Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Thank you Sue....I think I am up and running again.......taking it very easy though. I am sorry to hear about your night sweats and jaw problems. It bites ! ! Hey, just to let you know, after I was hit in the face with the bat.(heart attack) that whole week I felt bad, so I feel if it were your heart, you would have after effects. Always be safe and be checked though ! Lots of Love ~ DedeSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Dear Dede, I am so glad you are feeling a little better. I have actually had a good couple of days, I done my first shoes party tonight, only sold four pairs but it’s a start. Keep taking it easy and we will soon have the old Dede back. Love Sue From: [mailto: ] On Behalf Of DGRAHAMA@... Sent: 11 June 2007 19:28 Subject: Re: Sue Thank you Sue....I think I am up and running again.......taking it very easy though. I am sorry to hear about your night sweats and jaw problems. It bites ! ! Hey, just to let you know, after I was hit in the face with the bat.(heart attack) that whole week I felt bad, so I feel if it were your heart, you would have after effects. Always be safe and be checked though ! Lots of Love ~ Dede See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Hello Sue ~ Thank you for the sweet note ! I am glad to hear you have had a couple good days ! That is always music to my ears ! ! When things are so rough medically speaking, good days are so glorious ! ! First shoe party, 4 pair, congratulations ! that is not a bad start ! ! It will only get better ! Love ~ DedeSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2007 Report Share Posted July 3, 2007 HelenYes, mine was cancerous. Ihad a hystroectomy, hemo and radiation which just ended 3 weeks ago. I am now on a diet from the CINJ which contains high veggies, some fruits, grains, and low low fat. I believe some gynecological issues respond better to low fat diets. I am feeling tremendously better than i have in years, with more energy and less digestive and gyn issues than i have in years. I pray that this lasts and that cancer of any type never returns to my body! Keep us posted on your results. You are in my thoughts n prayers. sue ________________________________________________________________________________\ ____ Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545469 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2007 Report Share Posted July 4, 2007 Sue I found a very good though quite long article listing 9 different strategies re cancer (which I'm sure can be applied to prevent cancer coming back). I can't find it at the moment - as I'm at uni and can't remember the name - but I have ti at home and will post it to you ASAP. I remember that one was to get rid of fungal infections (of which candida is one) and details of how to do this are listed. A second was to detox the whole body with ten pages of instructions. A third involved the use of Zeolite (which I know is used for taking heavy metals out of the body) but from the little I read, it sounded very promising for Cancer. Of course, these strategies are limited by one's income, so for the moment, until I find out exactly what it is that I have, I have gone on a strict diet of fresh squeezed vegetable juice - and CoQ10 (as well as some cheaper supplements), which is as much as I can afford as a single mum. I know it sounds silly tackling a giant tumour with a bunch of carrots, but it's the best I can do for the moment. In Australia, we have a free public health system, but you can still wait weeks with a problem as urgent as mine. Around 30% of the population can afford private health care, and they get attended to straight away - but I'm not in that financial bracket. Will keep you posted. I'm hopeful it's a fibroid. And please have a look at those strategies when I post them. Helen sue <tauttodream@...> wrote: HelenYes, mine was cancerous. Ihad a hystroectomy, hemo and radiation which just ended 3 weeks ago. I am now on a diet from the CINJ which contains high veggies, some fruits, grains, and low low fat. I believe some gynecological issues respond better to low fat diets. I am feeling tremendously better than i have in years, with more energy and less digestive and gyn issues than i have in years. I pray that this lasts and that cancer of any type never returns to my body! Keep us posted on your results. You are in my thoughts n prayers. sue __________________________________________________________ Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545469 --------------------------------- 7 Mail has just got even bigger and better with unlimited storage on all webmail accounts. Find out more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2007 Report Share Posted July 4, 2007 Sounds like the UK! Even though you pay extortionately through your pay packet and loads of other ways, even your paltry pension, all through your life; those that can hand over cash *still* get preferential treatment! That's a free society for you! Dee  <'Tis not right, a woman going into such places by herself. " Granny nodded. She thoroughly approved of such sentiments so long as there was, of course, no suggestion that they applied to her.> -- (Terry Pratchett, Wyrd Sisters) -------Original Message------- Of course, these strategies are limited by one's income, so for the moment, until I find out exactly what it is that I have, I have gone on a strict diet of fresh squeezed vegetable juice - and CoQ10 (as well as some cheaper supplements), which is as much as I can afford as a single mum. I know it sounds silly tackling a giant tumour with a bunch of carrots, but it's the best I can do for the moment. In Australia, we have a free public health system, but you can still wait weeks with a problem as urgent as mine. Around 30% of the population can afford private health care, and they get attended to straight away - but I'm not in that financial bracket. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Hello Sue ~ I am sorry your dizziness is back, that bites ! I am also sorry the kefir went sour. How long did you leave it in the milk? I sure hope you start feeling better. What has the cardiologist been saying about your heart? I know adrenal and thyroid issues can cause heart symptoms, so can yeast/fungal infections. I hope the vertigo goes away soon ! Love DedeSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Thank you helen, It seem like during the day i can get by without too much trouble but the night is when i cannot turn off the mind... I will look into it thanks again : ) ---> Dear Sue > > I dont know if there have been any developments on > your cancer scare - > but I know of a good herbal anti-anxiety suplement > that will give you > psychological relief in 45 minutes. > > It's called MELATONIN available at health food > stores. I studied this > natural sedative as my Honors thesis at University a > few years ago > when it was new on the market. It has none of the > nagative side > effects or rebound effects of typical drug based > sedatives or > sleepipng pills. It's not horribly expensive. I'm > using it to get > through my own 'waiting time " . > > Helen > > > > > > > > [Non-text portions of this message have been > removed] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 Yes Sandy, yummy aye??? Sue From: [mailto: ] On Behalf Of Sandy Sent: 25 October 2007 00:38 Cc: dusty.com@... Subject: Sue Importance: High Scar Capsule Canapés ---> Sue food catogory ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 Hi Rogene, I am going to give it ago, my osteopath is always telling me to breathe from my stomach, you just get into bad habits. I have been reading PH emails; I am looking forward to what they suggest about the adrenals. I am doing well with the diet and probiotics, my next step is to go walking. Love Sue From: [mailto: ] On Behalf Of Rogene Sent: 10 November 2007 15:04 Subject: Sue Sue, Have you tried the stomach breathing PH was talking about? That might help you. . .. They taught it to my father when he had emphysema . . . He thought it helped immensely. Love, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Hi Dede, I don’t really get headaches only occasionally but then I suppose everyone does. I can totally relate to the neck, shoulder arm pain though. I don’t know really what’s going on. How are you bearing up Dede, I think of you often. You have so much to deal with but you always find time for us on the group. I hope your dad is managing his chemo and doing ok. I hope things settle for you both soon. Love Sue From: [mailto: ] On Behalf Of DGRAHAMA@... Sent: 11 December 2007 19:58 Subject: Sue Hello Sue ~ I get this too with the weird leaning in my head and bumping into things and feeling of off inside my head, and Brigite sent me some things on pseudo tumor cerebri, and it is where your brain thinks it has a brain tumor but it doesnt and your head can swell and you can have horrible headaches. I am pretty sure I have it, and sounds like you may too, please read the info I am gonna send you. Dr Kolb called a neuro about this and they feel it can be connected to