Re treatments not working anymore

[Guest guest]

Hi Cha and all

I'm sorry for those of you that are feeling like you're going

backwards. For the mum that had the T+A done that hasn't stopped the

fevers, will you go and have the genetic testing done or has it been

done already? They may need to reassess everything. And Cha I am

sorry about your son. Maybe he needs a higher dose of colchicine as

it did seem to be working for him, didn't it? Maybe he's in a growing

spurt? Let's hope so. I wish you all infinite courage.

Take care

Debbie, mum to Hans 13 (in Feb)

South of France