Re: Sandi

[Guest guest]

Hello Sandi! I must say that before I had joint swelling I was developing at

an above average rate. The doctors had told my parents I may be over 6ft

tall. I am 5'6. I didn't reach 6 ft and the doctors seem to thinks thats due

to my JRA but who knows. My wrists are a little smaller than the rest of my

body but not really noticable unless pointed out. As a child, I was noticably

stiff. I was so used to the pain it was hard for me to notice that I walked

with a limp during those not so good flare-ups. Although my mother was very

in tune to my disease, it was hard for her to take notice of my stiffness and

limping because she got so used to it. Sometimes parents would tell her that

I looked like I was an old lady with the way that I walked. It wasn't that my

mom didn't know I was in pain, she just didn't see my JRA as my friends

parents did. I eventually wound up at A.I. Dupont where they treated my JRA

very aggressively. I was in and out of the hospital and therapy. I began to

be able to lead a normal childhood. I played softball for a couple of years.

Of course I couldn't play all of the games or go to all of the practices due

to pain and stiffness but it made me feel good to be a memeber of the team.

Later I found that it was too taxing on my body. Because the arthritis had

damaged my spine I could not do a summersault, headstand, cartwheel,

gymnastics or any contact sport. It really upset me not to do those things at

first even though I knew why. My mom got me into dancing and singing. She had

to really educate anyone that dealt with me on a physical level so my dance

teacher knew all about my JRA and the limitations that I had. I ended up

dancing for 6 years. I am still singing. In middle school and high school I

was in all of the talent shows singing. I even got special permission to

leave the hospital to sing in a middle school talent show. Going into

college, I sang in weddings, was in the college musicals, and I was a

resident assistant that counciled other students . I wasn't active in any

sports throughout school but I was active in so much more like student

council, peer helping, choir, and band. To see me now, you could never geuss

that I have a debilitating disease. I credit alot of my strength to my mother

who cried with me when I was in pain and advocated for me to lead an active

childhood. Talking to my mom today, she has mentioned how happy she was with

the aggressive medical treatment. She said that at first, she was very scared

and worried that they were using so many drugs. I had nightmares where I

would sleepwalk and I had extreme emotions with the prendisone not to

mention the weightgain among other things. Yet, she had to educate herself

while also trusting that the aggressiveness was for the sole reason that my

body and bones were growing and the doctors wanted them to grow the right

way. Well, I am certainly writing quite a bit to you! I hope this answers

your question. I would be glad to chat with you or Ashli. I always thought

it was so neat meeting someone else with JRA. Most of the older girls that I

met as a child were not in good shape and hadn't been treated as aggressively

as a child and therefore suffered with permanent disability. I can understand

where you and your daughter are right now and I know it is so tough. Please

feel free to contact me at any time.

Take Care!

Melodi

[Guest guest]

Sandi,

Great job on your homepage, it looks great! Ashli is adorable, I love the

little costume!

[Guest guest]

Sandi: Hang in there! This has got to be hard on you and as far as I'm

concerned, you can vent all you need to. I am sorry that things are not

going well. I'll be keeping you and

both in my thoughts and prayers. Please, let us know the results of

the MRI.

-mom to , dysgammaglobulinemia; etc.

[Guest guest]

Sandi: Hang in there! This has got to be hard on you and as far as I'm

concerned, you can vent all you need to. I am sorry that things are not

going well. I'll be keeping you and

both in my thoughts and prayers. Please, let us know the results of

the MRI.

-mom to , dysgammaglobulinemia; etc.

[Guest guest]

Wenoka ----

I couldn't have said it any better. Life will always be filled with == what

if's, why me's, if only's. It doesn't change life and we can't change every

aspect of it. We can learn from it, deal with it and become stronger. We can

love our children no matter what and show them how wonderful life can be. We

are all strong people and we need to find that within ourselves. We have no

control over what portions of our genetic makeup our children may obtain and

there is no way for all of us to know our exact makeup before we make each step.

My grandmother always said, " If you wait till you have enough money for a baby,

you will never have one. " Same rule here. If you wait till everything is in

perfect shape with your genetics, etc., you may never have a child. No one

intentionally passes something on to their children, unless they are doing

obvious drugs or something during their pregnancy, but sometimes these things

happen.

