Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Wow Don!!! So glad you are ok now. What an ordeal for you. I am so so sorry. Have faith!!! Aloha Sharon _____ From: [mailto: ] On Behalf Of Don Adkins Sent: Tuesday, May 19, 2009 9:47 AM Subject: [ ] Spinal Meningitis Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. Hi Everyone, I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst. <http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm.> edu/~microbio/BIO221_2004/ella_morganii.htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist. <http://www.rxlist.com/merrem-iv-drug.htm> com/merrem-iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. Here's a little note I picked up from surfing the net on this infection: " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. Thank you for letting me sharing this information -- knowledge is power... Blessings, Don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 wow what an experience so glad you made it. hope you recover completely and thankx for the info. some how i never thought BMT caused so many risks to infections and other symtoms,thnk god you made it through all this ordeal best of luck to you aliza yaffa > > Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. > > Hi Everyone, > > I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. > > When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist.com/merrem-iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. > > Here's a little note I picked up from surfing the net on this infection: > > " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " > > I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. > > When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. > > Thank you for letting me sharing this information -- knowledge is power... > > Blessings, > Don > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Hi Don, My God, you certainly know how to go through hell! I don't call this a slight set back, but bless you, if that's how you look at it that;s great. I wish you a speedy recovery. I have a question. You stated it is suspected the bacteria entered through the port....how come that can happen, they do such a job of sterilizing the entire port area, I didn't think anything could get in there. Curious because I too have a port, in fact it will be used tomorrow for a blood transfusion. Get better real fast, blessings, Bobby On Tue, May 19, 2009 at 12:47 PM, Don Adkins <donaldadkins@...>wrote: > > > Since this is such a long post, and I apologize for that, I'm cutting and > pasting from a couple of other sites that I participate in - basically > because I'm too lazy to re-type it every time. > > Hi Everyone, > > I've had a slight set-back since I've last posted, but I am slowly > recovering. As some of you might know, I am a transplant patient, post > almost 5 years now. I did relapse a year after transplant and am on 80mg of > Sprycel daily as a preventive measure. I've been PCRU for the last three > years -- just a short history. > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight > headache and an overall feeling of " awfulness " . I sensed this was not going > to be just an ordinary post-transplant sick day. I asked my wife to drive me > to Presbyterian/St Lukes hospital where my post-transplant care is being > done. Unfortunately that drive is about an hour away, and after five minutes > in the car with my pink " puke " bucket I knew there was no way I was going to > make it so we diverted to the closest hospital. > > When I arrived at the ER I was having a tough time with nausea and a > continuing headache so my wife dropped me off at the door and they wheeled > me right in to the ER exam room. Fortunately their was an Infectious disease > doctor on duty, and for whatever reason, he immediately suspected meningitis > so he ordered a spinal tap and blood test, and there it was, Bacterial > Meningitis from the bacteria ella ii > http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm.<http://web.mst\ ..edu/%7Emicrobio/BIO221_2004/ella_morganii.htm.>What a mouth full, and according to the doctor very rare. Prior to even > identifying what was happening, he had already put me on three wide-spectrum > bacterial antibiotics, and as luck would have it, merrem > http://www.rxlist.com/merrem-iv-drug.htm was one of them - the actual drug > of choice for treating this rare type of spinal meningitis. > > Here's a little note I picked up from surfing the net on this infection: > > " We report herein a case of ella morganii-associated acute purulent > pericarditis that developed 3 years after allogenic bone marrow > transplantation. The patient was successfully treated with surgical drainage > and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic > GVH-D are likely to have favored the development of this rare infectious > complication after BMT. M. morganii should be added to the list of bacteria > causing purulent pericarditis, especially in immunocompromised hosts. " > > I remember asking the doctor if I was going to make it as I was passing in > and out of consciousness. He said it's not looking great but if I could hang > on for 48 hours and the drug worked I would have a fighting chance. The next > two days I was semi-conscious but don't remember much but excrutiating > headache pain. This also could have been cause partly by the spinal tap. > > When I awoke Wednesday morning the doctor was standing over me telling me > to hang in there I was responding well to the antibiotic. I've continued to > gain strength and was released this afternoon with home nursing care for the > next two weeks. I need a 21 day course of this IV antibiotic. We only have a > suspicion that the bacteria entered my body through my