silicone exposure. http://www.pseudotumorcerebri.com/ Pseudotumor Cerebri Symptoms The common symptoms are headache, dizziness and impaired vision. Headache is often worse on awakening, and can be intensified by coughing, laughing, bending over, crying, and increased physical activity. Impaired vision shows up in several ways. It can be visual blurring, brief moments of dimming or loss of vision called transient visual obscurations (TVO's), small specks appearing or vision distortions (items moving up or down). Blindness can occur. Other symptoms affecting PTC patients include: shoulder/arm pain, neck pain, memory problems, awkward coordination, muscle weakness, fatigue, back pain, and depression. Possible symptoms include dizziness, hearing loss, ringing in the ears or noises within the head called tinnitus. Regarding headaches: a study showed 92% of patients interviewed had headaches; 93% of those with headaches said it was the most severe headache they had ever experienced. The head pain was described as a pulsing headache that kept increasing in intensity. Another description was a " pressure " headache, resembling a percolator. Seventy four percent of those with headaches had it on a daily basis. Can also experience neck stiffness or nausea. Pseudotumor Cerebri Characteristics By appearance, a person looks well. PTC can last for months or for years. It can go into remission. For those in remission, PTC can re-occur 5% to 10% of the time. 80% of PTC patients have some positive response to treatment. (This means that the PTC symptoms improve, not that the PTC necessarily goes away.) Pseudotumor Cerebri most commonly appears in women of child-bearing age. However, this disease also occurs in children and teenagers (both male and female) and adult males. For women of child-bearing age, there is often a history of menstrual problems. Frequently these women are overweight and/or have had a recent weight gain. Although physicians recommend weight loss, there are patients whose weight loss has not affected their PTC. A number of PTC patients have had a previous history of sinus problems. Many patients are light-sensitive; bright lights bother them and fluorescent light will fatigue and bring on confusion. Endocrine studies can appear normal. Often PTC is complicated with high blood pressure. PTC does appear to have a relationship to adrenal hormones. Things Linked to PTC Secondary PTC has appeared with the use of oral contraceptives, prolonged use of corticosteroids, large doses of vitamin A, use of tetracycline , nalidixic acid, nitrofurantoin, sulfa drugs, lithium, indomethacin, and phenytoin. Rapid recovery often occurs when drug use is stopped. Chlordane toxicity (an insecticide) can also cause PTC. Other things linked to PTC include: Tetracyclines (including doxycycline and minocycline, antibiotics for chlamydia and acne) Lithium carbonate (a mineral salt to treat bipolar or manic-depressive disorder) Systemic lupus erythematosus Lyme disease 's disease (a condition in which the adrenal glands hypofunction) Cushing's disease (a condition in which the adrenal glands hyperfunction) Prednisone (and other steroids, possibly by any route including topically, nasally, orally, etc.) Hypo-thyroidism Hyper-thyroidism Pregnancy Obesity Head Trauma Irritable Bowel Syndrome Empty Sella Syndrome (condition in which the pituitary hypofunctions) Licorice (the inciting ingredient is glycericic acid) Vitamin A or its derivatives (used in bone marrow transplantation patients and to treat acne) Respiratory infections Sleep apnea (a condition in which the patient snores and has headaches upon awakening) Norplant (a contraceptive that is implanted under the skin) Growth hormone therapy Climacteric (the start of menopause) Kidney disorders and kidney transplants Anyway Sue, read this and see what you think.......I hope it gets better for you soon ! ! Have missed you ! ! You are in my prayers girl ! Love ya lots ~ Dede See AOL's top rated recipes and easy ways to stay in shape for winter. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 Hi Dede, My name is . I just joined the group last night and will hopefully be making plans soon to get my implants removed. I was reading your post and it reminded me of something my naturopath told me while she was alive. You mentioned going 5-10 times a day. In massage therapy school my instructor told the class that almost all of us carry at least 25lbs of fecal matter inside of us at any given time. So I guess thats where it all comes from. LOL Now my naturopath informed me that all of us should go at least 3 times a day. Which should be every time we eat. That is if we are eating 3 times a day. The body signals " something is coming in, something has to go out. " And that disease almost always STARTS in the colon. In massage we are trained to tell people to drink plenty of water after their session in order to aid the body in getting rid of the toxins released from their muscle tissue. If not, a lot of times one will experience " flu like " symptoms when in fact it is the body reabsorbing the toxins released into the blood stream during the massage. So then if we can feel that bad from that, I'm thinking that it makes sense that a lot of the symptoms that a lot of people experience could be due to the fact that most of us don't poop enough. Imagine the toxins that our bodies reabsorb everyday from our colon. I mean we all know what happens to us eventually if we don't go to the bathroom. We die from blood poisoning. I myself need to go more so I shall try your cleanse. Thanks for mentioning it. I guess I need to do what I can til I get my implants removed. I do drink a lot of green tea to keep my immune system strong. I take a multi vit and min and lots of garlic and probotics for my candida. I guess I screw all that up though with my little chocolate obsession. LOL We can't be good all the time. > > Sue ~ > Hello there. I am so sorry things are so stormy > with your health. I still think part of it is your adrenals > and that they are almost at rockbottom. Please > drink the sea salt water and take extra vit C, the > good kind, it will make a huge difference in how > you feel. I think the instructions on supporting the > adrenals are in the archives. > I can tell you that one Sunday, for the hell of it I > drank the quart of warm water with the teaspoon > of sea salt in it to see how much waste was in me, > now mind ya, I go 5-10 times a day ! ! dont ask me > where all that crap comes from, but it is there ! > I know this is gross, but I have to say, I had the runs > about 5 times after drinking that, started about > an hour after drinking it ( first thing and on an empty stomach) > then went a few other times thru the day and in the evening ! > Anyway, the next day and for several days, I felt so good ! ! > and had alot of energy. I was totally amazed. The problem > is I am not sure if it was because I was cleaned out totally, or > the salt for the adrenals, or the combo that did it , but I was > so amazed at how clear I felt and the energy and felt good. > Unfortunately, because of my heart and kidneys, I am salt > restricted and cant do that on a regular basis. I was really scared > to do the clense because of the salt. I just had to try it once > because I was telling girls to try it for constipation, and they would > ask questions about it, and I didnt know how to answer them. > When I read about it, it was called the salt water flush, or enema by mouth. > Meaning you drank the solution so it would clean you out from top to > bottom. Doing an enema by butt, only cleans out the lower part of the > colon, by mouth, it is a clean sweep ! ! > If your adrenals are compromised, then the salt water also supports them. > If I didnt have the heart/kidney problem, I would do the salt water flush > on a regular basis, as it made me feel so good. Give it a shot.....cant > hurt... > Love Dede > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 Yes it seems dogs really are man's best friend! I have a yellow lab, Louie and a schnoodle that I got 2 days before being struck down by ra, the last thing I needed was a puppy but so glad I have him. I find that the people I meet after having ra, I like being around them better as they don't know me any other way, whereas the people who knew before ra, I don't know I just don't feel comfortable being with them anymore, I guess the contrast is just too stark. Go have that cup of coffee with someone and see how you feel, if it's to much, forget about it, if not....well we all must start with baby steps. Hugs, Sue rheumatic Re: Depression in Chronic Illnesses! The lesson I've learned the hard way is when people don't listen, don't believe, don't support me with this illness, our relationship is jeopardized. Scleroderma is not just testing me, it's testing my family & friends, and only a handful are passing the test. I recently was telling a long-term friend how expensive Minocin and my supplements are. He replied that I should take the generic, there's no difference. He quickly refuted me with 'science' when I tried to explain, ending it with a shameful " Well, it's your choice " . Later in the conversation I was telling him how I've felt so lost since I became sick. He said I should just 'laugh it off', and that I'm starting to sound like his grandmother. I felt totally unheard, and said I had to get off the phone to work on finding cheaper ways to get meds. He replied that if he were me, he would just give up & die because that's his life philosophy, to let nature take its course. I never would have guessed how insensitive people can be until my dx. A true friend with good communication skills would have asked me more questions, let me talk it out and let me know that he really hears me. Would have offered on-point support, helped me brainstorm solutions, just been on my side. If he was uncomfortable with my 'negative' feelings, they would have passed naturally had he taken a helpful role, instead of throwing out his surface level advice. Since my dx I've lost so many relationships over insensitivities. Our entire culture seems to be needing lessons in empathy and communication & especially listening skills. Since everyone in these forums is in the same boat, that's the one thing I feel we can count on one another for, shared understanding. These forums keep me functioning emotionally. These forums are an essential component to my physical and emotional health. I don't post often, but I read every post, and every post makes me more knowledgable, and stronger. I feel somehow bonded with you all in this magical electronic world. What the heck did people like us do before this electronic medium? Hi lynne > > > > > > > > As you know my Dr. prscribed Medrol 2 mg 4 days a week > > > > to lower my inflammation. my ESR is high 120. > > > > I thought it is not a bad idea because i read high > > > > inflammtion doesn't allow minocin to penetrate cells. > > > > anyway last nightI took my first medrol and I got up > > > > with less pain and less stiffness. My hands are no > > > > puffy right now. wow I didn't know a low dose of > > > > steroid can make a big difference. I don't like to > > > > take steroid because of side effects. my Dr. also > > > > doesn't like it. I am going to take it only 3 days a > > > > week. I hope it helps me to put on some weight. > > > > what do you think? > > > > By the way you do lots of work. I couldn't do such > > > > amonth of work even when I was healthy. like you I > > > > always followed a healthy diet, did excersize. no > > > > smoking and drinking but I was not a happy person. > > > > I didn't realize the most important thing is my > > > > health. > > > > > > > > enjoy the weekend > > > > > > > > soheila > > > > > > > > __________________________________________________________ > > > > Looking for last minute shopping deals? > > > > Find them fast with Search. > > > http://tools.search./newsearch/category.php? > > > category=shopping > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > Looking for last minute shopping deals? Find them fast with > > > Search. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Hi Sue,I'm still here too. I've been away the last couple of weeks on vacation. My wound finally healed but decided to open up again a bit so it's leaking. Arrrrgggghhh!!!!So the saga continues.How are you feeling?Love Traci"Feeling down? Saddle up." ~Author Unknown From: Gibbens <susan.gibbens@...>Subject: Re: 19 year old daughter getting silicone breast implants Date: Wednesday, June 18, 2008, 2:01 PM Hi Dede, How are you feeling and do you have any results of your tests. Has this group finished or has everyone gone somewhere else. Love Sue 19 year old daughter getting silicone breast implants Janine ~ and ~ I am so sorry that your daughter is so focused on getting implants and is being filled with the deception that goes along with them. I hope that I am giving you some info that will be a good education so that she will be truly informed before her final decision. I highly suggest she really studies everything, does the math on the statistics, and looks inside herself and realizes that God already created her totally perfect already. You cannot improve perfection ! There used to be a silicone immune response test that would give some answers, but they took it off the market because it was showing proof of immune response to the silicone. That didnt earn them their big bucks... For every person that a doctor implants, it is pretty much a guarantee that they will have multiple surgeries out of that person, so it is a huge income for them. Of course they will say they are safe ! ! There are people that dont have problems, or shall I say, realize that their fatigue, or allergies, or digestive problems are actually an immune response to the implanted devices. Many people dont realize that there are many chemicals that make up the silicone for implants that are ALL known neuro-toxins. The silica in nature is not manipulated by all the chemicals that the silicone in implants are. All implants are silicone, they are just filled with different things. Below is a list of many of the chemicals in the silicone made for implants : 1)Methyl Ethyl Ketone 2)Cyclobexanone 3)Isopropyl Alcohol 4)Denatured Alcohol 5)Acetone 6)Urethane 7)Poly vinyl Chloride 8)Lacquer Thinner 9)Ethyl Acetate 10)Epoxy Resin 11)Epoxy Hardener 12)Amine 13)Printing Ink 14)Toluene 15)Freon 16)Silica 17)Flux 18)Solder ]19)Chlorplatinic Acid 20)Metal Cleaning Acid 21)Formaldehyde 22)Talcum Powder 23)Color Pigmentation (Printers Ink) 24)Oakite 25)Cyanoacyrylates 26)Ethylene Oxide 27)Carob Black 28)Xylene 29)Hexone 30)Benzene 31)Hexanone 2 32)Thixon-OSN- 2 33)Rubber 34)Acid Stearic 35)Zinc Oxide 36)Naptha 37)Phenol 38)Methylene Chloride 39)Platinum Salt Quite the toxic soup ! ! As you see, this is why people eventually develope multiple chemical sensitivity disorder. Some people just start noticing that some fragrances bother them, or bug sprays, or candle stores, or fabric stores cause them to sneeze when they didnt use to, or even grass , or flowers . Some people get violent reactions almost immediately after being implanted. People may start getting bloated on occasion when they didnt used to. Then they might start having nausia frequently, or even diarrhea more frequently. Maybe some lower backaches, and neckaches, and more frequent headaches, all part of the immune response to the overload of toxins from implants. You know statistics reported say that 6-9 % of people get necrosis from implants. That number sounds low, but when you do the math........ the number is very large ! Each year, reported cases of implantation are around 350,000 - 400,000 thousand people. so, just estimate, say 7 % of 375,000. Well, 10 percent is 37,000, and 5 percent is 18,750, so, somewhere inbetween is the number of people that get necrosis, that is tissue cell death, here are photos of that for you to see: http://www.silicone holocaust. org/photos1a. html , this is necrosis , and the implant is starting to come out of the hole made by the necrosis this is a result of a silicone rupture If you want more education on this subject, here are some sites with tons of info: http://health. groups.. com/group/ / http://www.humantic sfoundation. com/ http://www.silicone survivors. net/ www.myimplantstory. com http://www.truthabo utbreastimplants .com/ http://www.implants out.org/ http://www.poisoned beauty.com/ http://www.toxicbre astimplants. org/index. htm http://www.sallykir kland.com/ pages/institute. html http://www.inthekno w.org/ http://beautyandthe breast.org/ http://www.silicone holocaust. org/index2. html http://www.global- sisterhood- network.org/ content/view/ 2030/59/ http://www.info- implants. com/BC/indexbc. html , http://www.info- implants. com/links. html , http://kathynyebrea stimplants. homestead. com/ http://kathynyebrea stimplants. homestead. com/WarningPageG raphicPhotos. html http://www.breastim plantsupport. org/ http://www.jussta. com/site_ map_siliconepois oning_breastimpl ants.htm http://community- 2.webtv.net/ Silly-Cones/ BreastImplantsth e/ http://commandtrust .com/ http://www.silicone survivors. co.uk/ http://implantinfor mationnetwork. yuku.com/ http://www.tuberose .com/Breast_ Implants. html http://www.orgsites .com/fl/adjuvant disease/index. html http://www.silicone survivors. com/ http://www.implantt ruth.jshood. com/index. htm Please, do yourself the biggest favor of your lifetime, read all these sites, do your homework before making a decision that will change your life forever, and if you decide to have children, these devices DO affect offspring. Despite what they say ! ! There is a support group for children born of implanted women. Many children born to implanted women are autistic ! many have horrible allergies and digestive problems as well as many other problems. Please think this through after you have the complete education on these devices. I wish you well whatever your decision is. A truly well rounded informed education ahead of time is in your best interest and will help you make the best decision. Remember, once implanted, insurance companies will not cover you for anything that they think may be remotely related to having implanted devices ! This will follow you the rest of your lifetime. You see, before implants, they say implants dont cause illness, once implanted, doctors say your problems are in your head, or not related to implants, and insurance companies say that your problems are implanted related and they wont cover you. All very contraversial, and you are too sick to fight it. God Bless YOU ~ Dede PS, look in the photo section at the saline implants that are full of molds and fungus's.... it is disgusting ! This happens very frequently ! and causes horrible illness that takes a very long time to heal from. And, the FDA, neatly tucked away under Immunotoxicology/ toxicology is information on how implants are on your endocrin system, and how your bodies macrophages attack the implants ! http://www.fda. gov/cdrh/ ost/reports/ fy98/IMMUNOTOX. HTM they made sure this is NOT in the area of breast implant discussion ! Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Hi Traci, I am so sorry to hear your wound has opened up again,goodness knows you have been through enough,lets hope its just a minor set back. To be honest I am and have been feeling really bad,worse than ever. I have the Drs next week to check for COPD my breathing is terrible. I hope your wound heals quickly. It was nice to speak to someone again......where has everyone gone?? Love Sue 19 year old daughter getting silicone breast implants Janine ~ and ~ I am so sorry that your daughter is so focused on getting implants and is being filled with the deception that goes along with them. I hope that I am giving you some info that will be a good education so that she will be truly informed before her final decision. I highly suggest she really studies everything, does the math on the statistics, and looks inside herself and realizes that God already created her totally perfect already. You cannot improve perfection ! There used to be a silicone immune response test that would give some answers, but they took it off the market because it was showing proof of immune response to the silicone. That didnt earn them their big bucks... For every person that a doctor implants, it is pretty much a guarantee that they will have multiple surgeries out of that person, so it is a huge income for them. Of course they will say they are safe ! ! There are people that dont have problems, or shall I say, realize that their fatigue, or allergies, or digestive problems are actually an immune response to the implanted devices. Many people dont realize that there are many chemicals that make up the silicone for implants that are ALL known neuro-toxins. The silica in nature is not manipulated by all the chemicals that the silicone in implants are. All implants are silicone, they are just filled with different things. Below is a list of many of the chemicals in the silicone made for implants : 1)Methyl Ethyl Ketone 2)Cyclobexanone 3)Isopropyl Alcohol 4)Denatured Alcohol 5)Acetone 6)Urethane 7)Poly vinyl Chloride 8)Lacquer Thinner 9)Ethyl Acetate 10)Epoxy Resin 11)Epoxy Hardener 12)Amine 13)Printing Ink 14)Toluene 15)Freon 16)Silica 17)Flux 18)Solder ]19)Chlorplatinic Acid 20)Metal Cleaning Acid 21)Formaldehyde 22)Talcum Powder 23)Color Pigmentation (Printers Ink) 24)Oakite 25)Cyanoacyrylates 26)Ethylene Oxide 27)Carob Black 28)Xylene 29)Hexone 30)Benzene 31)Hexanone 2 32)Thixon-OSN- 2 33)Rubber 34)Acid Stearic 35)Zinc Oxide 36)Naptha 37)Phenol 38)Methylene Chloride 39)Platinum Salt Quite the toxic soup ! ! As you see, this is why people eventually develope multiple chemical sensitivity disorder. Some people just start noticing that some fragrances bother them, or bug sprays, or candle stores, or fabric stores cause them to sneeze when they didnt use to, or even grass , or flowers . Some people get violent reactions almost immediately after being implanted. People may start getting bloated on occasion when they didnt used to. Then they might start having nausia frequently, or even diarrhea more frequently. Maybe some lower backaches, and neckaches, and more frequent headaches, all part of the immune response to the overload of toxins from implants. You know statistics reported say that 6-9 % of people get necrosis from implants. That number sounds low, but when you do the math........ the number is very large ! Each year, reported cases of implantation are around 350,000 - 400,000 thousand people. so, just estimate, say 7 % of 375,000. Well, 10 percent is 37,000, and 5 percent is 18,750, so, somewhere inbetween is the number of people that get necrosis, that is tissue cell death, here are photos of that for you to see: http://www.silicone holocaust. org/photos1a. html , this is necrosis , and the implant is starting to come out of the hole made by the necrosis this is a result of a silicone rupture If you want more education on this subject, here are some sites with tons of info: http://health. groups.. com/group/ / http://www.humantic sfoundation. com/ http://www.silicone survivors. net/ www.myimplantstory. com http://www.truthabo utbreastimplants .com/ http://www.implants out.org/ http://www.poisoned beauty.com/ http://www.toxicbre astimplants. org/index. htm http://www.sallykir kland.com/ pages/institute. html http://www.inthekno w.org/ http://beautyandthe breast.org/ http://www.silicone holocaust. org/index2. html http://www.global- sisterhood- network.org/ content/view/ 2030/59/ http://www.info- implants. com/BC/indexbc. html , http://www.info- implants. com/links. html , http://kathynyebrea stimplants. homestead. com/ http://kathynyebrea stimplants. homestead. com/WarningPageG raphicPhotos. html http://www.breastim plantsupport. org/ http://www.jussta. com/site_ map_siliconepois oning_breastimpl ants.htm http://community- 2.webtv.net/ Silly-Cones/ BreastImplantsth e/ http://commandtrust .com/ http://www.silicone survivors. co.uk/ http://implantinfor mationnetwork. yuku.com/ http://www.tuberose .com/Breast_ Implants. html http://www.orgsites .com/fl/adjuvant disease/index. html http://www.silicone survivors. com/ http://www.implantt ruth.jshood. com/index. htm Please, do yourself the biggest favor of your lifetime, read all these sites, do your homework before making a decision that will change your life forever, and if you decide to have children, these devices DO affect offspring. Despite what they say ! ! There is a support group for children born of implanted women. Many children born to implanted women are autistic ! many have horrible allergies and digestive problems as well as many other problems. Please think this through after you have the complete education on these devices. I wish you well whatever your decision is. A truly well rounded informed education ahead of time is in your best interest and will help you make the best decision. Remember, once implanted, insurance companies will not cover you for anything that they think may be remotely related to having implanted devices ! This will follow you the rest of your lifetime. You see, before implants, they say implants dont cause illness, once implanted, doctors say your problems are in your head, or not related to implants, and insurance companies say that your problems are implanted related and they wont cover you. All very contraversial, and you are too sick to fight it. God Bless YOU ~ Dede PS, look in the photo section at the saline implants that are full of molds and fungus's.... it is disgusting ! This happens very frequently ! and causes horrible illness that takes a very long time to heal from. And, the FDA, neatly tucked away under Immunotoxicology/ toxicology is information on how implants are on your endocrin system, and how your bodies macrophages attack the implants ! http://www.fda. gov/cdrh/ ost/reports/ fy98/IMMUNOTOX. HTM they made sure this is NOT in the area of breast implant discussion ! Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Traci, So sorry you are having these problems again. Hopefully they will be resolved ever so much quickly this time. Love, Lynda At 03:45 AM 6/19/2008, you wrote: >I missed you Sue. Yes, it is nice to chat with someone again. > >I honestly don't know what on earth is going on with my dumb >boob. This morning it's starting to get even more goopy and >stuff. I think there is some sort of infection going on. I will >hear back from my surgeon today. I will keep you posted. > >My Hubby has been in England all week on business. With my boob >turning back into Godzilla, he needs to get his butt back >here. Thanks goodness he's coming back on Friday. > >Sue, I'm sorry you've been having a tough time with your >breathing. Please let me know what the Doc's say. > >Sending healing hugs across the pond. > >Love Traci > > > " Feeling down? Saddle > up. " >~Author Unknown <http://www.smileycentral.com/?partner=ZSzeb001_ZNfox000> >Horseback Riding > > > >From: Gibbens <susan.gibbens@ virgin.net> >Subject: Re: 19 year old daughter getting silicone >breast implants > >Date: Wednesday, June 18, 2008, 2:01 PM > >Hi Dede, > >How are you feeling and do you have any results of your tests. >Has this group finished or has everyone gone somewhere else. >Love Sue > 19 year old daughter getting silicone breast implants > > >Janine ~ and ~ >I am so sorry that your daughter is so focused >on getting implants and is being filled with the >deception that goes along with them. >I hope that I am giving you some info that will be >a good education so that she will be truly informed >before her final decision. I highly suggest she really >studies everything, does the math on the statistics, >and looks inside herself and realizes that God already >created her totally perfect already. You cannot improve >perfection ! >There used to be a silicone immune response test >that would give some answers, but they took it off >the market because it was showing proof of >immune response to the silicone. That didnt earn >them their big bucks... >For every person that a doctor implants, it is pretty >much a guarantee that they will have multiple surgeries >out of that person, so it is a huge income for them. >Of course they will say they are safe ! ! >There are people that dont have problems, or shall I say, >realize that their fatigue, or allergies, or digestive problems >are actually an immune response to the implanted devices. >Many people dont realize that there are many chemicals >that make up the silicone for implants that are ALL known >neuro-toxins. The silica in nature is not manipulated by all the >chemicals that the silicone in implants are. All implants are >silicone, they are just filled with different things. Below is a >list of many of the chemicals in the silicone made for implants : >1)Methyl Ethyl Ketone >2)Cyclobexanone >3)Isopropyl Alcohol >4)Denatured Alcohol >5)Acetone >6)Urethane >7)Poly vinyl Chloride >8)Lacquer Thinner >9)Ethyl Acetate >10)Epoxy Resin >11)Epoxy Hardener >12)Amine >13)Printing Ink >14)Toluene >15)Freon >16)Silica >17)Flux >18)Solder >]19)Chlorplatinic Acid > 20)Metal Cleaning Acid >21)Formaldehyde >22)Talcum Powder >23)Color Pigmentation (Printers Ink) >24)Oakite >25)Cyanoacyrylates >26)Ethylene Oxide >27)Carob Black >28)Xylene >29)Hexone >30)Benzene >31)Hexanone 2 >32)Thixon-OSN- 2 >33)Rubber >34)Acid Stearic >35)Zinc Oxide >36)Naptha >37)Phenol >38)Methylene Chloride >39)Platinum Salt > >Quite the toxic soup ! ! >As you see, this is why people eventually develope multiple >chemical sensitivity disorder. Some people just start noticing >that some fragrances bother them, or bug sprays, or candle stores, >or fabric stores cause them to sneeze when they didnt use to, or >even grass , or flowers . Some people get violent reactions almost >immediately after being implanted. People may start getting >bloated on occasion when they didnt used to. Then they might start >having nausia frequently, or even diarrhea more frequently. >Maybe some lower backaches, and neckaches, and more frequent >headaches, all part of the immune response to the overload of toxins >from implants. >You know statistics reported say that 6-9 % of people get necrosis >from implants. That number sounds low, but when you do the >math........ the number is very large ! Each year, reported cases >of implantation are around 350,000 - 400,000 thousand people. >so, just estimate, say 7 % of 375,000. Well, 10 percent is 37,000, >and 5 percent is 18,750, so, somewhere inbetween is the number of >people that get necrosis, that is tissue cell death, here are photos >of that for you to >see: ><http://www.siliconeholocaust.org/photos1a.html>http://www.silicone >holocaust. org/photos1a. html >[] >, this is necrosis , and the implant is starting to come out of the >hole made by the necrosis >[] > this is a result of a silicone rupture >If you want more education on this subject, here are some sites with >tons of info: > >http://health. groups.. com/group/ / > >http://www.humantic sfoundation. com/ > >http://www.silicone survivors. net/ > >www.myimplantstory. com > >http://www.truthabo utbreastimplants .com/ > >http://www.implants out.org/ > >http://www.poisoned beauty.com/ > >http://www.toxicbre astimplants. org/index. htm > >http://www.sallykir kland.com/ pages/institute. html > >http://www.inthekno w.org/ > >http://beautyandthe breast.org/ > >http://www.silicone holocaust. org/index2. html > >http://www.global- sisterhood- network.org/ content/view/ 2030/59/ > >http://www.info- implants. com/BC/indexbc. html , > >http://www.info- implants. com/links. html , > >http://kathynyebrea stimplants. homestead. com/ > >http://kathynyebrea stimplants. homestead. com/WarningPageG >raphicPhotos. html > >http://www.breastim plantsupport. org/ > >http://www.jussta. com/site_ map_siliconepois oning_breastimpl ants.htm > >http://community- 2.webtv.net/ Silly-Cones/ BreastImplantsth e/ > >http://commandtrust .com/ > >http://www.silicone survivors. co.uk/ > >http://implantinfor mationnetwork. yuku.com/ > >http://www.tuberose .com/Breast_ Implants. html > >http://www.orgsites .com/fl/adjuvant disease/index. html > >http://www.silicone survivors. com/ > ><http://www.implanttruth.jshood.com/index.htm>http://www.implantt >ruth.jshood. com/index. htm > >Please, do yourself the biggest favor of your lifetime, read all >these sites, do your homework before making a decision that will >change your life forever, and if you decide to have children, these >devices DO affect offspring. Despite what they say ! ! There is a >support group for children born of implanted women. Many children >born to implanted women are autistic ! many have horrible allergies >and digestive problems as well as many other problems. Please think >this through after you have the complete education on these >devices. I wish you well whatever your decision is. A truly well >rounded informed education ahead of time is in your best interest >and will help you make the best decision. Remember, once implanted, >insurance companies will not cover you for anything that they think >may be remotely related to having implanted devices ! This will >follow you the rest of your lifetime. You see, before implants, >they say implants dont cause illness, once implanted, doctors say >your problems are in your head, or not related to implants, and >insurance companies say that your problems are implanted related and >they wont cover you. All very contraversial, and you are too sick to fight it. > >God Bless YOU ~ Dede >PS, look in the photo section at the saline implants >that are full of molds and fungus's.... it is disgusting ! >This happens very frequently ! and causes horrible illness >that takes a very long time to heal from. >And, the FDA, neatly tucked away under Immunotoxicology/ toxicology >is information on how implants are on your endocrin system, and how >your bodies macrophages attack the implants >! ><http://www.fda.gov/cdrh/ost/reports/fy98/IMMUNOTOX.HTM>http://www.fda. >gov/cdrh/ ost/reports/ fy98/IMMUNOTOX. HTM >they made sure this is NOT in the area of breast implant discussion ! > > > > >---------- >Gas prices getting you down? Search AOL Autos for fuel-efficient ><http://autos.aol.com/used?ncid=aolaut00050000000007>used cars. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Thanks so much Lynda.I'm praying for you.Love Traci"Feeling down? Saddle up." ~Author Unknown >From: Gibbens <susan.gibbens@ virgin.net> >Subject: Re: 19 year old daughter getting silicone >breast implants > >Date: Wednesday, June 18, 2008, 2:01 PM > >Hi Dede, > >How are you feeling and do you have any results of your tests. >Has this group finished or has everyone gone somewhere else. >Love Sue > 19 year old daughter getting silicone breast implants > > >Janine ~ and ~ >I am so sorry that your daughter is so focused >on getting implants and is being filled with the >deception that goes along with them. >I hope that I am giving you some info that will be >a good education so that she will be truly informed >before her final decision. I highly suggest she really >studies everything, does the math on the statistics, >and looks inside herself and realizes that God already >created her totally perfect already. You cannot improve >perfection ! >There used to be a silicone immune response test >that would give some answers, but they took it off >the market because it was showing proof of >immune response to the silicone. That didnt earn >them their big bucks... >For every person that a doctor implants, it is pretty >much a guarantee that they will have multiple surgeries >out of that person, so it is a huge income for them. >Of course they will say they are safe ! ! >There are people that dont have problems, or shall I say, >realize that their fatigue, or allergies, or digestive problems >are actually an immune response to the implanted devices. >Many people dont realize that there are many chemicals >that make up the silicone for implants that are ALL known >neuro-toxins. The silica in nature is not manipulated by all the >chemicals that the silicone in implants are. All implants are >silicone, they are just filled with different things. Below is a >list of many of the chemicals in the silicone made for implants : >1)Methyl Ethyl Ketone >2)Cyclobexanone >3)Isopropyl Alcohol >4)Denatured Alcohol >5)Acetone >6)Urethane >7)Poly vinyl Chloride >8)Lacquer Thinner >9)Ethyl Acetate >10)Epoxy Resin >11)Epoxy Hardener >12)Amine >13)Printing Ink >14)Toluene >15)Freon >16)Silica >17)Flux >18)Solder >]19)Chlorplatinic Acid > 20)Metal Cleaning Acid >21)Formaldehyde >22)Talcum Powder >23)Color Pigmentation (Printers Ink) >24)Oakite >25)Cyanoacyrylates >26)Ethylene Oxide >27)Carob Black >28)Xylene >29)Hexone >30)Benzene >31)Hexanone 2 >32)Thixon-OSN- 2 >33)Rubber >34)Acid Stearic >35)Zinc Oxide >36)Naptha >37)Phenol >38)Methylene Chloride >39)Platinum Salt > >Quite the toxic soup ! ! >As you see, this is why people eventually develope multiple >chemical sensitivity disorder. Some people just start noticing >that some fragrances bother them, or bug sprays, or candle stores, >or fabric stores cause them to sneeze when they didnt use to, or >even grass , or flowers . Some people get violent reactions almost >immediately after being implanted. People may start getting >bloated on occasion when they didnt used to. Then they might start >having nausia frequently, or even diarrhea more frequently. >Maybe some lower backaches, and neckaches, and more frequent >headaches, all part of the immune response to the overload of toxins >from implants. >You know statistics reported say that 6-9 % of people get necrosis >from implants. That number sounds low, but when you do the >math....... . the number is very large ! Each year, reported cases >of implantation are around 350,000 - 400,000 thousand people. >so, just estimate, say 7 % of 375,000. Well, 10 percent is 37,000, >and 5 percent is 18,750, so, somewhere inbetween is the number of >people that get necrosis, that is tissue cell death, here are photos >of that for you to >see: ><http://www.silicone holocaust. org/photos1a. html>http://www.silicone >holocaust. org/photos1a. html >[] >, this is necrosis , and the implant is starting to come out of the >hole made by the necrosis >[] > this is a result of a silicone rupture >If you want more education on this subject, here are some sites with >tons of info: > >http://health. groups.. com/group/ / > >http://www.humantic sfoundation. com/ > >http://www.silicone survivors. net/ > >www.myimplantstory . com > >http://www.truthabo utbreastimplants .com/ > >http://www.implants out.org/ > >http://www.poisoned beauty.com/ > >http://www.toxicbre astimplants. org/index. htm > >http://www.sallykir kland.com/ pages/institute. html > >http://www.inthekno w.org/ > >http://beautyandthe breast.org/ > >http://www.silicone holocaust. org/index2. html > >http://www.global- sisterhood- network.org/ content/view/ 2030/59/ > >http://www.info- implants. com/BC/indexbc. html , > >http://www.info- implants. com/links. html , > >http://kathynyebrea stimplants. homestead. com/ > >http://kathynyebrea stimplants. homestead. com/WarningPageG >raphicPhotos. html > >http://www.breastim plantsupport. org/ > >http://www.jussta. com/site_ map_siliconepois oning_breastimpl ants.htm > >http://community- 2.webtv.net/ Silly-Cones/ BreastImplantsth e/ > >http://commandtrust .com/ > >http://www.silicone survivors. co.uk/ > >http://implantinfor mationnetwork. yuku.com/ > >http://www.tuberose .com/Breast_ Implants. html > >http://www.orgsites .com/fl/adjuvant disease/index. html > >http://www.silicone survivors. com/ > ><http://www.implantt ruth.jshood. com/index. htm>http://www.implantt >ruth.jshood. com/index. htm > >Please, do yourself the biggest favor of your lifetime, read all >these sites, do your homework before making a decision that will >change your life forever, and if you decide to have children, these >devices DO affect offspring. Despite what they say ! ! There is a >support group for children born of implanted women. Many children >born to implanted women are autistic ! many have horrible allergies >and digestive problems as well as many other problems. Please think >this through after you have the complete education on these >devices. I wish you well whatever your decision is. A truly well >rounded informed education ahead of time is in your best interest >and will help you make the best decision. Remember, once implanted, >insurance companies will not cover you for anything that they think >may be remotely related to having implanted devices ! This will >follow you the rest of your lifetime. You see, before implants, >they say implants dont cause illness, once implanted, doctors say >your problems are in your head, or not related to implants, and >insurance companies say that your problems are implanted related and >they wont cover you. All very contraversial, and you are too sick to fight it. > >God Bless YOU ~ Dede >PS, look in the photo section at the saline implants >that are full of molds and fungus's.... it is disgusting ! >This happens very frequently ! and causes horrible illness >that takes a very long time to heal from. >And, the FDA, neatly tucked away under Immunotoxicology/ toxicology >is information on how implants are on your endocrin system, and how >your bodies macrophages attack the implants >! ><http://www.fda. gov/cdrh/ ost/reports/ fy98/IMMUNOTOX. HTM>http://www.fda. >gov/cdrh/ ost/reports/ fy98/IMMUNOTOX. HTM >they made sure this is NOT in the area of breast implant discussion ! > > > > >---------- >Gas prices getting you down? Search AOL Autos for fuel-efficient ><http://autos. aol.com/used? ncid=aolaut00050 000000007>used cars. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 I was on the DMARDS, MTX and prednisone, for a year before I stumbled across AP, which I had such high hopes for as none of us want to be on these other awful drugs....but that said they are working for me now that I have, begrudgingly, added Enbrel. I need to enjoy my children at the moment and be an involved parent. God willing I can see them off to college feeling decent and then re-think my RA strategy again, for now that is my top priority. So as it goes I have added Enbrel and that has really worked miracles, I have been able to drastically reduce my prednisone and hope to be off MTX soon. I am planning on continuing the Minocycline in hopes that with the inflammation finally (after 2 1/2 years ) under control the Mino can get a foothold. I know some think this isn't a winning strategy but.....who really knows. Sue rheumatic AP hasn't worked for me, Long story > > > > > I have been on AP for a full year and I feel zero changes. I realize it takes time, but ...shouldn't I have *some* improvement at least? I can't imagine that at the 2 year mark I would just wake up so much better. It seems logical to me it would be gradual...if at all. > > I feel like AP really only helps RA and Scleroderma. It seems the Sjogrens cases like mine, Lupus and other rheumatic auto immune illnesses don't respond so well to AP. Even doctors who use AP give no hope for Sjogrens specifically, including the big names listed here. I have either seen or talked with various such doctors. Whitman even tried to steer me towards Plaquenil and seemed doubtful of Doxy or Mino but put it on the table, just because I asked so much. > > There is a tiny handful of people with Sjogrens who claim they are better. Now it is not my job to doubt patients that have suffered. But I cannot ignore the facts. There aren't many SS patients on here or stories posted on the other board, but here is the breakdown. A few NO change. A few claim they are improved, but then you ask the Q's, and they aren't really that much better. One such person takes Evoxac and says that now makes her close to normal as far as saliva, whereas before didn't do anything. It didn''t do anything for me either but even if it did post AP like it does for her, I can't take that junk again with its ridiculous side effects. Another girl said her eyes are better, but her eyes weren't bad enough for her to get plugs like me. And she doesn't wear contacts and that's the true test as your eyes have to be completely healthy to be able to withstand the added moisture loss from contact lens wear. > > To add to the problem, I not only dealing with Sjogrens but constant nausea, light headedness, dizziness and peripheral neuropathy. My eyes are still dry and painful, no way can I stick my contacts back in, my vision is frequently so blurry, my mouth is still a nasty cotton mouth and i wake to drink all night, my throat is still dry and hard to talk, nose still dry and hard to breath, feminine dryness, arm pits no longer sweat but that is more related to the neuropathy I assume. Stomach still bloated all the time, I am little and eat little but can't get back to my normal weight no matter what, despite a relatively normal thyroid (and yes I have had much more than TSH done tons of times). My face and body is full of pimples like I never before had, worse than teenage acne some get. I have to take stuff to be able to go to the bathroom my system is so sluggish. The neuropathy feels like my hands, feet, legs are constantly being electrocuted. Other times > my legs feel like heavy tree trunks and sometimes my hands are so numb I drop things. All this stuff combined and I cannot sleep as I am too busy putting in eye drops, drinking water all night long, putting in saline wash inside the nose so I can breath just a little, waking up in neuropathy pain. Body tired from fighting the