Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Terrific news!!!!!!! Matt Florida Sent from my iPhone On Apr 15, 2009, at 4:30 PM, Armour <suzzienovember@...> wrote: > > > CONGRATULATIONS RACHEL!!!! Will pray that all goes well for you. > Keep us updated. > > > > From: Fiol <rachel_art_design@...> > Subject: [ ] Good News > " Beth L Grossman " <blg1124@...>, " Beverly " <bevhelpsu@... > >, Bratskin66@..., " Charlotte " <charlockley@...>, > , " Eileen " <eileens@...>, " Felicia " > <leelee71477@...>, " Ingrida Grossman " <ingrida@...>, > " Jeanne Palomino " <PalominoX@...>, " JUSTIN O'CONNOR " <justinoco@... > >, " " <bratskin66@...>, " LINDA & RAYMOND KWAN " <LINRAY@... > >, " Louela " <zazzilou8@...>, " " <melann@... > >, rainger4by4@..., " " > <rogerandvince@...>, " s " <sjames6518@...>, > " Grossman " <SGrossman@...>, " Sara Buget " <sabuget@... > >, " TERRY O MAGICK " <tomagick@...>, " Thelma " <spivack1201@... > >, " " <cainkohl1@...> > Date: Wednesday, April 15, 2009, 9:25 AM > > Hi everyone, > I found out this morning thay there are 2 10 out of 10 bonemarrow > donor matches for me, so i will most likely be having a transplant > this year. > more info to follow later. > > Peace, Light & Love > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 Dear , That is really great news, including the weight loss, most people complain about gaining weight. I did. When I was taken off Gleevec, I lost 40# in just a few weeks as the fluid came off my hips, thighs and buttocks. The other thing I wanted to mention was today I received an invitation to attend 's baby shower and I couldn't think of any other but you. LOL I looked in the phone book for someone with that address and called the woman tonight and told her I couldn't place her, and couldn't find a connection. She told me it was my former neighbor's son whose wife was having a baby. I know he is thrilled because he is 44, the same age as my son. I hope people remember to write the full name of the person on their invitations and announcements. I have gotten graduation announcements and had no clue who they were. Anyway, if and when you decide to have another baby, I hope you will send us an invitation. LOL Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 LOL Lottie, you are so funny! Oh my goodness, I can't even imagine having another baby at my age. I will 49 on the 27th and I have 6 grandkids and another one on the way. They keep me hopping when I feel up to it and 2 of them live with us. BUT, if I ever have another one, I will be sure to send you an invitation to the shower and to the celebration cause we will all be rich since I have no incubator to make a baby in, lol. Just make sure you like mental wards because I can assure you, that is where I will be if I ever get pregnant again,lol. Take care and keep us smiling... From: Lottie Duthu <lotajam@...> Subject: [ ] Good news " CML " < > Date: Wednesday, June 10, 2009, 6:00 AM Dear , That is really great news, including the weight loss, most people complain about gaining weight. I did. When I was taken off Gleevec, I lost 40# in just a few weeks as the fluid came off my hips, thighs and buttocks. The other thing I wanted to mention was today I received an invitation to attend 's baby shower and I couldn't think of any other but you. LOL I looked in the phone book for someone with that address and called the woman tonight and told her I couldn't place her, and couldn't find a connection. She told me it was my former neighbor's son whose wife was having a baby. I know he is thrilled because he is 44, the same age as my son. I hope people remember to write the full name of the person on their invitations and announcements. I have gotten graduation announcements and had no clue who they were. Anyway, if and when you decide to have another baby, I hope you will send us an invitation. LOL Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 LOL...that is funny Lottie! I can't even imagine having another baby at my age. I will be 49 on the 27th and I have 6 grandkids. 2 of them live with us and they keep me hopping when I am up to it. I can't have anymore anyway but even if I could, I don't think it would be good news so I surely wouldn't be celebratng it, lol. BUT if by some miracle I do get pregnant, I will be sure to send you an invitation to the mental ward cause that is where I would be!!!...Keep us smiling... From: Lottie Duthu <lotajam@...> Subject: [ ] Good news " CML " < > Date: Wednesday, June 10, 2009, 6:00 AM Dear , That is really great news, including the weight loss, most people complain about gaining weight. I did. When I was taken off Gleevec, I lost 40# in just a few weeks as the fluid came off my hips, thighs and buttocks. The other thing I wanted to mention was today I received an invitation to attend 's baby shower and I couldn't think of any other but you. LOL I looked in the phone book for someone with that address and called the woman tonight and told her I couldn't place her, and couldn't find a connection. She told me it was my former neighbor's son whose wife was having a baby. I know he is thrilled because he is 44, the same age as my son. I hope people remember to write the full name of the person on their invitations and announcements. I have gotten graduation announcements and had no clue who they were. Anyway, if and when you decide to have another baby, I hope you will send us an invitation. LOL Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 BRAVO, MARCOS !! Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz --- On Fri, 8/7/09, Marcos Perreau Guimaraes <montereyunderwater@...> wrote: From: Marcos Perreau Guimaraes <montereyunderwater@...