port, of course like > all other post-transplant complications we'll never know for sure. > > Thank you for letting me sharing this information -- knowledge is power... > > Blessings, > Don > > > -- a Doyle/dob 1929 DX 1995/Hydrea 2/00 - Gleevec Trial, OHSU, Dr. Druker 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " 7/06 - Sprycel Trial, MDACC, Dr. Talpaz 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Thank you Aliza, Bless you.. > > > > Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. > > > > Hi Everyone, > > > > I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. > > > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. > > > > When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist.com/merrem-iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. > > > > Here's a little note I picked up from surfing the net on this infection: > > > > " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " > > > > I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. > > > > When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. > > > > Thank you for letting me sharing this information -- knowledge is power... > > > > Blessings, > > Don > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Thank you Sharon, Blessings your way. > > Wow Don!!! So glad you are ok now. What an ordeal for you. I am so so > sorry. > > Have faith!!! > > Aloha Sharon > > > > _____ > > From: [mailto: ] On Behalf Of Don > Adkins > Sent: Tuesday, May 19, 2009 9:47 AM > > Subject: [ ] Spinal Meningitis > > > > > > > > > Since this is such a long post, and I apologize for that, I'm cutting and > pasting from a couple of other sites that I participate in - basically > because I'm too lazy to re-type it every time. > > Hi Everyone, > > I've had a slight set-back since I've last posted, but I am slowly > recovering. As some of you might know, I am a transplant patient, post > almost 5 years now. I did relapse a year after transplant and am on 80mg of > Sprycel daily as a preventive measure. I've been PCRU for the last three > years -- just a short history. > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight > headache and an overall feeling of " awfulness " . I sensed this was not going > to be just an ordinary post-transplant sick day. I asked my wife to drive me > to Presbyterian/St Lukes hospital where my post-transplant care is being > done. Unfortunately that drive is about an hour away, and after five minutes > in the car with my pink " puke " bucket I knew there was no way I was going to > make it so we diverted to the closest hospital. > > When I arrived at the ER I was having a tough time with nausea and a > continuing headache so my wife dropped me off at the door and they wheeled > me right in to the ER exam room. Fortunately their was an Infectious disease > doctor on duty, and for whatever reason, he immediately suspected meningitis > so he ordered a spinal tap and blood test, and there it was, Bacterial > Meningitis from the bacteria ella ii http://web.mst. > <http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm.> > edu/~microbio/BIO221_2004/ella_morganii.htm. What a mouth full, and > according to the doctor very rare. Prior to even identifying what was > happening, he had already put me on three wide-spectrum bacterial > antibiotics, and as luck would have it, merrem http://www.rxlist. > <http://www.rxlist.com/merrem-iv-drug.htm> com/merrem-iv-drug.htm was one of > them - the actual drug of choice for treating this rare type of spinal > meningitis. > > Here's a little note I picked up from surfing the net on this infection: > > " We report herein a case of ella morganii-associated acute purulent > pericarditis that developed 3 years after allogenic bone marrow > transplantation. The patient was successfully treated with surgical drainage > and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic > GVH-D are likely to have favored the development of this rare infectious > complication after BMT. M. morganii should be added to the list of bacteria > causing purulent pericarditis, especially in immunocompromised hosts. " > > I remember asking the doctor if I was going to make it as I was passing in > and out of consciousness. He said it's not looking great but if I could hang > on for 48 hours and the drug worked I would have a fighting chance. The next > two days I was semi-conscious but don't remember much but excrutiating > headache pain. This also could have been cause partly by the spinal tap. > > When I awoke Wednesday morning the doctor was standing over me telling me to > hang in there I was responding well to the antibiotic. I've continued to > gain strength and was released this afternoon with home nursing care for the > next two weeks. I need a 21 day course of this IV antibiotic. We only have a > suspicion that the bacteria entered my body through my port, of course like > all other post-transplant complications we'll never know for sure. > > Thank you for letting me sharing this information -- knowledge is power... > > Blessings, > Don > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Hi Bobby, thanks for all the kind words. The docs really don't have a clue where the bacteria entered. Their two suppositions were the port (because Infectious disease docs always blame them) or through the ear due to an ear or sinus infection. Both cases would be very rare though. Warmest regards, Don > > Hi Don, My God, you certainly know how to go through hell! I don't call > this a slight set back, but bless you, if that's how you look at it that;s > great. I wish you a speedy recovery. I have a question. You stated it is > suspected the bacteria entered through the port....how come that can happen, > they do such a job of sterilizing the entire port area, I didn't think > anything could get in there. Curious because I too have a port, in fact it > will be used tomorrow for a blood transfusion. Get better real fast, > blessings, Bobby > > On Tue, May 19, 2009 at 12:47 PM, Don Adkins <donaldadkins@...