MD

[Guest guest]

Hi,

Some of you may remember me from some earlier posts. I was dx March 07 and have

been on Sprycel since July 07 (various doses and vacations). I have had some

problems with Sprycel specifically extreme fatigue, SOB, and edema so I have

been taking a lower than recommended dose. I have been one of the lucky ones

and have been PCRU since October 07. I feel extremely fortunate and I don't

want to push my luck but lately I have been taking 50mg every other day. It

helps some with the fatigue and pretty much solved the SOB and edema but my onc

here is alittle worried about the low dose I'm taking so he has recommended I

have a consult with the experts at MD to get a second opinion. He

wants to make sure I don't lose my PCRU.

I have an appointment scheduled for June 15th with Dr. Cortez. I have read may

good things about Dr. Cortez from your posts so I am looking forward to meeting

with him. I was told I should plan to be there 3 days so I am planning my trip

to arrive on Sunday, June 14th and hopefully leave later on Wednesday, June

17th. I was told I should be able to leave by early afternoon on Wednesday.

I would love to hear from anyone who has gone to MD and any advice you

might have. Is it better to fly into Bush International or Hobby airport?

Where would you recommend I stay? They mentioned the Rotary House right

on campus or the Holiday Inn Reliant Park. Also what can I expect while I'm

there. This is all new to me and I'm frankly alittle anxious about the trip.

Any advice would be greatly appreciated.

Thanks,

Patti