Re: More names in Blue Book

[Guest guest]

do i qualify into this blue book? I was diagonised with 2004. have been on

gleevec since december of 2004 but unfortunately i don't know my current

prognosis since i don't have an oncologist. i feel great though and feel very

healthy. my 31 birthday was this month.

the reason i wonder if i qualify on the blue book is because am 100% sure i had

lived with cml for over 10 years without any treatment until i was diagonised in

2004 and put on gleevec. so as of today i can say it's over 14 years.

in 1993, i fell sick with malaria(am from africa-kenya), i went for like 4 days

without eating and with constant nausea and vomiting. that's the first time i

felt a lamp on my left abdomen. it kept growing since then, i had all the cml

symptoms until it 2004 when it was confirmed when i came to the US. the lamp in

my abdomen was my enlarged spleen and it's now gone. my story is complicated but

i just wanted to share something with everybody in this group. since i have no

oncologist, this is my number one place for information and i read every post

and hope tomorrow will be better. how i lived with cml for over 10 years without

treatment though remains a mystery to me.

From: Lottie Duthu <lotajam@...>

Subject: [ ] More names in Blue Book

" CML " < >

Date: Friday, 22 May, 2009, 12:18 AM

Dear Ellen,

How good to hear a voice from the past. You are now officially registered

in our Blue Book of Survivors. Hopefully you will share with us how you are

presently doing.

I am hoping that others who have not posted in a while will see our Blue Book

and how it is growing will also respond and add their names. Maybe we should

call it the " Hall of CML Famers " . LOL.

Best of luck to all of our list subscribers,

Lottie

[Guest guest]

Hi ,

Have you ever had a BMB, FISH or PCR test?

If you are on Gleevec, who prescribes it and who pays for it, and who

follows your progress?

Also, where are you living right now?

I ask all these questions because I am always looking for new Zero Club

members. To get a number, you need to have one of the tests confirm that you

are at CCR.

Zavie

Zavie (age 70)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-282-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of Maluki

peter

Sent: May 21, 2009 8:11 PM

Subject: Re: [ ] More names in Blue Book

do i qualify into this blue book? I was diagonised with 2004. have been on

gleevec since december of 2004 but unfortunately i don't know my current

prognosis since i don't have an oncologist. i feel great though and feel

very healthy. my 31 birthday was this month.

the reason i wonder if i qualify on the blue book is because am 100% sure i

had lived with cml for over 10 years without any treatment until i was

diagonised in 2004 and put on gleevec. so as of today i can say it's over 14

years.

in 1993, i fell sick with malaria(am from africa-kenya), i went for like 4

days without eating and with constant nausea and vomiting. that's the first

time i felt a lamp on my left abdomen. it kept growing since then, i had all

the cml symptoms until it 2004 when it was confirmed when i came to the US.

the lamp in my abdomen was my enlarged spleen and it's now gone. my story is

complicated but i just wanted to share something with everybody in this

group. since i have no oncologist, this is my number one place for

information and i read every post and hope tomorrow will be better. how i

lived with cml for over 10 years without treatment though remains a mystery

to me.

From: Lottie Duthu <lotajamcomcast (DOT) <mailto:lotajam%40comcast.net> net>

Subject: [ ] More names in Blue Book

" CML " <groups (DOT) <mailto:%40> com>

Date: Friday, 22 May, 2009, 12:18 AM

Dear Ellen,

How good to hear a voice from the past. You are now officially registered in

our Blue Book of Survivors. Hopefully you will share with us how you are

presently doing.

I am hoping that others who have not posted in a while will see our Blue

Book and how it is growing will also respond and add their names. Maybe we

should call it the " Hall of CML Famers " . LOL.

Best of luck to all of our list subscribers,

Lottie

[Guest guest]

Zavie

I have made it to the Zero Club # 1197

Now just cruising along for another 8 years to make it to the BLUE BOOK

Put me in as a Blue Book tentative Member

Sue

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