>wrote: > > > > > > > Since this is such a long post, and I apologize for that, I'm cutting and > > pasting from a couple of other sites that I participate in - basically > > because I'm too lazy to re-type it every time. > > > > Hi Everyone, > > > > I've had a slight set-back since I've last posted, but I am slowly > > recovering. As some of you might know, I am a transplant patient, post > > almost 5 years now. I did relapse a year after transplant and am on 80mg of > > Sprycel daily as a preventive measure. I've been PCRU for the last three > > years -- just a short history. > > > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight > > headache and an overall feeling of " awfulness " . I sensed this was not going > > to be just an ordinary post-transplant sick day. I asked my wife to drive me > > to Presbyterian/St Lukes hospital where my post-transplant care is being > > done. Unfortunately that drive is about an hour away, and after five minutes > > in the car with my pink " puke " bucket I knew there was no way I was going to > > make it so we diverted to the closest hospital. > > > > When I arrived at the ER I was having a tough time with nausea and a > > continuing headache so my wife dropped me off at the door and they wheeled > > me right in to the ER exam room. Fortunately their was an Infectious disease > > doctor on duty, and for whatever reason, he immediately suspected meningitis > > so he ordered a spinal tap and blood test, and there it was, Bacterial > > Meningitis from the bacteria ella ii > > http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm.<http://web.mst\ ..edu/%7Emicrobio/BIO221_2004/ella_morganii.htm.>What a mouth full, and according to the doctor very rare. Prior to even > > identifying what was happening, he had already put me on three wide-spectrum > > bacterial antibiotics, and as luck would have it, merrem > > http://www.rxlist.com/merrem-iv-drug.htm was one of them - the actual drug > > of choice for treating this rare type of spinal meningitis. > > > > Here's a little note I picked up from surfing the net on this infection: > > > > " We report herein a case of ella morganii-associated acute purulent > > pericarditis that developed 3 years after allogenic bone marrow > > transplantation. The patient was successfully treated with surgical drainage > > and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic > > GVH-D are likely to have favored the development of this rare infectious > > complication after BMT. M. morganii should be added to the list of bacteria > > causing purulent pericarditis, especially in immunocompromised hosts. " > > > > I remember asking the doctor if I was going to make it as I was passing in > > and out of consciousness. He said it's not looking great but if I could hang > > on for 48 hours and the drug worked I would have a fighting chance. The next > > two days I was semi-conscious but don't remember much but excrutiating > > headache pain. This also could have been cause partly by the spinal tap. > > > > When I awoke Wednesday morning the doctor was standing over me telling me > > to hang in there I was responding well to the antibiotic. I've continued to > > gain strength and was released this afternoon with home nursing care for the > > next two weeks. I need a 21 day course of this IV antibiotic. We only have a > > suspicion that the bacteria entered my body through my port, of course like > > all other post-transplant complications we'll never know for sure. > > > > Thank you for letting me sharing this information -- knowledge is power... > > > > Blessings, > > Don > > > > > > > > > > -- > a Doyle/dob 1929 > DX 1995/Hydrea > 2/00 - Gleevec Trial, OHSU, Dr. Druker > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " > 7/06 - Sprycel Trial, MDACC, Dr. Talpaz > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 So glad you are better. What an ordeal. God Bless; Eva From: Don Adkins Sent: Tuesday, May 19, 2009 12:47 PM Subject: [ ] Spinal Meningitis Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. Hi Everyone, I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist.com/merrem-iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. Here's a little note I picked up from surfing the net on this infection: " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. Thank you for letting me sharing this information -- knowledge is power... Blessings, Don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Don, that is an amazing story. With warm regards, Matt Florida This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 5/19/2009 12:48:04 P.M. Eastern Daylight Time, donaldadkins@... writes: Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. Hi Everyone, I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/<WBR>St Lukes hospi When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii _http://web.mst.http://web.msthttp://web.mhttp://web.http://wehttp_ (http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm.) What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem _http://www.rxlist.http://www.http://www._ (http://www.rxlist.com/merrem-iv-drug.htm) was one of them - the actual drug of choice for treating this rare type of spinal meningitis. Here's a little note I picked up from surfing the net on this infection: " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. Thank you for letting me sharing this information -- knowledge is power... Blessings, Don **************Recession-proof vacation