Sharon:

[Guest guest]

Read s next side effect info

Even though PCRU I have also

developed fragile skin,

bleed very easily

and bruise extremely well. All I had to do was bump lightly into an object

...........

Thanks - another side effect that I know is a glivec reaction - thought it

maybe from some other condition known as DOB (date of birth)

Cheers

Sue (Aussie)

Sharon:

Sharon

I wholeheartedly agree with Marcos

Early stages of treatment - 600mg

I have had huge side effects even from early dose of 200mg to settle me in - but

step at a time and you get thru.

Skin related: Hives, welts, ring worm type rash - perhaps a psorisis - shingles

- multiple episodes, water blisters,

a doosey of a blood blister rash, other undefined weird looking rashes and

marks that come out of nowhere

Skin getter paler - so I will be one of those people that you can say is a ghost

that walks - sun intolerant these days.

Hair - did not grow quickly - but did not fall out as I have heard a few people

have this issue -

quite thin - but lately getting thicker and believe it or not curly not just

wavy.

Lactose Intolerant type: Had to learn to eat around glivec medication

Vomiting - Big " D " - (now gone - that was at least the first year every couple

of days)

Odeama's - eyes, face - fingers, tops of feet

Weight Gain dramatic - weight loss dramatic

Fatiqued - from sleeping like sleeping beauty - a bomb could of gone off to days

of rest for hours at a time to now one day a week perhaps.

Could not exercise , could not walk up steps or really walk a street lenght at

all. Amazing like little things you think you are walking fast

but as people walk past you - you realise you aren't - now walking back to

normal.

Pain - bone pain, bone ache, muscle ache, like Marcos at times could not walk

without pain but you work thru that. Worse was the lower spinal pain, and deep

inner

hip pain and other times there has been aches along the long bones and stuff

like collar bones. Terrible chin soreness and tops of feet that I wore

thongs and bare feet at work.

Hormone issues - Yes the Famous Bleed-out - that was really just a dramatic

attention seeking moment - radical hysterectomy - then infusions,

transfusions,

Eyes - Vision problems at times

That was over first 18 months and nearing my two year anniversary:

Now PCRU - Yeh!! Zero Club No 1197 Yeh !! That does not mean that you do

not get side effects or your general chemisty is not affected.

But like Marcos - it gets better - Unlike Marcos I don't think I could climb a

mountain or deep sea dive - but I do not ride my horses anymore

but I can work them on the ground - have controlled exercise - just started gym

- CURVES - I think you have curves over there - 30 minute work-out for the girls

- walk my dog and work the property.

and Sharon you can work thru the issues - one at a time - you seek support and

become your own health advocate

My suggestion is to gather good medical people around you and seek a CML

Specialist second opinion to make good decisions on your treatment plan.

Sue (Aussie)