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Re: Iron Infusion.....anyone????

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Hi Amy.

I have had quite a few iron infusions while I was on Gleevec.  I also needed

blood transfusions and believe me, iron is a very easy procedure.  It took about

an hour with no complications.  Good luck.

________________________________

From: Amy <aimesc31@...>

Sent: Wednesday, April 29, 2009 5:11:09 PM

Subject: [ ] Iron Infusion.....anyone????

I will start having iron infusions next week. Apparently I am having trouble

absorbing iron.....gastric bypass related. My H/H is consistently 10/30 and Iron

at 7......so infusions are a must. I haven't ever had one and do not know anyone

who has. Just wondering if there are any problems associated with them. They

will only infuse in a cancer center here.....so makes me wonder. cml still

hanging in there at PCRU....last PCR 0.06 after being up to a 2 while pregnant.

Last WBCs 5.4. So at least I absorb the gleevec.

BABY FRONT.... Brent is now 18 months old, and if I do say so my self one heck

of a charmer. He is such a BOY. In a family of all GIRLS he is quite a treat. He

says everything, climbs everything and melts my heart with every look, kiss and

smile. I am definitely BLESSED.

Finally..... ...Hello to all my friends, all the newbies and anyone else! This

is a fantastic group that I am proud to be part of, but since the baby, have not

had much time. I'm always here if you need me and will be glad to help anyone.

, Zavie thank you sooooooooooo much for all you do. This group needs you!

Amy B.

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Amy,

I had 5 bags of iron infused last year. I think the name was Venofor but I am

not positive on that. I do know there are a couple different types and the one I

had was a piece of cake. I went Mon. Wed. Fri and then Mon. Wed of the next

week. The first one took a couple of hours as they run that one slow to make

sure you don't have any bad reaction to it. All of the others only took about an

hour. I had low iron saturation levels at the time and that is why I need the

infusions. I had absolutely no problems with the infusions. I would recommend

they leave the line in your vein that way you don't have to get stuck each time

if you are having more then one that is. I was told that 5 infusions is a common

number to have. Mine where all done at the local hospital even though we do

have a small cancer center attached to the hospital.

I hope this helps, if you have any questions feel free to give me a shout.

Chuck

-- In , " Amy " <aimesc31@...> wrote:

>

> I will start having iron infusions next week. Apparently I am having trouble

absorbing iron.....gastric bypass related. My H/H is consistently 10/30 and

Iron at 7......so infusions are a must. I haven't ever had one and do not know

anyone who has. Just wondering if there are any problems associated with them.

They will only infuse in a cancer center here.....so makes me wonder. cml still

hanging in there at PCRU....last PCR 0.06 after being up to a 2 while pregnant.

Last WBCs 5.4. So at least I absorb the gleevec.

>

> BABY FRONT.... Brent is now 18 months old, and if I do say so my self one heck

of a charmer. He is such a BOY. In a family of all GIRLS he is quite a treat.

He says everything, climbs everything and melts my heart with every look, kiss

and smile. I am definitely BLESSED.

>

> Finally........Hello to all my friends, all the newbies and anyone else! This

is a fantastic group that I am proud to be part of, but since the baby, have not

had much time. I'm always here if you need me and will be glad to help anyone.

>

> , Zavie thank you sooooooooooo much for all you do. This group needs

you!

>

> Amy B.

>

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Amy,

I am SharonS.I am A banded RNYer.I also have Iron deficiencies and need Iron

infusions a few times a year.I had a slight reaction to the iron they used the

first round of infusions that I had.My Dr order infusions every 3 days for 5

weeks and by the fourth infusion I started to develope lumps under my

skin,tenderness and hot arms.I dicontinur=ed them.My 2nd round the Dr ordered

infusions every 3 days for 5 weeks also,switched to a different iron and I had

NO issues at all.I didn't even need to use the Benedryl that is often given to

help reduce side effects.When Benedryl was given I needed to have a driver

without it I didn't need a driver.

Nice to know I am not the only RNYer with CML out here.Do you take Iron

supplements Like Tender Iron to help keep the levels up? You should do fine.

Good luck

SharonS

In , " Amy " <aimesc31@...> wrote:

>

> I will start having iron infusions next week. Apparently I am having trouble

absorbing iron.....gastric bypass related. My H/H is consistently 10/30 and

Iron at 7......so infusions are a must. I haven't ever had one and do not know

anyone who has. Just wondering if there are any problems associated with them.

They will only infuse in a cancer center here.....so makes me wonder. cml still

hanging in there at PCRU....last PCR 0.06 after being up to a 2 while pregnant.

Last WBCs 5.4. So at least I absorb the gleevec.

>

> BABY FRONT.... Brent is now 18 months old, and if I do say so my self one heck

of a charmer. He is such a BOY. In a family of all GIRLS he is quite a treat.

He says everything, climbs everything and melts my heart with every look, kiss

and smile. I am definitely BLESSED.

>

> Finally........Hello to all my friends, all the newbies and anyone else! This

is a fantastic group that I am proud to be part of, but since the baby, have not

had much time. I'm always here if you need me and will be glad to help anyone.

>

> , Zavie thank you sooooooooooo much for all you do. This group needs

you!

>

> Amy B.

>

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Guest guest

>

> I will start having iron infusions next week. Apparently I am having trouble

absorbing iron.....gastric bypass related. My H/H is consistently 10/30 and

Iron at 7......so infusions are a must.

___________________

Hi Amy,

I just had 2 iron infusions because my ferritin was low and Medicare drug

coverage would not pay for Procrit unless it was at least 100 (it was about 37).

I have not had any red meat for over 10 years.

This cancer center had a definite routine, but it went great for me. First they

gave me a tylenol....then infused some Tagamet for the stomach, then a small

dose of Benedryl (I did not need a driver the 2nd infusion, I knew my head was

clear enough), and then a bit of Decadron. Then it took just over an hour for

the iron (Ferrlecit 125mg).

I had 2 infusion and then was leaving that area, so did not have the scheduled

third one. When re-tested my ferritin was 157...so very successful for me. The

infusions were one week apart.

It is always fun to hear you talk about Brett. Don't go spoiling that only boy

in the family!

C.

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