Positive ANA

[Guest guest]

, my ANA was always negative from diagnoses in 1977 until just a couple of years ago. Then it came up positive and my doctor said it could change. I could be wrong but I think some research has said that Stills in not an autoimmune disease even though it malfunctions the immune system. Hope this helps any. Pattymelt

positive ANA

Hi all,Just wondering if anyone else here has a positive ANA factor? So I guess I'm wondering too since Stills is considered autoimmune, why would the ANA factor be negative? Thanks for any input. Buffalo, NY

[Guest guest]

Oh my goodness, I made a mistake with my post about this earlier. It was not an ANA that I tested positive for but rather my RA that had changed. I am so sorry. I sometimes get confused with all the terms and conditions we talk about.

positive ANA

[Guest guest]

Thanks for the info, He was positive ANA but negative something

else, sed rate ok... but was having muscle pain in extremeties...

who knows... it is a roller coaster of not knowing , to knowing and

so on and so forth... We are having the muscle biopsey done with the

liver one, to get it all done together....that is our hope.... I am

glad that another pedi parent has heard of this stuff.... I greatly

apprectiate all ( who responded as well) help on this..... I thought

I wasnt going to be stressy... but as time draws near I feel

overwhelmingly incompetent , in knowledge as well as feelings... I

will keep you posted... Kathleen mom to Conan

> Maddie has had a positive ANA her whole life-but has not been

diagnosed with lupus. The drs. told us you can have a positive ana-

but not have lupus or another autoimmune disorder-

>

> We have also been tested for mitochondrial disease-the testing was

inconclusive-and I was not willing to put her through a muscle

biopsy-they are very painful-and we would have had to pay a huge

amount of out of pocket costs-as a " live " muscle biopsy is much more

accurate than a frozen sample-and one of the few places set up for

live testing is in Georgia and we are in Indiana.

>

> As for the whole mito thing-several of her levels were out of

whack-but treatment wise it would not have changed anything we were

already doing-so we dropped the issue. The dr basically said if it

looks like a duck and walks like a duck it more than likely is a

duck-but who knows for sure what is going on.

>

> Just thought I would let you know our positive ana experience. I

also seem to remember that the whole lupus thing also had something

to do with her sed rate-whatever-either way high or low one or the

other (I seem to remember high) hers was-but not high enough-Lupus

is a very difficult diagnosis to make-there are several things that

have to be present and it kind of made me think it was more what the

dr wanted to see-not really much they could truly test for-

>

> Becky in IN-mom to Maddie (age 9-now going into 4th grade!)-IgA

def, low IgG and subclasses, nk cell defect-but still no need for

IvIg, asthma, gerd, chronic constipation, mild cp, sleep issues.....

>

>

[Guest guest]

In a message dated 5/29/2005 4:35:48 PM Pacific Standard Time,

beckymcclure825@... writes:

The drs. told us you can have a positive ana-but not have lupus or another

autoimmune disorder-

You can also have a negative ANA and have Lupus.

Sandi, Mom to , age 12. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), asthma, Carnitine deficiency, GERD

[Guest guest]

Hello all. My 8 yo daughter has been having fevers every 25 days for

about 2 years. They present with body aches and nausea and last about

2-4 days. We finally got some extensive blood work done and today I

found out she had a postive ANA result. This scares me as her

father's sister has Lupus. They are doing further testing and we

won't know more until Friday. Has anyone else had a postive ANA and

if so, did the child have Lupus or an auto-immune disease? I know it

doesn't always mean that, but with the symptoms and family history, I

just dont know what to think. Thanks!