I want to thank all of you for the support over the past week it has been a

rough month and I hope it will slow down soon. We are just back in from the

hospital again and will be going again tomorrow. We are exhausted but we have a

sleep deprivation EEG tomorrow so it will be little sleep tonight for us.

Have a nice afternoon everyone.

Hugs,

, & Kaylin

---

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[Guest guest]

Dawn,

We are still waiting to hear for sure but he has been e-mailing us offen to let us know he hasn't forgotten.He said as soon as the accutane confrence is over he will be in touch with more details,So I guess it's not official yet but I feel real good about it.I have talked to mom about this and even if they don't let us speak I think we will be attending I know we have so much information they need to hear and one way or the other.

How have things been going on your end,Have you signed a contract yet,we are still waiting to hear from the Attorney working on the Prozac case.I think it's time to contact him again,We had a depostion last friday with our attorney here in Omaha and the Pyschairtist and his Attorney,It went very well.Even our attorney said what a twitt this Dr. is,The Dr. (Dr. Rich) claimed he wasn't aware Dad was his patient!Can you belive that.He was the specialist that was called in when Dads primary Doctor hospitalized him for dehydration,He was the Dr. that signed Dad out of the hospital,Dad was to meet with this Dr. the same day that he was released which mom and dad went to his office but instead of being seen by this Dr. they were seen by a therapist,He calmed that it was up to dad to request a meeting with him and he said Dad never called him our he would have seen him personally,Dad was in no shape to do this and it was the Drs. release orders that the dr. wrote in his own hand writting to see him in his office that day.Any way he said he knew dad was in a safe place at the hospital yet he signed him out he said the primary dr. wanted to keep dad there 2 or 3 more days.He also said that the therapist came into his office on the 17th the day dad was there for the last time 3 days before he committed suicide and talked to the dr. about upping dads dose that the family was concerned that it was the medicine that was making dad so sick and that the family request he be hospitalized,but he said he told the therapist to assure the family that he was well with in the theraputic limits of prozac and that the hospital would do no more than what was already being done.Yet Dad wasn't his patient.Can you belive this!!!

The last question asked by our Attorney was have you ever been sued before after a long pause he said yes,Dawn this man had one lawsuit in 1985 that was settled out of court and since Dads death ther have been 2 more a total of 4 lawsuites.Mom said she remembered that at least one other was a suicide death but couldn't remember what the third suit was she was writting down info on the second death after dad and missed it but we are getting a copy of the deposition so we'll know more about that then.

Mom feels even if this dosen't get to court she got to see the S.O.B.squirm.

I personally think they will come back with a settlement offer but I told mom not to settle that this man needs to lose his licience.I belive we will force it to court he had no defence for his actions at all,He was also asked if this death could have been prevented and his answer was possibly.Possibly my ASS,If they would have put Dad back in the hospital and got him off the Prozac he would be with us today.

Well got to get the animals tended to so I can get myself ready for work I'll let you know more about the what's going on as soon as we know more.

Love Ya Sandi

[Guest guest]

Dawn,

We are still waiting to hear for sure but he has been e-mailing us offen to let us know he hasn't forgotten.He said as soon as the accutane confrence is over he will be in touch with more details,So I guess it's not official yet but I feel real good about it.I have talked to mom about this and even if they don't let us speak I think we will be attending I know we have so much information they need to hear and one way or the other.

How have things been going on your end,Have you signed a contract yet,we are still waiting to hear from the Attorney working on the Prozac case.I think it's time to contact him again,We had a depostion last friday with our attorney here in Omaha and the Pyschairtist and his Attorney,It went very well.Even our attorney said what a twitt this Dr. is,The Dr. (Dr. Rich) claimed he wasn't aware Dad was his patient!Can you belive that.He was the specialist that was called in when Dads primary Doctor hospitalized him for dehydration,He was the Dr. that signed Dad out of the hospital,Dad was to meet with this Dr. the same day that he was released which mom and dad went to his office but instead of being seen by this Dr. they were seen by a therapist,He calmed that it was up to dad to request a meeting with him and he said Dad never called him our he would have seen him personally,Dad was in no shape to do this and it was the Drs. release orders that the dr. wrote in his own hand writting to see him in his office that day.Any way he said he knew dad was in a safe place at the hospital yet he signed him out he said the primary dr. wanted to keep dad there 2 or 3 more days.He also said that the therapist came into his office on the 17th the day dad was there for the last time 3 days before he committed suicide and talked to the dr. about upping dads dose that the family was concerned that it was the medicine that was making dad so sick and that the family request he be hospitalized,but he said he told the therapist to assure the family that he was well with in the theraputic limits of prozac and that the hospital would do no more than what was already being done.Yet Dad wasn't his patient.Can you belive this!!!

