Fatigue

[Guest guest]

Dear Karyn,

I'm with you, we should all be able to ask for help, but I find that hard to

do, I have always been so independent. Jimmy wants to help and I run him off

and tell him if I said I was going to do something, if it takes me 2 days, I

will get it done. Today I was changing the linens on the bed and I had to stop

in the middle and just threw myself on the bed. My heart was beating so hard, I

could feel my body throb, but I wouldn't ask for help and there were other

people in the house. If Jimmy knows what I am up to, he will come and help me

and chastise me for not asking. He doesn't like to ask, either. I guess our

feeling of independence gets in the way.

Today I received an email from a grandson and he said all we had to do was

holler and the grandkids would be there for us. We just assume they are all

working and living their lives and don't want to disrupt that. My parents were

the same, they always wanted to be there for us, but they never asked for

anything. When you went to their house, they felt like they had to feed you,

there was always something good in the refrigerator.

Except for the boogie man, I always felt safe. LOL Am I the only one who was

afraid of the boogie man?

Blessings,

Lottie

[Guest guest]

LOL, I am still afraid of the boogie man!!!

Eva

From: Lottie Duthu

Sent: Tuesday, May 26, 2009 1:29 AM

CML

Subject: [ ] Fatigue

Dear Karyn,

I'm with you, we should all be able to ask for help, but I find that hard to do,

I have always been so independent. Jimmy wants to help and I run him off and

tell him if I said I was going to do something, if it takes me 2 days, I will

get it done. Today I was changing the linens on the bed and I had to stop in the

middle and just threw myself on the bed. My heart was beating so hard, I could

feel my body throb, but I wouldn't ask for help and there were other people in

the house. If Jimmy knows what I am up to, he will come and help me and chastise

me for not asking. He doesn't like to ask, either. I guess our feeling of

independence gets in the way.

Today I received an email from a grandson and he said all we had to do was

holler and the grandkids would be there for us. We just assume they are all

working and living their lives and don't want to disrupt that. My parents were

the same, they always wanted to be there for us, but they never asked for

anything. When you went to their house, they felt like they had to feed you,

there was always something good in the refrigerator.

Except for the boogie man, I always felt safe. LOL Am I the only one who was

afraid of the boogie man?

Blessings,

Lottie

[Guest guest]

I love this line you wrote Lottie

" We are like a taxi, just put your hand up on a busy street and someone will be

there to pick you up and take you to your destination. "     You and this group

have picked me up more than you will ever know.

________________________________

From: Lottie Duthu <lotajam@...>

CML < >

Sent: Fri, October 16, 2009 12:35:10 PM

Subject: [ ] Fatigue

 

I'm new to the group. I was diagnosed in July, and am now getting stable on

Gleevec.

____________ _________ _______

Dear Neal,

I don't know of many people who did not suffer from fatigue. Some were able to

continue working out of necessity and others were able to work with lesser side

effects, but had to rest as soon

as they got home from work. We are all different, but fatigue is a side effect

that

most of us have to endure. We soon learn what we can and cannot do. Some get

relief

by working out and regular exercise. My doctor advised me to swim, but when I

found out a man had contracted mengenitis in the YMCA pool, I declined to go.

When I was able, we used to walk at a fast pace for 3 miles; however, I was in a

different trial. Once I was on Gleevec, I was no longer able to run the

distance. We just have to find a happy medium. Going to a gym is a good place to

start, but we have to remember that the person who came ahead of us has left his

germy imprint on the equipment. I am fast becoming a germaphobe because of the

infections I succumbed to. I have managed to stay alive for 14 years by being

vigilant and pro-active. I am encouraged by listening to other people's stories.

Your asking questions is a good beginning for you, there is still much to learn

and there is no time to rest on our laurels, we remain active mentally as well

as physically. I hope you will continue to be a vocal part of the group. We are

like a taxi, just put your hand up on a busy street and someone will be there to

pick you up and take you to your destination.

Hands & hearts,

Lottie Duthu