ideas. Find free things to do in the U.S. (http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlcntus\ trav00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Thank you Eva and God Bless you.. Don > > So glad you are better. What an ordeal. > God Bless; Eva > > > From: Don Adkins > Sent: Tuesday, May 19, 2009 12:47 PM > > Subject: [ ] Spinal Meningitis > > > > > > Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. > > Hi Everyone, > > I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. > > When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist.com/merrem-iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. > > Here's a little note I picked up from surfing the net on this infection: > > " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " > > I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. > > When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. > > Thank you for letting me sharing this information -- knowledge is power... > > Blessings, > Don > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Hi again everyone, I messed up the dates on this entry. I entered the hospital on the 11th of May and left on the 18th. Sorry for the confusion. Don > > Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. > > Hi Everyone, > > I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. > > When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist.com/merrem-iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. > > Here's a little note I picked up from surfing the net on this infection: > > " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " > > I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. > > When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. > > Thank you for letting me sharing this information -- knowledge is power... > > Blessings, > Don > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Thanks Matt. > > Don, that is an amazing story. > > With warm regards, > > Matt > Florida > > > > This message (including any attachments) contains confidential information > intended for a specific individual and purpose, and is protected by law. > If you are not the intended recipient, you should delete this message, and > please advise me of your receipt. Any disclosure, copying, or distribution > of this message, or the taking of any action based on it, is strictly > prohibited. > > > In a message dated 5/19/2009 12:48:04 P.M. Eastern Daylight Time, > donaldadkins@... writes: > > > > > > Since this is such a long post, and I apologize for that, I'm cutting and > pasting from a couple of other sites that I participate in - basically > because I'm too lazy to re-type it every time. > > Hi Everyone, > > I've had a slight set-back since I've last posted, but I am slowly > recovering. As some of you might know, I am a transplant patient, post almost 5 > years now. I did relapse a year after transplant and am on 80mg of Sprycel > daily as a preventive measure. I've been PCRU for the last three years -- > just a short history. > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight > headache and an overall feeling of " awfulness " . I sensed this was not going to > be just an ordinary post-transplant sick day. I asked my wife to drive me > to Presbyterian/On Monday, May 18, 2009 I awoke about 7:00am with nausea and > a slight headache and an overall feeling of " awfulness " . I sensed this was > not going to be just an ordinary post-transplant sick day. I asked my wife > to drive me to Presbyterian/<WBR>St Lukes hospi > > When I arrived at the ER I was having a tough time with nausea and a > continuing headache so my wife dropped me off at the door and they wheeled me > right in to the ER exam room. Fortunately their was an Infectious disease > doctor on duty, and for whatever reason, he immediately suspected meningitis > so he ordered a spinal tap and blood test, and there it was, Bacterial > Meningitis from the bacteria ella ii > _http://web.mst.http://web.msthttp://web.mhttp://web.http://wehttp_ > (http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm.) What a mouth full, and according to the > doctor very rare. Prior to even identifying what was happening, he had already > put me on three wide-spectrum bacterial antibiotics, and as luck would have > it, merrem _http://www.rxlist.http://www.http://www._ > (http://www.rxlist.com/merrem-iv-drug.htm) was one of them - the actual drug of choice for > treating this rare type of spinal meningitis. > > Here's a little note I picked up from surfing the net on this infection: > > " We report herein a case of ella morganii-associated acute purulent > pericarditis that developed 3 years after allogenic bone marrow > transplantation. The patient was successfully treated with surgical drainage and > cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are > likely to have favored the development of this rare infectious complication > after BMT. M. morganii should be added to the list of bacteria causing > purulent pericarditis, especially in immunocompromised hosts. " > > I remember asking the doctor if I was going to make it as I was passing in > and out of consciousness. He said it's not looking great but if I could > hang on for 48 hours and the drug worked I would have a fighting chance. The > next two days I was semi-conscious but don't remember much but excrutiating > headache pain. This also could have been cause partly by the spinal tap. > > When I awoke Wednesday morning the doctor was standing over me telling me > to hang in there I was responding well to the antibiotic. I've continued to > gain strength and was released this afternoon with home nursing care for > the next two weeks. I need a 21 day course of this IV antibiotic. We only > have a suspicion that