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CML SUPPORT AND INFORMATIONDear Sue,

That is good advice that you dispense. What is your hourly rate for this?

LOL. I was over with menopause when I was diagnosed at age 67, but still on

hormones. After my stroke and heart attack, I was taken off. I then had to go

through the " hot flash " thingy all over again. It took a few months and then I

was over it. I saw my GYN last month and asked about hormones, she smiled and

said I had none, there was nothing to be tested for, except for mamogram. Is it

my imagination, or am I getting less and less time in the doctors' offices these

days? Has anyone else noted that the doctors are spending less time with them?

There was one doctor I used to see in New Orleans, that the time to be spent on

my appointment notice was 30 minutes. My brother was seen at the same clinic

and was told he had a quota of 40 patients a day and couldn't give him any more

time, even though he wanted to. Rationing is here, will we gave to get cards

with coupons to redeem next?

Blessings,

Lottie

[ ] Digest Number 1778

CML SUPPORT AND INFORMATION

Messages In This Digest (2 Messages)

1. : Low Dose From: Sue

2. Tammy: Hormones - Newblogger From: Sue

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1. : Low Dose

Posted by: " Sue " hollie@... suehurt28

Sat Apr 25, 2009 1:25 am (PDT)

Hi

I am on 600mg glivec - I take at the same time and do not split

I have with breakfast

Suggestions

Make sure you are up and about well before you have your breakfast and

medication

Water - with glivec you must be hydrated all the time

My specialist advised to take medications with water - for every mg take a

ml of water

So for 600 mg I take two large glasses of water

(helps dissolve the medication - otherwise it is just sitting in your

stomach)

In the pamphlets you can take glivec with water or apple juice only

Lactose Intolerant

You may find you become lactose intolerant (or a type of lactose

intolerant).

and any dairy may make you feel queezy at around the time you take glivec

I no longer have milk products, yoghurt etc within 5 hours either side of

glivec.

If I am having dairy - I take products late in the afternoon or with dinner

Other Suggestions as Bobbie and others have stated.

You must have substantial food - not only at time of meal but if say dinner

- a hearty meal

otherwise you have had nothing in your stomach for many hours then breakfast

- if not enough food

you are going to feel the effects.

I have 3 pieces of toast without butter but with honey or jam - thick pieces

Do not sit back down or lay down after taking medication - keep on your feet

and you will feel better.

Fatigue

As time goes on - fatigue does get better - your body is healing - while

manufacturing more blood

- glivec is doing its thing.

Someone gave a suggestion to me when first diagnosed that you have a BLOOD

BANK.

whereby you have deposits and withdrawals. If you take too much out of the

blood bank in terms of doing too much

without depositing with good food, lots of rest then you are going to feel

fatigued.

Exercising does help with this problem also - nothing strenuous - just

walking - you will find you do improve.

Keep Well

Sue (Aussie)

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Dear Lottie,

I've believed for the last few years that I haven't received the attention from

my doctors that I did in years past. I really became convinced of that when my

cardiologist told me at one visit that his primary job with me was to keep me

comfortable. I said, " hell, that's what Hospice does " . He looked at me kinda

funny but went right on filling out his forms on his laptop.

That's my second complaint about doctors. More and more of them bring laptops

into the examining room with them and spend more time filling out forms and

asking questions that the laptop tells them to that listening to what I'm

saying.

Bob , Granger, Indiana

>

Sue,

> That is good advice that you dispense. What is your hourly rate for this?

LOL. I was over with menopause when I was diagnosed at age 67, but still on

hormones. After my stroke and heart attack, I was taken off. I then had to go

through the " hot flash " thingy all over again. It took a few months and then I

was over it. I saw my GYN last month and asked about hormones, she smiled and

said I had none, there was nothing to be tested for, except for mamogram. Is it

my imagination, or am I getting less and less time in the doctors' offices these

days? Has anyone else noted that the doctors are spending less time with them?

There was one doctor I used to see in New Orleans, that the time to be spent on

my appointment notice was 30 minutes. My brother was seen at the same clinic

and was told he had a quota of 40 patients a day and couldn't give him any more

time, even though he wanted to. Rationing is here, will we gave to get cards

with coupons to redeem next?

> Blessings,

> Lottie

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