Re: My 5th CML anniversary

[Guest guest]

CONGRATULATIONS BARBARA, AND MANY MORE YEARS OF " LIVING NORMAL " , LOVE,

BOBBY

On Mon, May 25, 2009 at 3:27 AM, Barbara Meunier <Barbsm@...> wrote:

>

>

> 5 years ago I went to give blood, little did I know that it would be the

> start of my CML rollercoaster.

> At first, I was afraid & could think of nothing else; I didn't even want to

> buy clothes or plan holidays in case I wasn't around to enjoy them, but as

> time has gone by, I've got used to the idea & am living a very full and

> normal life.

> I'd like to thank those who were there for me at the beginning, especially

> Lottie, Knotts (who understands me both on a CML front & from having a

> special needs child) and all the other who've taken the time to answer my

> posts.

> I'm posting this for any newbies out there in order to tell them that

> having CML does not mean that we have to change our way of life, of course

> there are days when I'm tired & the side effects kick in, but everyone (even

> those who aren't ill) get days like that,

> my best wishes to all,

> Barbara

> PS message for Lottie - I really appreciated the recent post you wrote

> about me, but got the impression that it was a bit of a sales pitche, trying

> to sell me to the other members lol

>

>

>

--

a Doyle/dob 1929

DX 1995/Hydrea

2/00 - Gleevec Trial, OHSU, Dr. Druker

6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

7/06 - Sprycel Trial, MDACC, Dr. Talpaz

4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

[Guest guest]

Dear Barbara,

Congratulations on your 5th anniversary. That is longer than many of us were

given when we were diagnosed. Now we putter around fully expecting a 5 year

survival--and many more after that.

Bob , Granger, Indiana

PS: Please don't say nice things to Lottie. She actually believes what you

say!

>

> 5 years ago I went to give blood, little did I know that it would be the start

of my CML rollercoaster.

> At first, I was afraid & could think of nothing else; I didn't even want to

buy clothes or plan holidays in case I wasn't around to enjoy them, but as time

has gone by, I've got used to the idea & am living a very full and normal life.

> I'd like to thank those who were there for me at the beginning, especially

Lottie, Knotts (who understands me both on a CML front & from having a

special needs child) and all the other who've taken the time to answer my posts.

> I'm posting this for any newbies out there in order to tell them that having

CML does not mean that we have to change our way of life, of course there are

days when I'm tired & the side effects kick in, but everyone (even those who

aren't ill) get days like that,

> my best wishes to all,

> Barbara

> PS message for Lottie - I really appreciated the recent post you wrote about

me, but got the impression that it was a bit of a sales pitche, trying to sell

me to the other members lol

>

[Guest guest]

Congrats Barbara

Eva XXOO

From: Barbara Meunier

Sent: Monday, May 25, 2009 3:27 AM

Subject: [ ] My 5th CML anniversary

5 years ago I went to give blood, little did I know that it would be the start

of my CML rollercoaster.

At first, I was afraid & could think of nothing else; I didn't even want to buy

clothes or plan holidays in case I wasn't around to enjoy them, but as time has

gone by, I've got used to the idea & am living a very full and normal life.

I'd like to thank those who were there for me at the beginning, especially

Lottie, Knotts (who understands me both on a CML front & from having a

special needs child) and all the other who've taken the time to answer my posts.

I'm posting this for any newbies out there in order to tell them that having CML

does not mean that we have to change our way of life, of course there are days

when I'm tired & the side effects kick in, but everyone (even those who aren't

ill) get days like that,

my best wishes to all,

Barbara

PS message for Lottie - I really appreciated the recent post you wrote about me,

but got the impression that it was a bit of a sales pitche, trying to sell me to

the other members lol

[Guest guest]

Dear Barbara,

Congratulations on your 5 year cml journey. You and I were diagnosed the same

year. Mine is 4/14/04. We will be celebrating many more milestones together.

 

God Bless you,

Jackie S

From: Eva <evaob365@...>

Subject: Re: [ ] My 5th CML anniversary

Date: Monday, May 25, 2009, 3:57 PM

Congrats Barbara

Eva XXOO

From: Barbara Meunier

Sent: Monday, May 25, 2009 3:27 AM

groups (DOT) com

Subject: [ ] My 5th CML anniversary

5 years ago I went to give blood, little did I know that it would be the start

of my CML rollercoaster.

At first, I was afraid & could think of nothing else; I didn't even want to buy

clothes or plan holidays in case I wasn't around to enjoy them, but as time has

gone by, I've got used to the idea & am living a very full and normal life.

I'd like to thank those who were there for me at the beginning, especially

Lottie, Knotts (who understands me both on a CML front & from having a

special needs child) and all the other who've taken the time to answer my posts.

I'm posting this for any newbies out there in order to tell them that having CML

does not mean that we have to change our way of life, of course there are days

when I'm tired & the side effects kick in, but everyone (even those who aren't

ill) get days like that,

my best wishes to all,

Barbara

PS message for Lottie - I really appreciated the recent post you wrote about me,

but got the impression that it was a bit of a sales pitche, trying to sell me to

the other members lol