> Subject: [ ] good news " " < > Date: Friday, August 7, 2009, 2:41 AM Hi all, I hope everybody is doing as good as possible. I just received the test report from Stanford, and it is negative. It is the first time with the Stanford lab. I have been positive but too low to quantify for about year with Stanford and negative with the Kaiser test. We switched back to Stanford because the kaiser test didn't work last time. So now I can say I am truly PCRU. I got stuck for about 2 years at 2 log reduction, then about 1 year and a half ago it started down again, although I stayed on 400mg of gleevec. For those new to the list I was dxed in march 2005 at age 38 with ~250k wbc, huge spleen and a high risk sokal score and put on gleevec 400mg. The rate of remission had some plateaus and bumps but it eventually went down to 0. I resumed a complete normal life, all the sports I used to practice. I am generally feeling pretty well with very moderate side effects once in a while. Marcos. -- Marcos Perreau Guimaraes Suppes Brain Lab Ventura Hall - CSLI Stanford University 220 Panama street Stanford CA 94305-4101 650 614 2305 650 468 9926 (cell) marcospgstanford (DOT) edu montereyunderwater@ gmail.com www.stanford. edu/~marcospg/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 Marcos, Great news! Congratulations. Beth [ ] good news  Hi all, I hope everybody is doing as good as possible. I just received the test report from Stanford, and it is negative. It is the first time with the Stanford lab. I have been positive but too low to quantify for about year with Stanford and negative with the Kaiser test. We switched back to Stanford because the kaiser test didn't work last time. So now I can say I am truly PCRU. I got stuck for about 2 years at 2 log reduction, then about 1 year and a half ago it started down again, although I stayed on 400mg of gleevec. For those new to the list I was dxed in march 2005 at age 38 with ~250k wbc, huge spleen and a high risk sokal score and put on gleevec 400mg. The rate of remission had some plateaus and bumps but it eventually went down to 0. I resumed a complete normal life, all the sports I used to practice. I am generally feeling pretty well with very moderate side effects once in a while. Marcos. -- Marcos Perreau Guimaraes Suppes Brain Lab Ventura Hall - CSLI Stanford University 220 Panama street Stanford CA 94305-4101 650 614 2305 650 468 9926 (cell) marcospg@... montereyunderwater@... www.stanford.edu/~marcospg/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 Marcos, I am a Kaiser member. I was wondering what you meant by " the Kaiser test did not work last time " ? Sharon T _____ From: [mailto: ] On Behalf Of Marcos Perreau Guimaraes Sent: Thursday, August 06, 2009 11:41 PM Subject: [ ] good news Hi all, I hope everybody is doing as good as possible. I just received the test report from Stanford, and it is negative. It is the first time with the Stanford lab. I have been positive but too low to quantify for about year with Stanford and negative with the Kaiser test. We switched back to Stanford because the kaiser test didn't work last time. So now I can say I am truly PCRU. I got stuck for about 2 years at 2 log reduction, then about 1 year and a half ago it started down again, although I stayed on 400mg of gleevec. For those new to the list I was dxed in march 2005 at age 38 with ~250k wbc, huge spleen and a high risk sokal score and put on gleevec 400mg. The rate of remission had some plateaus and bumps but it eventually went down to 0. I resumed a complete normal life, all the sports I used to practice. I am generally feeling pretty well with very moderate side effects once in a while. Marcos. -- Marcos Perreau Guimaraes Suppes Brain Lab Ventura Hall - CSLI Stanford University 220 Panama street Stanford CA 94305-4101 650 614 2305 650 468 9926 (cell) marcospgstanford (DOT) <mailto:marcospg%40stanford.edu> edu montereyunderwater@ <mailto:montereyunderwater%40gmail.com> gmail.com www.stanford.edu/~marcospg/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 And Marcos!!! I forgot to say " yipeeeeeeee!!! " Sharon T _____ From: [mailto: ] On Behalf Of anita Sent: Friday, August 07, 2009 5:15 AM Subject: Re: [ ] good news WOW Congratulations Marcos. Welcome to PCRU what wonderful news. Anita ________________________________ From: Marcos Perreau Guimaraes <montereyunderwater@ <mailto:montereyunderwater%40gmail.com> gmail.com> <groups (DOT) <mailto:%40> com> Sent: Friday, August 7, 2009 1:41:16 AM Subject: [ ] good news Hi all, I hope everybody is doing as good as possible. I just received the test report from Stanford, and it is negative. It is the first time with the Stanford lab. I have been positive but too low to quantify for about year with Stanford and negative with the Kaiser test. We switched back to Stanford because the kaiser test didn't work last time. So now I can say I am truly PCRU. I got stuck for about 2 years at 2 log reduction, then about 1 year and a half ago it started down again, although I stayed on 400mg of gleevec. For those new to the list I was dxed in march 2005 at age 38 with ~250k wbc, huge spleen and a high risk sokal score and put on gleevec 400mg. The rate of remission had some plateaus and bumps but it eventually went down to 0. I resumed a complete normal life, all the sports I used to practice. I am generally feeling pretty well with very moderate side effects once in a while. Marcos. -- Marcos Perreau Guimaraes Suppes Brain Lab Ventura Hall - CSLI Stanford University 220 Panama street Stanford CA 94305-4101 650 614 2305 650 468 9926 (cell) marcospgstanford (DOT) edu montereyunderwater@ gmail.com www.stanford. edu/~marcospg/ Quote Link to comment Share on other sites More sharing options...
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