The last question asked by our Attorney was have you ever been sued before after a long pause he said yes,Dawn this man had one lawsuit in 1985 that was settled out of court and since Dads death ther have been 2 more a total of 4 lawsuites.Mom said she remembered that at least one other was a suicide death but couldn't remember what the third suit was she was writting down info on the second death after dad and missed it but we are getting a copy of the deposition so we'll know more about that then.

Mom feels even if this dosen't get to court she got to see the S.O.B.squirm.

I personally think they will come back with a settlement offer but I told mom not to settle that this man needs to lose his licience.I belive we will force it to court he had no defence for his actions at all,He was also asked if this death could have been prevented and his answer was possibly.Possibly my ASS,If they would have put Dad back in the hospital and got him off the Prozac he would be with us today.

Well got to get the animals tended to so I can get myself ready for work I'll let you know more about the what's going on as soon as we know more.

Love Ya Sandi

[Guest guest]

Dear Sandi: This doctor sounds like the typical drug pusher, shucking his responsibilities and passing the buck -- or the Prozac. It's unforgiveable that such ignorant asses are in charge of anything much less human life. GO GET 'EM!!!

[Guest guest]

Dear Sandi: This doctor sounds like the typical drug pusher, shucking his responsibilities and passing the buck -- or the Prozac. It's unforgiveable that such ignorant asses are in charge of anything much less human life. GO GET 'EM!!!

[Guest guest]

Sandi, you are my inspiration, you are a normal family fighting the

system and you are doing it.... thank you for this detailed post... i

really do admire you and my heart aches for the loss of you dad. I

was an Air Force brat, lived in Bellview for 4 years during the late

50's and early 60's, when SAC opened and all the B-52's made their

mark on the world, still remember them shaking our house as they

landed...I loved Omaha and have fond memories of the corn fields

higher than anyone can imagine.... you are from the true heartland of

this huge country, best of everything in exposing this sad sad tale,

hugs

> Dawn,

> We are still waiting to hear for sure but he has been e-mailing

us offen to

> let us know he hasn't forgotten.He said as soon as the accutane

confrence is

> over he will be in touch with more details,So I guess it's not

official yet

> but I feel real good about it.I have talked to mom about this and

even if

> they don't let us speak I think we will be attending I know we have

so much

> information they need to hear and one way or the other.

> How have things been going on your end,Have you signed a contract

yet,we are

> still waiting to hear from the Attorney working on the Prozac

case.I think

> it's time to contact him again,We had a depostion last friday with

our

> attorney here in Omaha and the Pyschairtist and his Attorney,It

went very

> well.Even our attorney said what a twitt this Dr. is,The Dr. (Dr.

Rich)

> claimed he wasn't aware Dad was his patient!Can you belive that.He

was the

> specialist that was called in when Dads primary Doctor hospitalized

him for

> dehydration,He was the Dr. that signed Dad out of the hospital,Dad

was to

> meet with this Dr. the same day that he was released which mom and

dad went

> to his office but instead of being seen by this Dr. they were seen

by a

> therapist,He calmed that it was up to dad to request a meeting with

him and

> he said Dad never called him our he would have seen him

personally,Dad was in

> no shape to do this and it was the Drs. release orders that the dr.

wrote in

> his own hand writting to see him in his office that day.Any way he

said he

> knew dad was in a safe place at the hospital yet he signed him out

he said

> the primary dr. wanted to keep dad there 2 or 3 more days.He also

said that

> the therapist came into his office on the 17th the day dad was

there for the

> last time 3 days before he committed suicide and talked to the dr.

about

> upping dads dose that the family was concerned that it was the

medicine that

> was making dad so sick and that the family request he be

hospitalized,but he

> said he told the therapist to assure the family that he was well

with in the

> theraputic limits of prozac and that the hospital would do no more

than what

> was already being done.Yet Dad wasn't his patient.Can you belive

this!!!