pain, tired from not sleeping. How can AP not help with a single symptom? > > I have done the cleanses, all natural raw food diets, gluten free, diet, LDN, taken TONS of recommended supplements, taken the Doxy, everything. No relief. I hate living like this and the ONLY thing that gave me hope was AP. Yet I am completely and totally disappointed like I never imagined. There is nothing worse in life than losing your health. Losing your job, being left by a significant other, and all sorts of other troubles are nothing. There's a way out with most other negative experiences. I have been through so much in life and this takes the cake. > > I just wanted to say that while AP can do miracles for some, and yet does nothing for others, even damage is possible, it's not completely without risks. I'd love to think there is still hope, but honestly I don't know where I would derive it from. I wish AP worked for me, I even added Zithromax to no avail. I don't know if there is a point in continuing to take it along with all the supplements. > > I'd appreciate if a certain someone doesn't reply to this. She's caused me nothing but heartache. While I have her on my spam filter and never see her group emails anymore, if she replies, then anyone who replies after her, because her name is in the body of the mail from before, those too will go in the junk folder so I will miss it all. She knows who she is. Everyone else here has been so kind and supportive. I appreciate that much more than needless criticism. There's enough to be depressed about as it is. > > Thanks. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 Sue and group; Thanks Sue. I am coughing so much. This cold is awful but I am glad I don't have any infections like sinusitus. I can tell its Viral. I still can't take my humira injections. I haven't noticed any pain yet from not taking it. It isn't so hard to quit smoking this time. I had to quit cause of not being able to breathe. It feels good to breathe again. Angels are comforting me. Sorry to hear you are sick too. Glad to hear your feeling better. So many people are sick. I hope this cold is gone by Christmas. THat is only about 2 weeks away. I will have my first smoke free christmas in a long time. It feels great to quit. It was just so hard to start. I haven't heard from Shirley anyone know how she is doing. God bless and take care. gentle hugs Clora ************************************************************ > Clora, I'm so proud of you! You are doing great! I'm still pulling for > you, and I hope you use your angels to comfort you. > > I hope you soon get well from the cold. I had a stomach virus, which I > think I have recovered from. At the same time, I had a sinus infection, > which is much better but not completely gone. I went a week and one day > without Enbrel, but by this past Wednesday, my knees were crying out > for it, so I went ahead with an injection. > > I do hope that you are soon well. > > Sue > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 Regarding the hair, you have my permission to post it. Years ago, I was a real estate agent and had two elderly spinsters as clients. They both had such heavy facial hair that they almost looked like a man. My young broker in the office referred to them as " bearded ladies. " Obviously, they weren't bothered by their facial hair. Margot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2010 Report Share Posted March 2, 2010 Sue The most important question is is the herniation impinging on your spinal cord....if not, from what I have researched they do not surgically treat at the t10 level......if you work for a large company and would be qualified to work " in the office " or cut down on the travel, you should speak with your boss about a " reasonable accomodation " for your disabilithy...do it in writing and use the word " reasonable accomodation " in the letter.....and state for my disability which is........this should protect your job....at least for the 12 months of FMLA leave... Deb RN  Debra ________________________________ From: " sulaws9@... " <sulaws9@...> neck pain Sent: Tue, March 2, 2010 11:23:10 AM Subject: Re: Re: Deb again  Rochele,I think a lot of the pain comes from what I do most in my work,which is drive.I think I'm going to talk to a Surgeon,emphasis on talk.I hear so many negative things about surgey but it really can,t be much wortse than mu present situation with 24/7 pain. :-( Sent via BlackBerry by AT & T [PainInTheNeck- Back] Re: Deb again Hi Sue, Your T 10 herniation is quite far from your neck fusion. However, if your posture is being effected by pain at T10 that will effect the way you hold your neck. I know that if my posture is bad the old neck pain comes back with a vengence and I have to renue my efforts at maintaining good posture -- chest out, shoulders down and back, shoulder blades down, pinched together and against my ribs (not winged). This shoulder posture alignes the neck (especially for those with straight necks-no lorditic curve) and back properly. But I'm guessing with a herniated disc in the middle of your back, this posture won't be quite comfortable. With a herniated disc at that level you may be hunching over just because it's more comfortable because it opens up the facet joints in the back where the herniation is bulging against nerve roots. Rochelle > > I replied to your post from earlier yesterday.I don't think it went through.So I apologize if this is some of the same stuff. > You had asked if I,d had an emg,yes,years ago.Don,t remember the outcome just my muscles going crazy,during. Do I need another as far as supportind disability claim? You also mentioned surgery.I have been told I need surgery to repair the herniated thoracic disc.I had hoped to avoid that if I could.I hear it,s awful.Will they expect me to try surgery before I will be considered for disability? > > With a little luck and alot of prayers,my hope is to hang in there in the work world as long as I can.But if the past 6 months are any indicator,I just don't know.I,am trying to gather all the info I can,so that when the time comes I will at least know where to start. > > I still have alot of pain in my neckmwhere I had the fusion.This may be a weird question,but could the herniation at T10 have any thing to do with it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2010 Report Share Posted March 2, 2010 Sue The most important question is is the herniation impinging on your spinal cord....if not, from what I have researched they do not surgically treat at the t10 level......if you work for a large company and would be qualified to work " in the office " or cut down on the travel, you should speak with your boss about a " reasonable accomodation " for your disabilithy...do it in writing and use the word " reasonable accomodation " in the letter.....and state for my disability which is........this should protect your job....at least for the 12 months of FMLA leave... Deb RN  Debra ________________________________ From: " sulaws9@... " <sulaws9@...> neck pain Sent: Tue, March 2, 2010 11:23:10 AM Subject: Re: Re: Deb again  Rochele,I think a lot of the pain comes from what I do most in my work,which is drive.I think I'm going to talk to a Surgeon,emphasis on talk.I hear so many negative things about surgey but it really can,t be much wortse than mu present situation with 24/7 pain. :-( Sent via BlackBerry by AT & T [PainInTheNeck- Back] Re: Deb again Hi Sue, Your T 10 herniation is quite far from your neck fusion. However, if your posture is being effected by pain at T10 that will effect the way you hold your neck. I know that if my posture is bad the old neck pain comes back with a vengence and I have to renue my efforts at maintaining good posture -- chest out, shoulders down and back, shoulder blades down, pinched together and against my ribs (not winged). This shoulder posture alignes the neck (especially for those with straight necks-no lorditic curve) and back properly. But I'm guessing with a herniated disc in the middle of your back, this posture won't be quite comfortable. With a herniated disc at that level you may be hunching over just because it's more comfortable because it opens up the facet joints in the back where the herniation is bulging against nerve roots. Rochelle > > I replied to your post from earlier yesterday.I don't think it went through.So I apologize if this is some of the same stuff. > You had asked if I,d had an emg,yes,years ago.Don,t remember the outcome just my muscles going crazy,during. Do I need another as far as supportind disability claim? You also mentioned surgery.I have been told I need surgery to repair the herniated thoracic disc.I had hoped to avoid that if I could.I hear it,s awful.Will they expect me to try surgery before I will be considered for disability? > > With a little luck and alot of prayers,my hope is to hang in there in the work world as long as I can.But if the past 6 months are any indicator,I just don't know.I,am trying to gather all the info I can,so that when the time comes I will at least know where to start. > > I still have alot of pain in my neckmwhere I had the