the bacteria entered my body through my port, of course > like all other post-transplant complications we'll never know for sure. > > Thank you for letting me sharing this information -- knowledge is power... > > Blessings, > Don > > > > > > **************Recession-proof vacation ideas. Find free things to do in > the U.S. > (http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlcntus\ trav00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Dear Don, I am so glad to hear you are okay. My great-nephew fought the same meningitis and we were so very close to loosing him. I know just what you mean when you say that you were subconsious. He was too. It was the hardest thing to watch, and you like him fought back to live to tell about it. God was watching over you 24/7!! May God continue to bless you with strength! Jackie S. From: Don Adkins <donaldadkins@...> Subject: [ ] Re: Spinal Meningitis Date: Tuesday, May 19, 2009, 8:27 PM Hi again everyone, I messed up the dates on this entry. I entered the hospital on the 11th of May and left on the 18th. Sorry for the confusion. Don > > Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. > > Hi Everyone, > > I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/ St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. > > When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst. edu/~microbio/ BIO221_2004/ ella_ morganii. htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist. com/merrem- iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. > > Here's a little note I picked up from surfing the net on this infection: > > " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " > > I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. > > When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. > > Thank you for letting me sharing this information -- knowledge is power... > > Blessings, > Don > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Dear Don, I am soon to be 2yr post transplant and was found to be pcru in Jan. Sorry to hear of your sickness. I had a cather from 8/2007 to Jan 2008. I could not wait to have it removed. I am not sure the difference between the cather and port? So you still have yours 5 years later? I have struggled this week with head cold but on the rebound. I woke up Friday morning very dry throat could not drink enough. Only had fever close to 100 Monday morn but broke in few hours. Either picked up someones germ at health club (ha!) or prior week doc visit for neck and shoulder tension. The general PA told me to take 2/3 advil morning and after lunch and a muscle relaxor as needed. I guess the head cold relieved the neck tension for awhile. Hope you feel better soon. Today me and hubby celebrated 25yrs Silver anniversary. Everyday I see more and more silver. Ha ________________________________ From: Don Adkins <donaldadkins@...> Sent: Tuesday, May 19, 2009 9:27:16 PM Subject: [ ] Re: Spinal Meningitis Hi again everyone, I messed up the dates on this entry. I entered the hospital on the 11th of May and left on the 18th. Sorry for the confusion. Don > > Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. > > Hi Everyone, > > I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/ St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. > > When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst. edu/~microbio/ BIO221_2004/ ella_ morganii. htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist. com/merrem- iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. > > Here's a little note I picked up from surfing the net on this infection: > > " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " > > I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. > > When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. > > Thank you for letting me sharing this information -- knowledge is power... > > Blessings, > Don > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Thanks Jackie for your kind words. Blessings, Don > > > > Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. > > > > Hi Everyone, > > > > I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. > > > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/ St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. > > > > When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst. edu/~microbio/ BIO221_2004/ ella_ morganii. htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist. com/merrem- iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. > > > > Here's a little note I picked up from surfing the net on this infection: > > > > " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " > > > > I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. > > > > When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. > > > > Thank you for letting me sharing this information -- knowledge is power... > > > > Blessings, > > Don > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Thanks Christa, sounds like you are doing well. Here's to a ton of silver!! Blessings, Don > > > > Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. > > > > Hi Everyone, > > > > I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. > > > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/ St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. > > > > When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst. edu/~microbio/ BIO221_2004/ ella_ morganii. htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist. com/merrem- iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. > > > > Here's a little note I picked up from surfing the net on this infection: > > > > " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " > > > > I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. > > > > When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. > > > > Thank