Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 Hi Pat, This is Gretchen. Mom of 15. has been fairly well. His episodes are very different this last year. He no longer gets high fevers just low grade make him feel like crap fevers. He still get horrible white spots all over his throat and occasionally his uvula (hangy thing in back of throat?) will get very swollen. He will get a headache and have that pale look with purple under his eyes. He still keeps a happy disposition and plans on trying out for boys soccer team at the high school. He is much into the bass guitar and loves it! I hope PJ is doing well? Hope to hear from you soon. Gretchen Quote Link to comment Share on other sites More sharing options...
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