fusion.This may be a weird question,but could the herniation at T10 have any thing to do with it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2010 Report Share Posted March 2, 2010 Hi Deb,You are so helpful.Thank you.It is impinging on my spinal cord.The guy who did my neck fusion referred me to someone in his practice,but I don,t like those guys.I have considered what you are suggesting but trouble is sitting for any period of time is not tolerable.I really don,t know what the answer is.Deb if I decide to talk to a surgeon, Neuro or Ortho? Thanks.There must be some hope for us broken down old Nurses Lol ! Sent via BlackBerry by AT & T [PainInTheNeck- Back] Re: Deb again Hi Sue, Your T 10 herniation is quite far from your neck fusion. However, if your posture is being effected by pain at T10 that will effect the way you hold your neck. I know that if my posture is bad the old neck pain comes back with a vengence and I have to renue my efforts at maintaining good posture -- chest out, shoulders down and back, shoulder blades down, pinched together and against my ribs (not winged). This shoulder posture alignes the neck (especially for those with straight necks-no lorditic curve) and back properly. But I'm guessing with a herniated disc in the middle of your back, this posture won't be quite comfortable. With a herniated disc at that level you may be hunching over just because it's more comfortable because it opens up the facet joints in the back where the herniation is bulging against nerve roots. Rochelle > > I replied to your post from earlier yesterday.I don't think it went through.So I apologize if this is some of the same stuff. > You had asked if I,d had an emg,yes,years ago.Don,t remember the outcome just my muscles going crazy,during. Do I need another as far as supportind disability claim? You also mentioned surgery.I have been told I need surgery to repair the herniated thoracic disc.I had hoped to avoid that if I could.I hear it,s awful.Will they expect me to try surgery before I will be considered for disability? > > With a little luck and alot of prayers,my hope is to hang in there in the work world as long as I can.But if the past 6 months are any indicator,I just don't know.I,am trying to gather all the info I can,so that when the time comes I will at least know where to start. > > I still have alot of pain in my neckmwhere I had the fusion.This may be a weird question,but could the herniation at T10 have any thing to do with it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2010 Report Share Posted March 2, 2010 Hi Deb,You are so helpful.Thank you.It is impinging on my spinal cord.The guy who did my neck fusion referred me to someone in his practice,but I don,t like those guys.I have considered what you are suggesting but trouble is sitting for any period of time is not tolerable.I really don,t know what the answer is.Deb if I decide to talk to a surgeon, Neuro or Ortho? Thanks.There must be some hope for us broken down old Nurses Lol ! Sent via BlackBerry by AT & T [PainInTheNeck- Back] Re: Deb again Hi Sue, Your T 10 herniation is quite far from your neck fusion. However, if your posture is being effected by pain at T10 that will effect the way you hold your neck. I know that if my posture is bad the old neck pain comes back with a vengence and I have to renue my efforts at maintaining good posture -- chest out, shoulders down and back, shoulder blades down, pinched together and against my ribs (not winged). This shoulder posture alignes the neck (especially for those with straight necks-no lorditic curve) and back properly. But I'm guessing with a herniated disc in the middle of your back, this posture won't be quite comfortable. With a herniated disc at that level you may be hunching over just because it's more comfortable because it opens up the facet joints in the back where the herniation is bulging against nerve roots. Rochelle > > I replied to your post from earlier yesterday.I don't think it went through.So I apologize if this is some of the same stuff. > You had asked if I,d had an emg,yes,years ago.Don,t remember the outcome just my muscles going crazy,during. Do I need another as far as supportind disability claim? You also mentioned surgery.I have been told I need surgery to repair the herniated thoracic disc.I had hoped to avoid that if I could.I hear it,s awful.Will they expect me to try surgery before I will be considered for disability? > > With a little luck and alot of prayers,my hope is to hang in there in the work world as long as I can.But if the past 6 months are any indicator,I just don't know.I,am trying to gather all the info I can,so that when the time comes I will at least know where to start. > > I still have alot of pain in my neckmwhere I had the fusion.This may be a weird question,but could the herniation at T10 have any thing to do with it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2010 Report Share Posted March 2, 2010 Sue I sent you a fantastic link to strictly thoracic herniations now I dont see the link,,,did you receive it, if not I will resend,.,.....because it is impinging, there isnt a lot of choice. Thank goodness that the level is not higher because of the poor bloodflow, poor surgical area, and the chance for paraplegia...yours is not in the high thoracic area which is excellent. I have always preferred neurosurgeons, they almost never have personality, nor bedside manner but I deal with it.  If it were me, I think I would get at a minimum 2 opinions, from different hospitals/practices. Too often, if you go to a member of the same office, you will get the same answer. Most doc's wont speak against another doc....so when you go for the second opinion, do not inform him that its a second opinion. This is the ONLY time that I believe its in the patients best interest to not be completely upfront. You can certainly tell the first and second doc that you are wanting more then one opinion, just tell them you havent decided who....if the two opinions differ wildly, get a third. Most insurance companies have no problems with second opinions. A good physical therapists might be able to help you to make sure that your " core " abdominal muscles etc are as strong as they possibly can be....that if you smoke, get help to stop. This is imperative, as smoking, causes difficulty with small blood vessels, and because of this difficulty with fusions.  Its also important to be at your optimal weight....and this is because a neck fusion, however painful, is easier to recover from because our necks are not load bearing joints. Deb RN  ________________________________ From: " sulaws9@... " <sulaws9@...> neck pain Sent: Tue, March 2, 2010 12:38:39 PM Subject: Re: Re: Sue  Hi Deb,You are so helpful.Thank you.It is impinging on my spinal cord.The guy who did my neck fusion referred me to someone in his practice,but I don,t like those guys.I have considered what you are suggesting but trouble is sitting for any period of time is not tolerable.I really don,t know what the answer is.Deb if I decide to talk to a surgeon, Neuro or Ortho? Thanks.There must be some hope for us broken down old Nurses Lol ! Sent via BlackBerry by AT & T [PainInTheNeck- Back] Re: Deb again Hi Sue, Your T 10 herniation is quite far from your neck fusion. However, if your posture is being effected by pain at T10 that will effect the way you hold your neck. I know that if my posture is bad the old neck pain comes back with a vengence and I have to renue my efforts at maintaining good posture -- chest out, shoulders down and back, shoulder blades down, pinched together and against my ribs (not winged). This shoulder posture alignes the neck (especially for those with straight necks-no lorditic curve) and back properly. But I'm guessing with a herniated disc in the middle of your back, this posture won't be quite comfortable. With a herniated disc at that level you may be hunching over just because it's more comfortable because it opens up the facet joints in the back where the herniation is bulging against nerve roots. Rochelle > > I replied to your post from earlier yesterday.I don't think it went through.So I apologize if this is some of the same stuff. > You had asked if I,d had an emg,yes,years ago.Don,t remember the outcome just my muscles going crazy,during. Do I need another as far as supportind disability claim? You also mentioned surgery.I have been told I need surgery to repair the herniated thoracic disc.I had hoped to avoid that if I could.I hear it,s awful.Will they expect me to try surgery before I will be considered for disability? > > With a little luck and alot of prayers,my hope is to hang in there in the work world as long as I can.But if the past 6 months are any indicator,I just don't know.I,am trying to gather all the info I can,so that when the time comes I will at least know where to start. > > I still have alot of pain in my neckmwhere I had the fusion.This may be a weird question,but could the herniation at T10 have any thing to do with it? > Quote Link to comment Share on other sites More sharing options...
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