Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Anita, I am so very happy for you. May God continue to bless you and us all. Eva From: awristen1 Sent: Wednesday, June 03, 2009 11:05 AM Subject: [ ] MOLECULAR REMISSION I was dx'd on April 2007 in blast phase given a short time to live, then 9 mths later I was told would not make 2 years without a bone marrow transplant. My response back then was you do not know my God. On Monday my Doctor announced that I am now in Molecular Remission. I have been and am still taking Sprycel, and will do so for life. Found no phillies or mutation, through blood work as I do not allow BMB because of the only two I have had were from amateurs. And now have problems with my right lower back from last BMB that was over a year ago. God Bless you all. Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 - Hi Anita: First let me say I loved that response about them not knowing your God. I felt the same way when I was going through so much. I found it very interesting that you say you had amateurs doing your BMB. When I was in clinical trial in New York, the doctor I had that was treating me throughout the trial would do my BMB in his office, and all I got was Lidocaine. Let me tell you, besides the pain I had to endure. He knocked my back out of alignment everytime he did a biopsy. We used to go into NY by train and take the taxi. I had to bring a rib belt with me, knowing I would need it so I could walk to the taxi and endure the train ride home. He told me I was just high strung, and that it was not a bad procedure. This guy was way over retirement age, and had no strength. He also should have used a stool to stand on. He could not even reach me on the table. To this day, I do not think he had the strength to get into the bone properly. I will never forget those days. I am sure so many of us have stories we will never forget. I am all for the PCR, and no more BMB. So glad for your remission. Life is Hard But God Is Good. -- In , " awristen1 " <awristen1@...> wrote: > > I was dx'd on April 2007 in blast phase given a short time to live, then 9 mths later I was told would not make 2 years without a bone marrow transplant. My response back then was you do not know my God. > > On Monday my Doctor announced that I am now in Molecular Remission. > I have been and am still taking Sprycel, and will do so for life. > > Found no phillies or mutation, through blood work as I do not allow BMB because of the only two I have had were from amateurs. And now have problems with my right lower back from last BMB that was over a year ago. > > God Bless you all. > Anita > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Your message filled me with hope and energy, to say nothing of plenty admiration for your faith and strength. YES!! RL From: awristen1@... Date: Wed, 3 Jun 2009 15:05:56 +0000 Subject: [ ] MOLECULAR REMISSION I was dx'd on April 2007 in blast phase given a short time to live, then 9 mths later I was told would not make 2 years without a bone marrow transplant. My response back then was you do not know my God. On Monday my Doctor announced that I am now in Molecular Remission. I have been and am still taking Sprycel, and will do so for life. Found no phillies or mutation, through blood work as I do not allow BMB because of the only two I have had were from amateurs. And now have problems with my right lower back from last BMB that was over a year ago. God Bless you all. Anita _________________________________________________________________ Windows Live™: Keep your life in sync. http://windowslive.com/explore?ocid=TXT_TAGLM_WL_BR_life_in_synch_062009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Your letters made me smile. YES, God is good! All the time!!! I am amazed that I am still alive today, 16 years after I was first diagnosed with hairy cell leukemia and 11 years after being diagnosed with CML. People were given about 5 years to live if they were lucky at the time of my CML diagnosis. I've had BMB done in 3 different hospitals and I will never have another one done unless I am at MDA in Houston. Every experience there has been great. Only once over many years and as many as four bmb per year in the early experimental stages of Gleevec, did I experience any significant pain. The other two places, hospitals in San and Lubbock, TX, were nightmares. God bless, Gay On Jun 3, 2009, at 3:51 PM, suzzienovember wrote: > > > - Hi Anita: First let me say I loved that response about them not > knowing your God. I felt the same way when I was going through so > much. I found it very interesting that you say you had amateurs doing > your BMB. When I was in clinical trial in New York, the doctor I had > that was treating me throughout the trial would do my BMB in his > office, and all I got was Lidocaine. Let me tell you, besides the > pain I had to endure. He knocked my back out of alignment everytime > he did a biopsy. We used to go into NY by train and take the taxi. I > had to bring a rib belt with me, knowing I would need it so I could > walk to the taxi and endure the train ride home. > He told me I was just high strung, and that it was not a bad > procedure. This guy was way over retirement age, and had no strength. > He also should have used a stool to stand on. He could not even > reach me on the table. To this day, I do not think he had the > strength to get into the bone properly. I will never forget those > days. > I am sure so many of us have stories we will never forget. I am all > for the PCR, and no more BMB. So glad for your remission. > Life is Hard But God Is Good. > > -- In , " awristen1 " <awristen1@...> wrote: > > > > I was dx'd on April 2007 in blast phase given a short time to > live, then 9 mths later I was told would not make 2 years without a > bone marrow transplant. My response back then was you do not know my > God. > > > > On Monday my Doctor announced that I am now in Molecular Remission. > > I have been and am still taking Sprycel, and will do so for life. > > > > Found no phillies or mutation, through blood work as I do not > allow BMB because of the only two I have had were from amateurs. And > now have problems with my right lower back from last BMB that was > over a year ago. > > > > God Bless you all. > > Anita > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 That's a kind of post who make a great feeling to all of us . Thank's to share that . You can be proud of you . Congratulation. Emile # 527 Zavie's Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Amen to both! Congrats to Molecular remission and a sustaining faith. Sent from my Verizon Wireless BlackBerry [ ] MOLECULAR REMISSION I was dx'd on April 2007 in blast phase given a short time to live, then 9 mths later I was told would not make 2 years without a bone marrow transplant. My response back then was you do not know my God. On Monday my Doctor announced that I am now in Molecular Remission. I have been and am still taking Sprycel, and will do so for life. Found no phillies or mutation, through blood work as I do not allow BMB because of the only two I have had were from amateurs. And now have problems with my right lower back from last BMB that was over a year ago. God Bless you all. Anita _________________________________________________________________ Windows Live™: Keep your life in sync. http://windowslive.com/explore?ocid=TXT_TAGLM_WL_BR_life_in_synch_062009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 That is wonderful!!! I love good news Sharon T _____ From: [mailto: ] On Behalf Of Sandy Sent: Thursday, November 05, 2009 12:13 PM Subject: [ ] Molecular Remission Hi everyone. This is to give encouragement to the newbies and parents of children of CML. My daughter, Robyn, was diagnosed with CML last March. As of April she was put on Gleevec. She is now is complete molecular remission. Eventually, you and or your children that have CML will be in the same safe place as Robyn. Good wishes to you all. Sandi Quote Link to comment Share on other sites More sharing options...
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