Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 Hi Welcome - how are you feeling - it will not be long before both yourself and family will be Living With instead of Living It CML in most cases is an older persons disease - I don't think I am old but it is a very long time ago that I was 18. A young Australian women (who has just turned 19 years) was diagnosed a few months earlier than you - so you are both on the same journey in terms of treatment. has asked if there is anyone who would like to chat to her around the same age I was wondering if you would like to do that In Australia there is a great bulletin board for young people under 25 years called Revive - you can blog etc and lots of other techno stuff for teens and young adults. There are no people who CML except for . Revive is a leukamia network for young adults http://teamrevive.org/ Keep well Sue (Aussie) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2009 Report Share Posted April 18, 2009 I was on 2,000 mg of hydrauxarea and 400 of gleevec, but they just knocked of the hydro which is good. a little too high, made my hair thin a little but now its gone! and my count is at 10.6 now > > Hi Jess ,I'm on 600 Gleevec doing ok how much are you on! dx 05 > > > > > ________________________________ > From: Jess > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2009 Report Share Posted April 18, 2009 Yea I hear alot that im the youngest ppl have met and things like that lol. and it is hard, cuz its a little strange knowing whats going on. but i dont want to miss out on being young > > > > > > Hi my name is Jess, my dad has been posting on here alot with concern. I > > thank you so much for all the posative feed back you have given him. Its > > really helped my family through this. If you don't know and this is the > > first you are hearing of me, I'm an 18 year old girl, recently diagnosed > > with cml and am on the gleevec and a few other pills. any questions feel > > free to ask me > > > > > > > > -- > Marcos Perreau Guimaraes > Suppes Brain Lab > Ventura Hall - CSLI > Stanford University > 220 Panama street > Stanford CA 94305-4101 > 650 614 2305 > 650 468 9926 (cell) > marcospg@... > montereyunderwater@... > www.stanford.edu/~marcospg/ > Quote Link to comment Share on other sites More sharing options...
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