> The last question asked by our Attorney was have you ever been sued

before

> after a long pause he said yes,Dawn this man had one lawsuit in

1985 that was

> settled out of court and since Dads death ther have been 2 more a

total of 4

> lawsuites.Mom said she remembered that at least one other was a

suicide death

> but couldn't remember what the third suit was she was writting down

info on

> the second death after dad and missed it but we are getting a copy

of the

> deposition so we'll know more about that then.

> Mom feels even if this dosen't get to court she got to see the

S.O.B.squirm.

> I personally think they will come back with a settlement offer but

I told

> mom not to settle that this man needs to lose his licience.I belive

we will

> force it to court he had no defence for his actions at all,He was

also asked

> if this death could have been prevented and his answer was

possibly.Possibly

> my ASS,If they would have put Dad back in the hospital and got him

off the

> Prozac he would be with us today.

> Well got to get the animals tended to so I can get myself ready for

work I'll

> let you know more about the what's going on as soon as we know more.

> Love Ya Sandi

[Guest guest]

Sandi, you are my inspiration, you are a normal family fighting the

system and you are doing it.... thank you for this detailed post... i

really do admire you and my heart aches for the loss of you dad. I

was an Air Force brat, lived in Bellview for 4 years during the late

50's and early 60's, when SAC opened and all the B-52's made their

mark on the world, still remember them shaking our house as they

landed...I loved Omaha and have fond memories of the corn fields

higher than anyone can imagine.... you are from the true heartland of

this huge country, best of everything in exposing this sad sad tale,

hugs

> Dawn,

> We are still waiting to hear for sure but he has been e-mailing

us offen to

> let us know he hasn't forgotten.He said as soon as the accutane

confrence is

> over he will be in touch with more details,So I guess it's not

official yet

> but I feel real good about it.I have talked to mom about this and

even if

> they don't let us speak I think we will be attending I know we have

so much

> information they need to hear and one way or the other.

> How have things been going on your end,Have you signed a contract

yet,we are

> still waiting to hear from the Attorney working on the Prozac

case.I think

> it's time to contact him again,We had a depostion last friday with

our

> attorney here in Omaha and the Pyschairtist and his Attorney,It

went very

> well.Even our attorney said what a twitt this Dr. is,The Dr. (Dr.

Rich)

> claimed he wasn't aware Dad was his patient!Can you belive that.He

was the

> specialist that was called in when Dads primary Doctor hospitalized

him for

> dehydration,He was the Dr. that signed Dad out of the hospital,Dad

was to

> meet with this Dr. the same day that he was released which mom and

dad went

> to his office but instead of being seen by this Dr. they were seen

by a

> therapist,He calmed that it was up to dad to request a meeting with

him and

> he said Dad never called him our he would have seen him

personally,Dad was in

> no shape to do this and it was the Drs. release orders that the dr.

wrote in

> his own hand writting to see him in his office that day.Any way he

said he

> knew dad was in a safe place at the hospital yet he signed him out

he said

> the primary dr. wanted to keep dad there 2 or 3 more days.He also

said that

> the therapist came into his office on the 17th the day dad was

there for the

> last time 3 days before he committed suicide and talked to the dr.

about

> upping dads dose that the family was concerned that it was the

medicine that

> was making dad so sick and that the family request he be

hospitalized,but he

> said he told the therapist to assure the family that he was well

with in the

> theraputic limits of prozac and that the hospital would do no more

than what

> was already being done.Yet Dad wasn't his patient.Can you belive

this!!!

> The last question asked by our Attorney was have you ever been sued

before

> after a long pause he said yes,Dawn this man had one lawsuit in

1985 that was

> settled out of court and since Dads death ther have been 2 more a

total of 4

> lawsuites.Mom said she remembered that at least one other was a

suicide death

> but couldn't remember what the third suit was she was writting down

info on

> the second death after dad and missed it but we are getting a copy

of the

> deposition so we'll know more about that then.

> Mom feels even if this dosen't get to court she got to see the

S.O.B.squirm.

> I personally think they will come back with a settlement offer but

I told

> mom not to settle that this man needs to lose his licience.I belive

we will

> force it to court he had no defence for his actions at all,He was

also asked

> if this death could have been prevented and his answer was

possibly.Possibly

> my ASS,If they would have put Dad back in the hospital and got him

off the

> Prozac he would be with us today.

> Well got to get the animals tended to so I can get myself ready for

work I'll

> let you know more about the what's going on as soon as we know more.

