141 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 Hi ! I don't know if it will help much but I can empathize with your plight. I, too, have suffered through several serious staph infections and in-home IV infusions, none of which were any fun at all. Fortunately, I haven't had blood clots but I have had an amputation and several surgeries due to the infections, so I understand what you're going through and your concerns. If there's anything I can do or say to help you through this, I'm here to help if I can. For now, just keep the faith. Darlene Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.