Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 Hi all, I received a mail from my dr yesterday telling me about how good Nilotinib is & saying that it should replace Glivec as firstline therapy within a couple of years. He'll soon be starting up a trial for patients like me who are CCR or MMR which involves 2 random arms - Glivec 400mg Vs Nilotinib 400 mg X 2 / day. He said that I could take part if I wanted to. I really don't know what to think - I've been PCR-U for the past 3 years on Glivec with just the odd slight PCR positive. I don't have too many side effects from Glivec apart from severe diarrhea at times & my extra 13kgs. Nilotinib could get rid of my extra kilos & diarrhea, but it could cause other health problems eg; hear, pancreas & low counts. I think believe that it has to be taken take it away from food aswell. Glivec has got me to a very good remisssion, but who know whether this will last. Half of me's tempted to go with the trial, the other says leave things as they are & keep my options open (I could always take my Nilotinib if I started showing signs of relpase on Glivec. would be grateful for you views on this - thanks, Barbara Quote Link to comment Share on other sites More sharing options...
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