you for letting me sharing this information -- knowledge is power... > > > > Blessings, > > Don > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Don, if this is your idea of a " slight setback, " I'd fear to think what you would consider a crisis, lol! You are made of tough stuff, my friend. I'm awfully glad you weathered the storm. It must have been terribly frightening for both of you. I hate to think of your having had to endure this. It was very generous of you to share ... we now all know better what to look for in signs of meningitis. Thank you for that and many blessings to you both, From: donaldadkins@... Date: Tue, 19 May 2009 16:47:23 +0000 Subject: [ ] Spinal Meningitis Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. Hi Everyone, I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist.com/merrem-iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. Here's a little note I picked up from surfing the net on this infection: " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. Thank you for letting me sharing this information -- knowledge is power... Blessings, Don _________________________________________________________________ Windows Live™: Keep your life in sync. http://windowslive.com/explore?ocid=TXT_TAGLM_BR_life_in_synch_052009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Thanks for your kind words. Blessings your way, Don > > > Don, if this is your idea of a " slight setback, " I'd fear to think what you would consider a crisis, lol! You are made of tough stuff, my friend. I'm awfully glad you weathered the storm. It must have been terribly frightening for both of you. I hate to think of your having had to endure this. It was very generous of you to share ... we now all know better what to look for in signs of meningitis. > > Thank you for that and many blessings to you both, > > > > From: donaldadkins@... > Date: Tue, 19 May 2009 16:47:23 +0000 > Subject: [ ] Spinal Meningitis > > > > > > > > > > > > > > > > > > > > > > > > > > > Since this is such a long post, and I apologize for that, I'm cutting and pasting from a couple of other sites that I participate in - basically because I'm too lazy to re-type it every time. > > > > Hi Everyone, > > > > I've had a slight set-back since I've last posted, but I am slowly recovering. As some of you might know, I am a transplant patient, post almost 5 years now. I did relapse a year after transplant and am on 80mg of Sprycel daily as a preventive measure. I've been PCRU for the last three years -- just a short history. > > > > On Monday, May 18, 2009 I awoke about 7:00am with nausea and a slight headache and an overall feeling of " awfulness " . I sensed this was not going to be just an ordinary post-transplant sick day. I asked my wife to drive me to Presbyterian/St Lukes hospital where my post-transplant care is being done. Unfortunately that drive is about an hour away, and after five minutes in the car with my pink " puke " bucket I knew there was no way I was going to make it so we diverted to the closest hospital. > > > > When I arrived at the ER I was having a tough time with nausea and a continuing headache so my wife dropped me off at the door and they wheeled me right in to the ER exam room. Fortunately their was an Infectious disease doctor on duty, and for whatever reason, he immediately suspected meningitis so he ordered a spinal tap and blood test, and there it was, Bacterial Meningitis from the bacteria ella ii http://web.mst.edu/~microbio/BIO221_2004/ella_morganii.htm. What a mouth full, and according to the doctor very rare. Prior to even identifying what was happening, he had already put me on three wide-spectrum bacterial antibiotics, and as luck would have it, merrem http://www.rxlist.com/merrem-iv-drug.htm was one of them - the actual drug of choice for treating this rare type of spinal meningitis. > > > > Here's a little note I picked up from surfing the net on this infection: > > > > " We report herein a case of ella morganii-associated acute purulent pericarditis that developed 3 years after allogenic bone marrow transplantation. The patient was successfully treated with surgical drainage and cefotaxime for 6 weeks. Splenectomy and immunosuppression for chronic GVH-D are likely to have favored the development of this rare infectious complication after BMT. M. morganii should be added to the list of bacteria causing purulent pericarditis, especially in immunocompromised hosts. " > > > > I remember asking the doctor if I was going to make it as I was passing in and out of consciousness. He said it's not looking great but if I could hang on for 48 hours and the drug worked I would have a fighting chance. The next two days I was semi-conscious but don't remember much but excrutiating headache pain. This also could have been cause partly by the spinal tap. > > > > When I awoke Wednesday morning the doctor was standing over me telling me to hang in there I was responding well to the antibiotic. I've continued to gain strength and was released this afternoon with home nursing care for the next two weeks. I need a 21 day course of this IV antibiotic. We only have a suspicion that the bacteria entered my body through my port, of course like all other post-transplant complications we'll never know for sure. > > > > Thank you for letting me sharing this information -- knowledge is power... > > > > Blessings, > > Don > > > > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Windows Live™: Keep your life in sync. > http://windowslive.com/explore?ocid=TXT_TAGLM_BR_life_in_synch_052009 > > Quote Link to comment Share on other sites More sharing options...
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