> Love Ya Sandi

[Guest guest]

Sandi,

Thank goodness you have a good Children's Hospital nearby. What part of the

country are you in? I'll pray that he doesn't need heart surgery.

, 's mommy

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Sandi:

Thanks for the thought. I would have thought she might have allergies, since

she started with the dark circles (allergic shiners) a year or so ago. But

the allergy testing they did this winter included " everything " in this area,

indoor and out. She never has the symptoms I do, congestion, runny nose,

itchy eyes, but I understand you don't necessarily have to have those

symptoms.

She's extra crabby though, even for a 3 yr old.

DH has a work dinner tonight and I'm dragging already, not to mention the

" solo " night ahead. Sigh. Whatever happened to that 2nd trimester " high " ??

(mom to , age 3, polysaccharide antibody def)

[Guest guest]

Sandi:

Well, Omnicef is our " sure thing " for sinus infections, so it's what we've

always gone to. So far, the only abx that has totally failed for was

amoxicillin, and that NEVER worked. Cefzil seemed to peter out with the

third-to-last sinus infection and she ended up on Omnicef to clear it. Last

two were Omnicef alone, but last one required two courses, which doesn't

surprise me. Thanks for the heads-up... I really should keep that in mind

about the abx maybe not working. She doesn't use any nose spray, we've always

done fine just treating with abx. Something to consider though, is it a

steroid to help the abx work?

Thanks--

(mom to , age 3. Currently has polysaccharide antibody def,

previously had transient IgG, IgA, t-cell & other defs)

[Guest guest]

Poor Kody. I think we all have our limits--and procedures we just plain hate.

For Kody, it's a nasal scope. I will definitely be praying. And I firmly

believe that bribery has it's place! By the way, it makes so much sense when

you compare it to your fear of spiders. I have the same reaction to snakes.

I doubt that's going away anytime soon. Sorry, I was just trying to help:)

Take Care,

Sandi

[Guest guest]

Sandi:

Thanks for thinking of us! I'm sorry you're sick. I know when I had my bad

sinus infections last year (with our mold) I was crabby and my energy was low

and I felt rotten. I can't believe so many of our kids have to go through

that!

I meant to mention that I have decided to try more Tylenol or Advil with

for her next sinus infection, as I finally gave her some late in this

infection (which seems to be gone now, yeah!) and it seemed to improve her

" behavior " .

I hope you're not flying anywhere soon -- I flew with my sinus infection and

I swear I thought my cheeks would rupture! The pain was awful. It ended up

going to my ears as well, I was thinking that was from the pressure of flying.

Okay, I'm just babbling now! Feel better!

(mom to , age 3. Currently has polysaccharide antibody def,

previously had transient IgG, IgA, t-cell & other defs)

[Guest guest]

Thanks for praying Sandi. Kody's appointment is tomorrow. I'll be sure

to let you all know how it goes. I am nervouse about it, but I know that

Kody needs help. His face is getting puffy now, and his eyes are deep

purple (in some spots so dark as to look black) and he is so cranky!

Diane, Mom to Kody

[Guest guest]

Hi Sandi:

Thanks for your thoughts! Once they realized Amoxicillin did absolutely

nothing for (1999), they started giving her Ceftin for everything, then

switched to Cefzil last year or two just because kids seem to like it better

and it's not so sticky that you waste it. Last summer with all the mold

remediation/hotel illnesses, Cefzil wasn't cutting it, so they would end up

on Omnicef after the Cefzil. The last couple of times we've just started

right away on the Omnicef. But she's needed more and more courses. Like the

first time, only one course of Omnicef. Then two courses. Then 25 days this

last time. Only other abx was she had Augmentin plus Amoxicillin (that new

combo) for her bacterial pneumonia last year. Did the trick nicely.

I don't even know what else they'd give her. Keep in mind some of those

infections of last summer also got a boost at the beginning of Rocephin shots

for a couple of days due to high white counts or high fevers. But then again,

Rocephin is Ceftriaxone, another cephalosporin. Hmmmm. I'm just glad the

Augmentin combo worked so well for the pneumo, she'd never had it before and

it was a little scary to me to deal with something new. So used to the other

stuff, you know?!

