RE: Re: Question about Lymphoadenopathy-Need some reassurance from Veteran CMLers

[Guest guest]

I had swollen lymph glands also after being on Sprycel for three years. They

never did figure out what it was and they just went away. It was the same

time I had the plural Effusion so maybe that had something to do with it.

Who knows!!!!

Sharon

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From: [mailto: ] On Behalf Of

fran99504

Sent: Wednesday, May 27, 2009 1:18 PM

Subject: [ ] Re: Question about Lymphoadenopathy-Need some reassurance

from Veteran CMLers

,

I agree with Rhonda, although it seemed freaky at the time to be told I had

swollen lymph glands, they turned out to be nothing serious. Eventually mine

just went down on their own. My doctor monitored with CAT scans every 3

months and all was well. Have a good visit with your doctor. Be well.

Fran

> > >

> > > Dear Friends,

> > > I have not posted in a very long time but I try to read the message

board as often as possible. I hope you all find yourself in the best

possible health. I just came home this afternoon as I was hospitalized

overnight for an asthma exacerbation. While I was in the hospital, they

conducted some tests to rule out pleural effusion and blood clots in the

lungs and also gave me two chest xrays. All of the tests came back fine.

However, the doctors told me that I had evidence of Mediastinal

Lymphoadenopathy in my lungs which, apparently, means swollen lymph nodes.

The regular doctors in the hospital did not know much about CML, as can be

expected, but they explained to me that it is probably related to the CML

and that it is not something for me to worry about and just needs to be

followed up with a CAT scan in four months to see if it resolves itself or

needs to be biopsied for infection. I'm sure that my CML doctors will have

more definitive answers for me as I have an appointment next Friday. I have

had consistent PCRUs since las November. My last PCR was less than two

months ago and it was PCRU. Another thing I noticed is that the Steroids

they gave me for my asthma raised my White Blood Cells considerably

overnight. They also gave me a shot of Heparin which they said is standard

for all patients to prevent blood clots while laying in the hospital. I read

online that the Steroids and the Heparin raise the Whites. As a matter of

fact, my doctor had told me to limit my consumption of Steroids to times

when my asthma is really bad because they raise the Whites. My Whites are

always high and range anywhere from 10 to 14 even if my PCR is undetectable.

The day I went to the ER, which was Thursday, my Whites were 14. The

following day, Friday, after taking the Prednisone Steroids and the Heparin,

my Whites were 20. I was diagnosed July, 2007 and have met all milestones

and always had high whites despite having 0 FISH all along and PCRU. My

questions are, why would I have Adenopathy if my CML has been under control

and I have consistently tested PCRU? Also, has anyone else here had

Lymphoadenopathy/swollen lymph nodes? Is this a sign that my medication is

not going to work anymore (Gleevec 400mg) or is this a common CML issue?

> > >

> > > Thank you all so much for your help in advance,

> > > (NYC)

> > >

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