Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Hi: I know this subject has been brought up awhile back, but I would like to know how many people get these dizzy spells that are on Gleevec. I had a real bad one today well I was driving. I could not focus my eyes and I saw double. I was driving, and my husband was with me. I hate his driving, so I decided to drive. I made it into a parking lot at the store we were going to. I had to sit for a few minutes to get my bearings. Then we went into the store, and we were in there for a long time. I was fine. He did drive home, and I felt very tired and dozed off for more than a hour. I have had them periodically, but not like the one today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Hi all. I wonder whether dizzy spells are part of the CML, not the Gleevec. My daughter, Robyn, had many dizzy spells before she was diagnosed with CML. The New Jersey doctor did not think that it was related to CML, but the doctor at Sloan Kettering in New York thought that it was. This occurred before she started taking the Gleevec. Since she is on it, she has not had dizzy spells. Her blood pressure tends to run on the low side and never caused dizzy spells. Sandi ________________________________ From: " mtmaynor@... " <mtmaynor@...> " " < > Sent: Tuesday, June 2, 2009 8:41:44 PM Subject: Re: [ ] Dizzy Spells I have had that as well. My Oncologist could not explain it, but I have come to believe it was an issue with blood pressure. I am on Tasigna and while I have always had a steady 126/68 BP, mine has been climbing the 18 months I have been on Tasigna. In fact at my last visist it was 155/112. When it was that high, I got the same dizzy feeling, so in my mind, that is what it was. Are you on Gleevec? Ant other significant side effects. This may sound awful, but it is comforting someone else has experienced it. I thought it was unrelated to meds, but with someone else reporting it that makes it more likely to be associated with treatment. Matt Florida Sent from my iPhone On Jun 2, 2009, at 8:23 PM, " suzzienovember " <suzzienovember> wrote: > > > Hi: I know this subject has been brought up awhile back, but I would > like to know how many people get these dizzy spells that are on > Gleevec. > I had a real bad one today well I was driving. I could not focus my > eyes and I saw double. I was driving, and my husband was with me. > I hate his driving, so I decided to drive. I made it into a parking > lot at the store we were going to. I had to sit for a few minutes to > get my bearings. Then we went into the store, and we were in there > for a long time. I was fine. He did drive home, and I felt very > tired and > dozed off for more than a hour. I have had them periodically, but > not like the one today. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Matt, I am on Gleevec now for a year.I have been having low blood pressure since starting gleevec.My regular reading now is about 89/60.The nurse said " wow " if you weren't sitting here talking to me right now I would be worried but you seem fine..I get light headed when getting up even when going slowly.lol Thanks SHaronS In , mtmaynor@... wrote: > > I have had that as well. My Oncologist could not explain it, but I > have come to believe it was an issue with blood pressure. I am on > Tasigna and while I have always had a steady 126/68 BP, mine has been > climbing the 18 months I have been on Tasigna. In fact at my last > visist it was 155/112. When it was that high, I got the same dizzy > feeling, so in my mind, that is what it was. > > Are you on Gleevec? Ant other significant side effects. > > This may sound awful, but it is comforting someone else has > experienced it. I thought it was unrelated to meds, but with someone > else reporting it that makes it more likely to be associated with > treatment. > > Matt > Florida > > Sent from my iPhone > > On Jun 2, 2009, at 8:23 PM, " suzzienovember " > <suzzienovember@...> wrote: > > > > > > > Hi: I know this subject has been brought up awhile back, but I would > > like to know how many people get these dizzy spells that are on > > Gleevec. > > I had a real bad one today well I was driving. I could not focus my > > eyes and I saw double. I was driving, and my husband was with me. > > I hate his driving, so I decided to drive. I made it into a parking > > lot at the store we were going to. I had to sit for a few minutes to > > get my bearings. Then we went into the store, and we were in there > > for a long time. I was fine. He did drive home, and I felt very > > tired and > > dozed off for more than a hour. I have had them periodically, but > > not like the one today. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Hello Cmlers, I have had many of those dizzy spells in the past and currently. When I feel they seem bad, I tend to stay at home more. When they were bad, like not being able to walk, or go anywhere, I called an Acupuncturist, and had a friend drove me over to her office for a session. After the needles, came the massage, what a nice relieve it was! Now, I don't have too many problems. But what I would like to know is if anyone is experiencing the rashes again? Dory Doggie ________________________________ From: serenitywon <serenitywon@...> Sent: Tuesday, June 2, 2009 11:28:04 PM Subject: [ ] Re: Dizzy Spells Hello, I get dizzy when standing up from a sitted position.I try to go slow but it still happens.I have however very blurred vision since starting Gleevec.It seems to have gotten really bad the last 9 months.I have been on Gleeved 1 year now.I had an eye exam and now need glasses.I am waiting for them to arrive.Sorry to hear of your issues and hope they improve.Be very careful.. SharonS In groups (DOT) com, " suzzienovember " <suzzienovember@ ...> wrote: > > Hi: I know this subject has been brought up awhile back, but I would like to know how many people get these dizzy spells that are on Gleevec. > I had a real bad one today well I was driving. I could not focus my eyes and I saw double. I was driving, and my husband was with me. > I hate his driving, so I decided to drive. I made it into a parking lot at the store we were going to. I had to sit for a few minutes to > get my bearings. Then we went into the store, and we were in there for a long time. I was fine. He did drive home, and I felt very tired and > dozed off for more than a hour. I have had them periodically, but not like the one today. > Quote Link to comment Share on other sites More sharing options...
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