(mom to , age 3. Currently has polysaccharide antibody def,

previously had transient IgG, IgA, t-cell & other defs)

[Guest guest]

Diane, mom to Kody:

This is Lynne, I was running thru the emails and when I saw this one, it

stopped me in my tracks. Sis has been saying huh? and what? or we'll ask a

question and she doesn't answer, and says she didn't hear it. I just figured

she was busy. I did have her hearing tested in Kindergarten. I have not

seen what you were talking about on your children. what is the story?

Lynne

[Guest guest]

Sandi:

About the computer " eyes " for . We have the IBM computer camera, it's to

e-mail small movies of to her grandparents. It was SO easy to hook up.

Just popped it out of the box and plugged it into a little port on the back

of the computer. I think they run like $50 though, and you'd want one each

end.

(mom to , age 3-1/2. Currently has polysaccharide antibody def,

previously had transient IgG, IgA, t-cell & other defs)

[Guest guest]

Hi Sandi:

Heated M & Ms are my contribution to the world of cuisine. As a teenager I was

eating some in front of the TV once, they were in a paper towel in my hand.

They got very warm and I realized the inside chocolate was all melted but the

outside candy coating was still solid. They were 10x better this way!

Once you've had melted M & Ms you'll never go back to " raw " ! In my old

microwave you heat them in a coffee cup for about 45 seconds. But start with

20 or 30 and work up in 10 second increments, because if you overcook them

they are charred inside and gross. You want some of the shells to just start

to show cracks.

Off topic but DELICIOUS!!!!!!! Bon Appetit!

(mom to , age 3-1/2. Currently has polysaccharide antibody def,

previously had transient IgG, IgA, t-cell & other defs)

[Guest guest]

Thank you for the recipe, !! I bet I love them--, too!!

Sandi

[Guest guest]

Sandi:

That was my fear, that all of a sudden was allergic to the drug that

had always worked so well for her (Cefzil). But she has had Cefzil many times

since then with no ill effects, so apparently she's not allergic. Though for

the last three sinus infections it hasn't kicked enough and we ended up on

Omnicef in ever-increasing amounts anyway. Since we were living in hotels at

the time of the hives, I assumed it was some industrial laundry detergent or

something similar, as it happened during a nap in our hotel bed.

I don't have a sinus infection this time, just ear, but my behavior isn't so

great regardless! Last year with the mold, I had sinus AND ear, and I was a

beast I admit!!! 'Course I had other stresses at the same time because of the

situation we were in. I'm more pitiful than beastly with this ear thing, not

crabby but tearful and weak and woozy. The augmentin is supposed to kick in

later today. I hope I hope! Been holding a warm washcloth to my ear

periodically and wishing for knowledge of how to do some warm drops. Any

ideas?

My wonderful MIL took most of yesterday and again today. Bless that

woman, what a tremendous help she is.

(mom to , age 3-1/2. Currently has polysaccharide antibody def,

previously had transient IgG, IgA, t-cell & other defs)

[Guest guest]

Sandi:

That was my fear, that all of a sudden was allergic to the drug that

had always worked so well for her (Cefzil). But she has had Cefzil many times

since then with no ill effects, so apparently she's not allergic. Though for

the last three sinus infections it hasn't kicked enough and we ended up on

Omnicef in ever-increasing amounts anyway. Since we were living in hotels at

the time of the hives, I assumed it was some industrial laundry detergent or

something similar, as it happened during a nap in our hotel bed.

I don't have a sinus infection this time, just ear, but my behavior isn't so

great regardless! Last year with the mold, I had sinus AND ear, and I was a

beast I admit!!! 'Course I had other stresses at the same time because of the

situation we were in. I'm more pitiful than beastly with this ear thing, not

crabby but tearful and weak and woozy. The augmentin is supposed to kick in

later today. I hope I hope! Been holding a warm washcloth to my ear

periodically and wishing for knowledge of how to do some warm drops. Any

ideas?

My wonderful MIL took most of yesterday and again today. Bless that

woman, what a tremendous help she is.

(mom to , age 3-1/2. Currently has polysaccharide antibody def,

previously had transient IgG, IgA, t-cell & other defs)

[Guest guest]

HI ,

Sandi here, Bri is doing great--he's between infections, that's always a

happy time at our house. Thanks for asking, my flare seems to be improving a

bit--still on a high dose of Prednisone. I look like a chipmunk!! Oh well,

I see my new Rheumy tomorrow to see what he has planned. Hopefully, he will

have one, if not I DO!!

How are things at your house?

Sandi