Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Dear , I am glad that you were willing to reach down and share your experience with us. I am truly sorry that your experience was a negative one. I don't know if I would have been willing to go through the same ring of fire that you did. I have been in a lot of trials and had a lot of side effects, but I can't compare mine to yours. You were fortunate to have a doctor advocate for you and work with you, not all of us are as fortunate, we hardly get any time to really talk to them, they have assistants who do everything and the doctor comes in when all the information has been taken and recorded by an assistant before he even sees you, so there is little to talk about except for your pcr and cbc results. He may order that you either increase, decrease or take a holiday from your drugs if you have many side effects. He then discusses your CBC, where you are and where he would like you to be. I have been advocating and screaming about giving these serum level tests to see if we are getting the correct amounts that we need. Your name is now synonomous with pain and side effects, but let's hope it's in the past. I'm sure your experiences have had an impact on some one else's life, for the better. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
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